Blood Cancers & Disorders Support Group

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Comments (867)

I understand every feeling you're having and relate to the fact hat it's difficult to find...

https://connect.mayoclinic.org/comment/104705/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2017

Thank you so much @leslie2121 for replying! So your experience was that FLCs went up slightly...

https://connect.mayoclinic.org/comment/1332802/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2025

Hi. I lived with monitoring MGUS from 2002 until 2004, then followed my smoldering myeloma until...

https://connect.mayoclinic.org/comment/74576/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2018

@loribmt Lori, that was a terrific response you made to @beardog. As you know, we all...

https://connect.mayoclinic.org/comment/726309/

Discussion: Husband diagnosed with smothering myeloma and AI amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2022

Hola, si, a mi me detectaron Mieloma Multiple en Setiembre y estoy en tratamiento desde Octubre....

https://connect.mayoclinic.org/comment/1101849/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 8, 2024

Hola a todos. Hace algunos meses escribí en este lugar para interactuar con otras personas que...

https://connect.mayoclinic.org/comment/942134/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2023

I don’t know a whole lot more. It is all so complicated to me. All I...

https://connect.mayoclinic.org/comment/871467/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2023

Hola Catalina, le saludo cordialmente. Quiero contarle que mi esposo había sido prediagnosticado hace 3 meses...

https://connect.mayoclinic.org/comment/865071/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 23, 2023

Thank you, i know all about treating nosebleeds, but not with regard to my new diagnonis...

https://connect.mayoclinic.org/comment/1174075/

Discussion: How to stop or prevent frequent nosebleeds with Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2024

@sharongkinney1117 MGUS is short for Monoclonal Gammopathy of Undetermined Significance. It is a condition where abnormally...

https://connect.mayoclinic.org/comment/1361698/

Discussion: MGUS and pain

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2025

As an 81 year old battling Multple Myeloma for 3&1/2 years, I can say it is...

https://connect.mayoclinic.org/comment/1360913/

Discussion: Is anyone else suffering from bone pain due to multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2025

Thanks again not sure if I have that could be MDS for me not sure if...

https://connect.mayoclinic.org/comment/817111/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

I don't know of anyone in my group that get cart T cells is for Multiple...

https://connect.mayoclinic.org/comment/815771/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

I was diagnosed with Waldenstrom macroglobulinemia July of 2021. I went to the emergency room for...

https://connect.mayoclinic.org/comment/663018/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

@jwillits8 Looks to me like a good case for some autoimmune sleuthing. There are many good...

https://connect.mayoclinic.org/comment/629541/

Discussion: Antiphospholipid: Weird symptoms, don't understand what’s going on

Support Group: Autoimmune Diseases

Posted: Aug 24, 2021

Speaking to your need to find a new physician. Since 1980 (I just dated myself!) I...

https://connect.mayoclinic.org/comment/1046089/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2024

Welcome to Connect, @monte22. MGUS generally is perceived as not having many symptoms but as other...

https://connect.mayoclinic.org/comment/953547/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2023

Hi, I'm a new member of your group. My husbsand was diagnost...just yesterday with Mieloma Múltiple...

https://connect.mayoclinic.org/comment/842532/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

@butkus51 Once again, your case shows to all of us that we are each in the...

https://connect.mayoclinic.org/comment/816093/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

I have smoldering mutiple myeloma which could develop further. We have great doctors here but it...

https://connect.mayoclinic.org/comment/715099/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2022