Blood Cancers & Disorders Support Group

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Comments (941)

Welcome Suzye. I was diagnosed with MGUS in 2002, and a couple years later, Multiple Myeloma....

https://connect.mayoclinic.org/comment/264596/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2019

@maddogstormy @scbookgirl75 I’m so glad for this discussion. It’s one of those “who needs to think...

https://connect.mayoclinic.org/comment/1332002/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2025

@bigbob5461 I know. Especially for those of us who typically take the bull by the horn,...

https://connect.mayoclinic.org/comment/1119287/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2024

Welcome to this message board. I suspect you did like everybody else and consulted with Dr...

https://connect.mayoclinic.org/comment/828116/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2023

### **Risk Stratification in MGUS: Low, Intermediate, and High Risk** MGUS (Monoclonal Gammopathy of Undetermined Significance)...

https://connect.mayoclinic.org/comment/1179995/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

Hi @martetom You’ve asked some very good questions about a bone marrow transplant. Is it painful,...

https://connect.mayoclinic.org/comment/798131/

Discussion: Will soon have a Bone Marrow Transplant: What can I expect?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 17, 2023

@karishmagupta Hello and welcome to Mayo clinics connect forum. I remember when I was diagnosed with...

https://connect.mayoclinic.org/comment/1191006/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

Hum, one thing jumped out at me, Monoclonal Protein. I’m diagnosed with MGUS, a blood disorder...

https://connect.mayoclinic.org/comment/744954/

Discussion: Hemochromatosis & AAT

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2022

I agree that you should find out as much as you can about MGUS. This will...

https://connect.mayoclinic.org/comment/700530/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2022

Although I am now a multiple myeloma patient, and on treatment for that since 2021, reading...

https://connect.mayoclinic.org/comment/1492618/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 28 11:52am

@slembo1 I am not a medical doctor. I can't/won't diagnose any condition. I will tell you...

https://connect.mayoclinic.org/comment/1304754/

Discussion: Older than most in the MM group. 79 yrs and recently diagnosed.

Support Group: Blood Cancers & Disorders

Posted: May 15, 2025

@raye There is an active discussion in the Transplants group, about Evusheld, that you will no...

https://connect.mayoclinic.org/comment/782513/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

@marco88 Lee, my kidney disease is separate from the Revlimid issue. I was tested and found...

https://connect.mayoclinic.org/comment/1199568/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

@omemee That darned patient portal. I am always snagging a glance at it way before my...

https://connect.mayoclinic.org/comment/1056969/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2024

Hi! I’m new to the site! I was diagnosed with MULTIPLE MYELOMA in 2018. I was...

https://connect.mayoclinic.org/comment/1479001/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 10 2:05pm

Welcome to Connect @jstpeachey! I know I shouldn’t but I just have to use your @name...

https://connect.mayoclinic.org/comment/889456/

Discussion: One-week pre Autogolous BMT: I'm afraid I'm not prepared

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 3, 2023

I was diagnosed with MGUS approximately 20 years ago and was being regularly monitored every 3...

https://connect.mayoclinic.org/comment/1232582/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2025

@bocky “Getting old is no fun.” Indeed! I feel that! One of the things that has...

https://connect.mayoclinic.org/comment/1155901/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2024

Hello Marie, @honeybeemarie It is confusing. At least it was for me. I’m so glad you...

https://connect.mayoclinic.org/comment/977233/

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2023

@amber199 Amber I'm really sorry that you had that experience with your hem/onc doc. Some of...

https://connect.mayoclinic.org/comment/1253233/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2025

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