Blood Cancers & Disorders Support Group | Page 5

@garyr443 I am also CALR. It was my understanding that CALRs run less risk for clots,...

https://connect.mayoclinic.org/comment/1591253/

Discussion: Hydroxyurea and Sun Exposure

Support Group: Blood Cancers & Disorders

Posted: Jun 5 10:13am

Hi @shenriq According to the NIH there are several patients with essential thrombocythemia that complain of...

https://connect.mayoclinic.org/comment/337924/

Discussion: ET symptom of neuropathy

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2021

I have low iron but not anemic. Iron supplements are helping my low RBC. I take...

https://connect.mayoclinic.org/comment/1000612/

Discussion: Anyone take an iron supplement for low red blood cell count?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2024

The MPN Foundation is the one researching ET extensively. It's free to belong and they have...

https://connect.mayoclinic.org/comment/1014997/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2024

I was on hydroxyurea (Hydrea) for 7 years for Essential Thrombocythemia (aka way too many platelets)...

https://connect.mayoclinic.org/comment/1119537/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2024

Welcome @ksyren! We’re all about hope here in Connect. It is so comforting to know others...

https://connect.mayoclinic.org/comment/1202501/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2025

I Googled why was essential thrombocythemia reclassified from a blood disorder to blood cancer ? I...

https://connect.mayoclinic.org/comment/1301793/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2025

Recently diagnosed with essential thrombocythemia and primary myelofibrosis with MPL mutation. Blood transfusions and iron infusions...

https://connect.mayoclinic.org/comment/764111/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2022

Since there is no cure for Essential Thrombocythemia, and it is a progressive disease, why are...

https://connect.mayoclinic.org/comment/57937/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2012

Welcome to Mayo Connect, @rachelpabs. With your history of essential thrombocythemia, it’s important to have regular...

https://connect.mayoclinic.org/comment/960764/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2023

Welcome to Connect @krag1949 As owner of a greenhouse, this is your super busy season! I'm...

https://connect.mayoclinic.org/comment/1572903/

Discussion: Hydrea and joint pain

Support Group: Blood Cancers & Disorders

Posted: May 12 10:06am

Hi @kapow I am 79 and was diagnosed a year ago with Essential Thrombocythemia and JAK2...

https://connect.mayoclinic.org/comment/887366/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

I'm a very active 83 year old female JAK2 positive, essential thrombocythemia, on Hydrea 500 mg,...

https://connect.mayoclinic.org/comment/859943/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

Welcome to Connect, @clickpaw. There are diets posted online to potentially lower platelets by reducing inflammation...

https://connect.mayoclinic.org/comment/1215129/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2025

Hi @esperanzam The other medications used in the treatment of Essential Thrombocythemia are Anagrelide and Alpha...

https://connect.mayoclinic.org/comment/792359/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

In studies, Besremi has been successfully used for ET. It has been shown to reduce the...

https://connect.mayoclinic.org/comment/1488954/

Discussion: New study: Early treatment with interferon can delay myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jan 22 2:17pm

@gigi05 Yes, I take 7,500 mg of HU each week. As to inflammation, here's what Google...

https://connect.mayoclinic.org/comment/1611336/

Discussion: JAK2 ET and monoclonal antibody INCA44989 treatment

Support Group: Blood Cancers & Disorders

Posted: Jul 2 2:28pm

Welcome to Connect, @livingwithet. Thank you for sharing your ET diagnosis and experience with @tessa and...

https://connect.mayoclinic.org/comment/1149070/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

Hi Steve, Welcome to Connect. ET, or essential thrombocythemia is one of a group of blood...

https://connect.mayoclinic.org/comment/1145659/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2024

Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...

https://connect.mayoclinic.org/comment/1050553/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024