Blood Cancers & Disorders Support Group

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Comments (115)

@steiner Jakafi is the drug I take for CMML and myelofibrosis. The cancers were separate. Each...

https://connect.mayoclinic.org/comment/1432393/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2025

Welcome @joesim. I think you know what I'm going to say. I recommend contacting Mayo Clinic....

https://connect.mayoclinic.org/comment/683175/

Discussion: Looking for recommendations of doctors with expertise in CMML

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2022

Thank you Lori. I will do my blood work next week to see if the white...

https://connect.mayoclinic.org/comment/1330041/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2025

@loribmt thank you for the information , much appreciated . I am 65 yo and I...

https://connect.mayoclinic.org/comment/1610502/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 1 11:55am

Are you seeing a hematologist? You should be seeing a specialist to get the best information....

https://connect.mayoclinic.org/comment/1362239/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2025

I was on hydroxides for several years but it reached a point where it wasn’t working...

https://connect.mayoclinic.org/comment/1366935/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2025

@hlmcneely I have CMML and MF and take Jakafi. I have had laser cataract surgery on...

https://connect.mayoclinic.org/comment/1426707/

Discussion: Anyone had cataract surgery living with MDS?

Support Group: Blood Cancers & Disorders

Posted: Oct 30, 2025

Hi Jacklyn, You’ll be having lots of ‘regular’ blood work in the near future…just another delightful...

https://connect.mayoclinic.org/comment/1099095/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

@loribmt, dhbskier I was having no symptoms to my knowledge and had no idea about the...

https://connect.mayoclinic.org/comment/1593651/

Discussion: Diagnosed with a myeloid neoplasm (chronic myelomonocytic leukemia)

Support Group: Blood Cancers & Disorders

Posted: Jun 8 1:38pm

Hi Ismat, There are so many abbreviations for diseases, it’s a challenge to keep them all...

https://connect.mayoclinic.org/comment/1367584/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

Hello @cblowers1. I'd like to start by inviting @javajude, who recently talked about their son going...

https://connect.mayoclinic.org/comment/297627/

Discussion: Adult Langerhans cell Histiocytosis and CMML

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2020

I have CMML. I was diagnosed 5 years ago. I did four years of IV chemo...

https://connect.mayoclinic.org/comment/101835/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 22, 2016

I had the itching tesllly bad and took loratadine which eventually kicked in. I was on...

https://connect.mayoclinic.org/comment/1430231/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025

I am a member who has CMML. I recently found out a close friend in the...

https://connect.mayoclinic.org/comment/39003/

Discussion: Leukemia CMML-2

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2017

Hi Colleen -- My diagnosis is CMML - chronic myeloid monocytic leukemia. It is different from...

https://connect.mayoclinic.org/comment/101846/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2016

My husband was diagnosed 2 years ago with CMML leukemia, rather rare, and in his case,...

https://connect.mayoclinic.org/comment/919437/

Discussion: Had CLL since 1996 & Now NETs-Anyone Else?

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023

@barbeeh51 CLLM is an odd acronym and I have not seen it used before. Are you...

https://connect.mayoclinic.org/comment/1596954/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 13 7:07am

Good morning, Jacklyn. I think the medication you’re referring to is Azacitidine (Vidaza). There are two...

https://connect.mayoclinic.org/comment/1098464/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

I have skin only Langerhans cell histiocytosis (LCH), a rare blood disease, chronic myelomonocytic leukemia (CMML)...

https://connect.mayoclinic.org/comment/942040/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

Hi @jacklyn, Well shucks, those weren’t the results you were hoping for with the blood work....

https://connect.mayoclinic.org/comment/1336129/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2025

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