Blood Cancers & Disorders Support Group | Page 4

Welcome to @laurenashleyy. My daughter is just a couple years older than you are and I...

https://connect.mayoclinic.org/comment/895467/

Discussion: Overwhelmed- diagnosed with Thrombocytosis & Leukocytosis

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

I had a bone marrow biopsy in April 2021. After my blood platelets remained high, over...

https://connect.mayoclinic.org/comment/1038877/

Discussion: What is doc looking for with a Bone Marrow Biopsy?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2024

Hi @gajokos , Thank you for sharing. I think JAK2 is the most common mutation found...

https://connect.mayoclinic.org/comment/1494798/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 31 9:36am

I have the JAK2 mutation and, like you, my high platelets were discovered by blood work...

https://connect.mayoclinic.org/comment/1076886/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: May 29, 2024

Hello @ettap and welcome to Connect. It is good to see that you have confirmed your...

https://connect.mayoclinic.org/comment/194256/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2018

I have Essential Thrombocytosis- JAK 2 Mutation. My platelets have been way over a Million- 1...

https://connect.mayoclinic.org/comment/987619/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

If you have slowly rising platelet counts but no other blood levels that are off, your...

https://connect.mayoclinic.org/comment/1031584/

Discussion: What is doc looking for with a Bone Marrow Biopsy?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

Hi @remo1110 Blood conditions and blood cancers can be confusing. You’ve been diagnosed with Essential Thrombocytosis...

https://connect.mayoclinic.org/comment/980332/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

I decided to go naturally. I’m not saying that it will work for everyone- seems to...

https://connect.mayoclinic.org/comment/988151/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2023

Yes, when I first saw the hematologist my blood platelet count was over 1 million. My...

https://connect.mayoclinic.org/comment/1122946/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2024

Hi @gajokos, It is nice to meet you. I never knew what blood cancers even were...

https://connect.mayoclinic.org/comment/1486812/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Jan 19 7:03pm

Hi Lori! Thank you so much for reaching out. In November, I had surgery for a...

https://connect.mayoclinic.org/comment/1251087/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

Gabbapentin is usually prescribed to patients who suffer from Neuropathy ( Tingling sensation/ numbness in toes...

https://connect.mayoclinic.org/comment/988568/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2023

What is the best diet to lower platelets? Dark chocolate, foods with low glycemic index, garlic,...

https://connect.mayoclinic.org/comment/988583/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2023

Today I had this procedure. Sept 9th 2024, at Fred Hutch Cancer Center in Washington state....

https://connect.mayoclinic.org/comment/1139368/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2024

Hi @gajokos , No worries. I think I had forgotten to read what you wrote in...

https://connect.mayoclinic.org/comment/1501367/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Feb 9 2:07am

I am new to Connect . Ive registered but never commented before... I was diagnosed with...

https://connect.mayoclinic.org/comment/334495/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2021

In response to earlier posts I was asked to post bone marrow biopsy results, hope this...

https://connect.mayoclinic.org/comment/57951/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2020

I have had Essential Thrombocytosis for almost 6 years now(with 1,250,000 platelet count) Was started on...

https://connect.mayoclinic.org/comment/146320/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2021

Hi Kelli, I have no fatigue, but high platelets and saw general hematologist/oncologist who diagnosed me...

https://connect.mayoclinic.org/comment/1522536/

Discussion: Elevated Platelet Count With Extreme Fatigue

Support Group: Blood Cancers & Disorders

Posted: Mar 8 1:45pm