Blood Cancers & Disorders Support Group

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Comments (941)

I would like to share this with you from the NIH Natural Library of Medicine.This is...

https://connect.mayoclinic.org/comment/950906/

Discussion: Don't know what to think and feeling uncertain at this point

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2023

I understand your pain. I was prediabetic at one point and doctor put me on metformin...

https://connect.mayoclinic.org/comment/857068/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2023

Hello @caracello22, Colleen linked me to this conversation as I also have Follicular Lymphoma (low-grade) diagnosed...

https://connect.mayoclinic.org/comment/1049455/

Discussion: Follicular Lymphoma: looking to connect with others

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

Like someone above mentioned, you need to get your daughter to the best hematologist / oncologist...

https://connect.mayoclinic.org/comment/824746/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2023

Hi Lori! I am now 8 1/2 months post Auto SCT. I was diagnosed with Multiple...

https://connect.mayoclinic.org/comment/335086/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 3, 2021

Hello Lorraine, I also have multiple Myeloma (MM). Was identified 2 years ago. MM was my...

https://connect.mayoclinic.org/comment/109694/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2017

Hello oregongirl. I agree with you that you need much more information, and when you get...

https://connect.mayoclinic.org/comment/209478/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2018

Hello @award . At 65 I too was diagnosed with MGUS on 15 February 2023. It...

https://connect.mayoclinic.org/comment/959984/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2023

To all those reading my other post, let me explain in more detail what’s going to...

https://connect.mayoclinic.org/comment/733543/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2022

@tml I am also a multiple myeloma patient, and have been following your posts, along with...

https://connect.mayoclinic.org/comment/691367/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 20, 2022

I relate. I don’t have the liver treatment complication but when I read about MGUS before...

https://connect.mayoclinic.org/comment/817580/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

I’ve been battling MGUS since May 2019 ever since I realized something was wrong with my...

https://connect.mayoclinic.org/comment/732306/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2022

@nsnipes11 (Nan), I just had another thought. It's quite possible that your primary care doctor just...

https://connect.mayoclinic.org/comment/995165/

Discussion: MGUS I need help understanding my lab report.

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2024

Now having a diagnosis, I just filled out my Bio and will repost here, because it...

https://connect.mayoclinic.org/comment/981394/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Hello Nick, welcome to the MGUS forum. I think you perfectly describe the reaction we all...

https://connect.mayoclinic.org/comment/939342/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2023

Stanford diagnosed me with light chain amyloidosis and multiple myeloma. They recommended dara-CyBorD which consists of...

https://connect.mayoclinic.org/comment/1532424/

Discussion: What should I expect from Dara-CyBorD treatment for AL Amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 21 10:24pm

bach@bach Thank you for sharing your story. Having a diagnosis of MGUS or any disorder/disease can...

https://connect.mayoclinic.org/comment/911559/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

@newfiesgirl1 The relationship of trust must be present in the doctor and patient relationship. I would...

https://connect.mayoclinic.org/comment/1422691/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

Hi, @pmlind4. I’m sorry I missed your post earlier this month. As a refresher, here is...

https://connect.mayoclinic.org/comment/1268261/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2025

@4kleo Welcome to the Mayo Clinic Connect blood disorders group. I was diagnosed, like most are,...

https://connect.mayoclinic.org/comment/1245322/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2025

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