Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

128 total results

Comments (126)

I am in the US. It's a combination of chemo and immunotherapy. Sometimes it takes a...

https://connect.mayoclinic.org/comment/867567/

Discussion: Anyone else have Low Grade B Cell Nodual Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: May 27, 2023

Bendamustine and Rituxan along with Nuelestra. Combination of immunotherapy and chemotherapy. I have had 6 rounds...

https://connect.mayoclinic.org/comment/881797/

Discussion: Anyone else have Low Grade B Cell Nodual Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

Theresa, Yes, am sure looking forward to spring and summer, seems like it is finally getting...

https://connect.mayoclinic.org/comment/704642/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: May 2, 2022

Hi Stan, I hope your treatments go as well as mine did. I too had a...

https://connect.mayoclinic.org/comment/734487/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2022

I’m glad you are almost done with chemo. How do you feel physically and mentally? Is...

https://connect.mayoclinic.org/comment/867452/

Discussion: Anyone else have Low Grade B Cell Nodual Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: May 27, 2023

My biggest symptom is fatigue and joint and stomach pain. I am tracking my food intake,...

https://connect.mayoclinic.org/comment/660262/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2021

@caroldk I also am JAK2 negative & CD20 negative. Please don't feel alone there are a...

https://connect.mayoclinic.org/comment/218739/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2019

Hi, my diagnosis involved bloodwork, a full body X-ray (originally thought I had Multiple Myeloma because...

https://connect.mayoclinic.org/comment/1241683/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 20 4:14pm

Congrats on the good report Stan! It is always a relief to have those check ups...

https://connect.mayoclinic.org/comment/704316/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: May 1, 2022

Hello, I will definitely report out on what the infusion experience was like. My Hemoglobin and...

https://connect.mayoclinic.org/comment/642872/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2021

Stan, Thank you for sharing. Any idea if recurrence is generally the same B cell profile,...

https://connect.mayoclinic.org/comment/1008066/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024

Update, I will be getting 4 weekly Rituximab infusions starting August 23. The addition of recent...

https://connect.mayoclinic.org/comment/734472/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2022

Hi Laurie, thanks for your concern & I too was in shock for some time about...

https://connect.mayoclinic.org/comment/716613/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2022

How frustrating @andilynn to not be able to get the diagnostic imaging to help get to...

https://connect.mayoclinic.org/comment/127550/

Discussion: lymphoma remission. Lower back pain

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2016

Hi Elaine, USNews ratings of cancer centers (https://health.usnews.com/best-hospitals/rankings/cancer). I didn't look for other lists. I recently...

https://connect.mayoclinic.org/comment/1012803/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2024

Laurie, I am new to this communication platform for those of us diagnosed with NHL, SMZL,...

https://connect.mayoclinic.org/comment/716622/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2022

Hi @lila1, I found several replies from other members who have experience with Vit C infusions...

https://connect.mayoclinic.org/comment/1127233/

Discussion: Does anyone have splenic marginal zone lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2024

Hi Colleen, Thank you for your message. I have met two other women through another website...

https://connect.mayoclinic.org/comment/109515/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2016

Hi all. I was diagnosed with SMZL last July (2023). I have had a course of...

https://connect.mayoclinic.org/comment/1017343/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2024

Hi SMZL friends, Just had my 5th Rituximab infusion and it went smoothly! Yippee! I had...

https://connect.mayoclinic.org/comment/1254357/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Mar 9 9:38pm