Blood Cancers & Disorders Support Group | Page 4

Hi, I am just curious how those of you with diagnosis of essential thrombocytosis had diagnosis...

https://connect.mayoclinic.org/comment/1211246/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2025

Hi @irishnanny3 , I wear sunscreen and a wide brimmed hat daily and have been for...

https://connect.mayoclinic.org/comment/1464513/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

The listed hydrea side effects ARE scary. I read about essential Thrombocytosis before my first oncology...

https://connect.mayoclinic.org/comment/1096656/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2024

Hello @ettap and welcome to Connect. It is good to see that you have confirmed your...

https://connect.mayoclinic.org/comment/194256/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2018

I have the JAK2 mutation and, like you, my high platelets were discovered by blood work...

https://connect.mayoclinic.org/comment/1076886/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: May 29, 2024

I had a bone marrow biopsy in April 2021. After my blood platelets remained high, over...

https://connect.mayoclinic.org/comment/1038877/

Discussion: What is doc looking for with a Bone Marrow Biopsy?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2024

Hi @gajokos , Thank you for sharing. I think JAK2 is the most common mutation found...

https://connect.mayoclinic.org/comment/1494798/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 31 9:36am

I have Essential Thrombocytosis- JAK 2 Mutation. My platelets have been way over a Million- 1...

https://connect.mayoclinic.org/comment/987619/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

If you have slowly rising platelet counts but no other blood levels that are off, your...

https://connect.mayoclinic.org/comment/1031584/

Discussion: What is doc looking for with a Bone Marrow Biopsy?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

Yes, when I first saw the hematologist my blood platelet count was over 1 million. My...

https://connect.mayoclinic.org/comment/1122946/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2024

Hi @gajokos, It is nice to meet you. I never knew what blood cancers even were...

https://connect.mayoclinic.org/comment/1486812/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Jan 19 7:03pm

I decided to go naturally. I’m not saying that it will work for everyone- seems to...

https://connect.mayoclinic.org/comment/988151/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2023

Hi Lori! Thank you so much for reaching out. In November, I had surgery for a...

https://connect.mayoclinic.org/comment/1251087/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

Hi again@crsimon5, I totally agree that it is important to see a true MPN specialist and...

https://connect.mayoclinic.org/comment/1598833/

Discussion: Primary Myelofibrosis: How did you come to terms with the diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 15 3:16pm

Thrombocytosis can be essential (caused by a mutation) or secondary (caused by another disease). They are...

https://connect.mayoclinic.org/comment/1055131/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2024

I saw the following comment and it may help you understand this condition further : "...

https://connect.mayoclinic.org/comment/1102762/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

In response to earlier posts I was asked to post bone marrow biopsy results, hope this...

https://connect.mayoclinic.org/comment/57951/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2020

according to the nhlbi.nih.gov website: Thrombocythemia refers to a high platelet count that is not caused...

https://connect.mayoclinic.org/comment/806012/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2023

What is the best diet to lower platelets? Dark chocolate, foods with low glycemic index, garlic,...

https://connect.mayoclinic.org/comment/988583/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2023

Gabbapentin is usually prescribed to patients who suffer from Neuropathy ( Tingling sensation/ numbness in toes...

https://connect.mayoclinic.org/comment/988568/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2023