Blood Cancers & Disorders Support Group

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Comments (867)

@4kleo I don't recall if I have welcomed you to Mayo Clinic Connect. If not, here...

https://connect.mayoclinic.org/comment/1190958/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

@mascot Welcome to Mayo Clinic Connect. I'm glad you found us, and that you can report...

https://connect.mayoclinic.org/comment/761060/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2022

I am 70 and my MGUS started 8 years ago. There is a lot of research...

https://connect.mayoclinic.org/comment/1156236/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2024

The stem cell transplant doctor and team wanted me to have the transplant two years ago,...

https://connect.mayoclinic.org/comment/1095261/

Discussion: Should all multiple myeloma patients look into stem cell transplant?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2024

Good morning @fayeraye . I was diagnosed with IgA Kappa MGUS on 15 February 2023 -...

https://connect.mayoclinic.org/comment/931766/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2023

@kayeanna Greetings, welcome to Mayo Clinic Connect. Good gravy, 10 broken bones since Christmas? I certainly...

https://connect.mayoclinic.org/comment/1163717/

Discussion: Mgus and broken bones?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2024

Welcome to Connect @tellis383. I’m happy you found us too! It helps to find that you’re...

https://connect.mayoclinic.org/comment/902431/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2023

@4kleo I’m sorry you’re having some symptoms which may be attributable to the MGUS. It’s really...

https://connect.mayoclinic.org/comment/1416069/

Discussion: Have MGUS and just caught Covid: Did Covid affect your numbers?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2025

@bens Welcome to Mayo Clinic Connect. You're so right, this can all be overwhelming as you...

https://connect.mayoclinic.org/comment/697825/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2022

@ellie1955 Many of our members have heard my anxiety story so y’all can tune out. 😊...

https://connect.mayoclinic.org/comment/1146952/

Discussion: Free light chain ratio in MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

Hi! My dad unfortunately was just diagnosed with Plasma Cell Leukemia. I've come to find that...

https://connect.mayoclinic.org/comment/1288281/

Discussion: Anyone with Plasma Cell Leukemia or family?

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2025

@freespirit60 Hi, and welcome. As Colleen says, there are so many resources for us here on...

https://connect.mayoclinic.org/comment/1353288/

Discussion: Long term MGUS: What changes have you had? Do's and Don'ts?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2025

Greetings, it’s so frustrating to feel as though your medical needs aren’t being met. I had...

https://connect.mayoclinic.org/comment/859107/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023

@amyboylan1 An interesting question! From where I sit, currently under treatment for multiple myeloma, and on...

https://connect.mayoclinic.org/comment/1180806/

Discussion: Can being over normal BMI weight cause MGUS to progress faster?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

I was diagnosed with Stage 3 Multiple Myeloma in December 2017. Mine is one of the...

https://connect.mayoclinic.org/comment/109707/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: May 11, 2019

I have smoldering multiple myeloma, 6 autoimmune diseases, diabetes and many more. I have to take...

https://connect.mayoclinic.org/comment/780057/

Discussion: Medicare question: Traditional or Advantage approach better for MPNers

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2022

The answer to your question is no. I saw something wrong with my standard bloodwork in...

https://connect.mayoclinic.org/comment/732629/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2022

@vera101 Welcome to the forum. I am so sorry about your vision problems. One of the...

https://connect.mayoclinic.org/comment/1000528/

Discussion: Multiple myeloma: When to treat? When not to treat?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2024

Good morning, @papad I’m joining my fellow mentor, @gingerw in welcoming you to Mayo Connect and...

https://connect.mayoclinic.org/comment/797477/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

I’m between a rock and a hard place as far as being diagnosed with WM. The...

https://connect.mayoclinic.org/comment/750837/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022