Blood Cancers & Disorders Support Group

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Comments (912)

To all those reading my other post, let me explain in more detail what’s going to...

https://connect.mayoclinic.org/comment/733543/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2022

@tml I am also a multiple myeloma patient, and have been following your posts, along with...

https://connect.mayoclinic.org/comment/691367/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 20, 2022

I relate. I don’t have the liver treatment complication but when I read about MGUS before...

https://connect.mayoclinic.org/comment/817580/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

I’ve been battling MGUS since May 2019 ever since I realized something was wrong with my...

https://connect.mayoclinic.org/comment/732306/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2022

@nsnipes11 (Nan), I just had another thought. It's quite possible that your primary care doctor just...

https://connect.mayoclinic.org/comment/995165/

Discussion: MGUS I need help understanding my lab report.

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2024

Now having a diagnosis, I just filled out my Bio and will repost here, because it...

https://connect.mayoclinic.org/comment/981394/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Hello Nick, welcome to the MGUS forum. I think you perfectly describe the reaction we all...

https://connect.mayoclinic.org/comment/939342/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2023

bach@bach Thank you for sharing your story. Having a diagnosis of MGUS or any disorder/disease can...

https://connect.mayoclinic.org/comment/911559/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

@newfiesgirl1 The relationship of trust must be present in the doctor and patient relationship. I would...

https://connect.mayoclinic.org/comment/1422691/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

Hi, @pmlind4. I’m sorry I missed your post earlier this month. As a refresher, here is...

https://connect.mayoclinic.org/comment/1268261/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2025

@4kleo Welcome to the Mayo Clinic Connect blood disorders group. I was diagnosed, like most are,...

https://connect.mayoclinic.org/comment/1245322/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2025

I was quite healthy until I suddenly started getting short of breath when I exercised 12...

https://connect.mayoclinic.org/comment/1062971/

Discussion: Amyloidosis: What kind of specialist to see for a second opinion?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2024

Greetings! Oh, I remember those early days after I was diagnosed so well. As though they...

https://connect.mayoclinic.org/comment/934881/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2023

Good morning folks, I have an update on what is next for me. A clinical trial...

https://connect.mayoclinic.org/comment/1422306/

Discussion: Smoldering Multiple Myeloma and symptoms

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

I was being seen for the threat of multiple myeloma and was diagnosed with MGUS and...

https://connect.mayoclinic.org/comment/1417471/

Discussion: Has anyone gone through remission without SCT or CAR-T

Support Group: Blood Cancers & Disorders

Posted: Oct 17, 2025

@karishmananda Your mom‘s blood analysis is very similar to mine. I have been diagnosed with MGUS...

https://connect.mayoclinic.org/comment/1194111/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2024

I hope all is stable when you get the results 🌺 However, if not, there’ll be...

https://connect.mayoclinic.org/comment/929537/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

My husband had an abnormal SPEP after a routine physical in August/September 2025, after retiring from...

https://connect.mayoclinic.org/comment/1440071/

Discussion: Smoldering Myeloma: Coping with the emotional toll and acceptance

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2025

@jdm02 Ah, yes . . . MGUS, MGUS, MGUS. For years, I've dealt with this goofy...

https://connect.mayoclinic.org/comment/1415660/

Discussion: Have MGUS and just caught Covid: Did Covid affect your numbers?

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2025

@lisal64 Hi Lisa! It’s great to have you in the BMT/SCT discussion! Thank you for sharing...

https://connect.mayoclinic.org/comment/335087/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 3, 2021