Blood Cancers & Disorders Support Group

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Comments (941)

@19lesterk I am so sorry to hear about your dad's diagnosis. My dad passed away and...

https://connect.mayoclinic.org/comment/1297251/

Discussion: Anyone with Plasma Cell Leukemia or family?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2025

July 2025 after breaking my back helping someone move, I was diagnosed with plasmacytoma on my...

https://connect.mayoclinic.org/comment/1581177/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 23 9:37am

ABSOLUTELY get a second opinion from a specialist familiar with MGUS/SMM/MM. My story is long, but...

https://connect.mayoclinic.org/comment/932455/

Discussion: Kappa light ratio and beta 2 microglobin

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2023

Hi Meg, I have MM had and an about 19 months out from auto stem cell...

https://connect.mayoclinic.org/comment/1204294/

Discussion: Multiple Myeloma: why do light chain fluctuate?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2025

Hi Terry, I’m retired LEO also with smoldering multiple myeloma. I intentionally retired at 55 as...

https://connect.mayoclinic.org/comment/1387488/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2025

@amyboylan1 This is a good topic, and one you have already received solid responses to. While...

https://connect.mayoclinic.org/comment/1229426/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2025

Thank you, Susan. I too have a list (not as much as a grocery list). At...

https://connect.mayoclinic.org/comment/999349/

Discussion: MGUS I need help understanding my lab report.

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2024

Hi Tracy. I'm Amanda and I was diagnosed last spring at age 56. My MGUS was...

https://connect.mayoclinic.org/comment/793921/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

I am new to this group so please forgive my mistakes. I see a recurring theme...

https://connect.mayoclinic.org/comment/109715/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2019

I am sorry, MM is shorthand for the blood cancer, Multiple Myeloma. I too have neuropathy;...

https://connect.mayoclinic.org/comment/1062333/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

Hello. I had A great discussion with my rheumatologist regarding the MG US, etc. I asked...

https://connect.mayoclinic.org/comment/1115605/

Discussion: Diagnosed with MGUS and CHIP with M spike

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2024

Maria, I was looking at your numbers compared to mine. You see, I was born all...

https://connect.mayoclinic.org/comment/749524/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2022

Hi, I have not posted to this group before, as I have mainly been focusing on...

https://connect.mayoclinic.org/comment/817552/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

My brother-in-law died from multiple myeloma last year. My sister, her husband struggled with symptoms after...

https://connect.mayoclinic.org/comment/797572/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

@mommatracy5 Tracy, please pull up a chair, and a cup of coffee or tea. Ice water...

https://connect.mayoclinic.org/comment/734023/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2022

My hubby started about 5 years ago seeing an oncologist because his VA doctor found he...

https://connect.mayoclinic.org/comment/1527085/

Discussion: Myeloma newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 14 9:52pm

Hi @kbluegrass, you are taking the bull by the horns here. I think we all could...

https://connect.mayoclinic.org/comment/983905/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2023

Welcome to Mayo Connect, @arthur333. It sounds like you’re in a little pickle right now with...

https://connect.mayoclinic.org/comment/882918/

Discussion: Low platelets interfere with cancer treatment

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2023

@bigbob5461 Greetings and welcome to Mayo Connect. I don’t know how recently you got the diagnosis,...

https://connect.mayoclinic.org/comment/1118767/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024

I appreciate you checking in on me. No, the results of the FISH analysis and the...

https://connect.mayoclinic.org/comment/1060688/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 2, 2024

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