Blood Cancers & Disorders Support Group

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Comments (277)

I Googled why was essential thrombocythemia reclassified from a blood disorder to blood cancer ? I...

https://connect.mayoclinic.org/comment/1301793/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2025

Welcome to Mayo Connect, @rachelpabs. With your history of essential thrombocythemia, it’s important to have regular...

https://connect.mayoclinic.org/comment/960764/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2023

I'm a very active 83 year old female JAK2 positive, essential thrombocythemia, on Hydrea 500 mg,...

https://connect.mayoclinic.org/comment/859943/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

Hi @kapow I am 79 and was diagnosed a year ago with Essential Thrombocythemia and JAK2...

https://connect.mayoclinic.org/comment/887366/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Hi @esperanzam The other medications used in the treatment of Essential Thrombocythemia are Anagrelide and Alpha...

https://connect.mayoclinic.org/comment/792359/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

Welcome to Connect, @livingwithet. Thank you for sharing your ET diagnosis and experience with @tessa and...

https://connect.mayoclinic.org/comment/1149070/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

Hi @shenriq In addition to the Breast Cancer group, I included your post in the Blood...

https://connect.mayoclinic.org/comment/203930/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2018

@mydadhas2024, you are asking a lot of great questions. I know this can be very confusing...

https://connect.mayoclinic.org/comment/1290898/

Discussion: MPNs - I have so many questions.

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2025

A high platelet count suggests Essential Thrombocythemia, but you need to confirm if that is the...

https://connect.mayoclinic.org/comment/252017/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2019

Maybe your doctor should look on CDC, NIH and World Health Org..... In hematology, essential thrombocythemia...

https://connect.mayoclinic.org/comment/1280701/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025

Welcome to Mayo Connect @docoltun. Thank you for sharing your experience with ET and what’s been...

https://connect.mayoclinic.org/comment/898227/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

Welcome to Connect, @clickpaw. There are diets posted online to potentially lower platelets by reducing inflammation...

https://connect.mayoclinic.org/comment/1215129/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2025

Hi @cshew, Rapamycin (Sirolimus) is a medication primarily used as an anti-rejection meditation for patients having...

https://connect.mayoclinic.org/comment/1153019/

Discussion: Reducing platelets with Rapamycin?

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2024

@lehall125 You and others might find my experience informative. I was diagnosed with essential thrombocythemia about...

https://connect.mayoclinic.org/comment/1471947/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 1 8:39am

Hi Steve, Welcome to Connect. ET, or essential thrombocythemia is one of a group of blood...

https://connect.mayoclinic.org/comment/1145659/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2024

I have gotten my platelets down to 388,000 but it has take a long time and...

https://connect.mayoclinic.org/comment/792897/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Hi @jola13, there are several members living with essential thrombocythemia (ET) here like @shenriq @jbgeorge @jackt00...

https://connect.mayoclinic.org/comment/876115/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

The standard of care by World Health Organization for essential thrombocythemia is a bone marrow biopsy...

https://connect.mayoclinic.org/comment/845709/

Discussion: Thrombocythemia - GP can’t find the cause

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

After a diagnosis of Essential Thrombocythemia just before the Covid outbreak, (with Hydro treatment and fluctuating...

https://connect.mayoclinic.org/comment/781995/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

I was diagnosed right away with Essential Thrombocythemia. (ET) having 1,250,000 platelets when first diagnosed. I...

https://connect.mayoclinic.org/comment/1051269/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024