Blood Cancers & Disorders Support Group

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Comments (905)

Hi again. Since you are getting a lot of suggestions from others I thought I would...

https://connect.mayoclinic.org/comment/966106/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

Hello! I’m glad you are going to search around for a more attentive physician. The medical...

https://connect.mayoclinic.org/comment/903456/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2023

Hello everyone, I just wanted to check back in and let everyone know that I had...

https://connect.mayoclinic.org/comment/1428544/

Discussion: Diagnosed with MGUS and CHIP with M spike

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2025

@amyboylan1 First of all hugs. You’re not alone. It is unnerving to receive a diagnosis like...

https://connect.mayoclinic.org/comment/1229261/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2025

@dondi2101 Hi Dianna! All good questions. The chance of progression to MM or SMM is low,...

https://connect.mayoclinic.org/comment/1176717/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

I was diagnosed with MGUS in 2021. My symptoms were severe right rib pains on my...

https://connect.mayoclinic.org/comment/1351898/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2025

@sandramgus Hello! Welcome to Mayo connect. We have quite a few members diagnosed with MGUS, myself...

https://connect.mayoclinic.org/comment/1114029/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2024

@dianevw Whooosh…I am trying to wrap my head around your post this morning. Goodness, you and...

https://connect.mayoclinic.org/comment/1527512/

Discussion: Myeloma newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 15 12:30pm

@sportedgee You’ve certainly had a lot to deal with medically over a short period of time....

https://connect.mayoclinic.org/comment/1056940/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2024

@allstaedt57 that must be disheartening to feel as though your husband was misdiagnosed. It makes so...

https://connect.mayoclinic.org/comment/1020475/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2024

Hi, I'm new here. I was just diagnosed with light chain MGUS 3 weeks ago. I'll...

https://connect.mayoclinic.org/comment/1122478/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2024

If my smoldering MM turns into active MM, I will be checking to see if I...

https://connect.mayoclinic.org/comment/1095164/

Discussion: Should all multiple myeloma patients look into stem cell transplant?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2024

I know, so many medications we take can come with significant risks of side effects. But...

https://connect.mayoclinic.org/comment/839901/

Discussion: Zometa Experiences

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2023

I new to this connect web site. I have multiple myeloma, osteoporosis and 4 fractures in...

https://connect.mayoclinic.org/comment/776903/

Discussion: Myeloma: Revlimid and steroids: How quickly do side effects subside?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2022

@justsherry Welcome to our Blood Cancer and Disorder support group. I'm so glad you found us....

https://connect.mayoclinic.org/comment/1267663/

Discussion: MGUS Diagnosis Criteria

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2025

@treehouse5437 I have been on Revlimid + dexamethasone pretty consistently since Aug 2021. I am also...

https://connect.mayoclinic.org/comment/1251032/

Discussion: Myeloma: how long after treatment were you able to go back to work?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

Hi @eulo, I’m pretty familiar with stem cell transplantation from personal experience. I received an allogenic...

https://connect.mayoclinic.org/comment/797942/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2023

I am currently being worked up for multiple myeloma. Makes a lot of sense given my...

https://connect.mayoclinic.org/comment/109689/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2017

Hello @jstpeachey the honest truth is we were terrified when my husband had his first at...

https://connect.mayoclinic.org/comment/889492/

Discussion: One-week pre Autogolous BMT: I'm afraid I'm not prepared

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 3, 2023

Hi @lipstickonmycollar. Love the @name! But not liking that you’re feeling so ill on a daily...

https://connect.mayoclinic.org/comment/810074/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2023