Blood Cancers & Disorders Support Group

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Comments (905)

@hpatel334 Amazing! I'm not an expert, but a patient but I believe that my hem/onc doc...

https://connect.mayoclinic.org/comment/1104186/

Discussion: MGUS FLC Ratio decreasing: Concerned

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2024

I have just been told I have lambda IGG MGUS and small fiber neuropathy determined from...

https://connect.mayoclinic.org/comment/74583/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2018

Welcome Sheryl, I think it’s safe to say that MGUS is usually diagnosed accidentally. As time...

https://connect.mayoclinic.org/comment/805208/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2023

@marypluzes Welcome to Mayo Clinic Connect! It's nice to hear you are checking in for concerns...

https://connect.mayoclinic.org/comment/753844/

Discussion: Myeloma: Revlimid and steroids: How quickly do side effects subside?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2022

A friend was diagnosed with Leukemia who did stem cell transplant from her own body. She...

https://connect.mayoclinic.org/comment/1392561/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2025

@grrranny I guess it depends on your husband‘s numbers and the hematologist’s reckoning of how big...

https://connect.mayoclinic.org/comment/1132082/

Discussion: MGUS Bloodwork Frequency

Support Group: Blood Cancers & Disorders

Posted: Aug 28, 2024

@wesleym, sally4910 There are so many variables when determining the significance of our lab results that...

https://connect.mayoclinic.org/comment/1401817/

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2025

@rosoto Welcome to Mayo Clinic Connect. Often, we experience varying levels of fatigue that seem to...

https://connect.mayoclinic.org/comment/1288236/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2025

Wow, so much to go through. I was primary care giver for my parents. Dad had...

https://connect.mayoclinic.org/comment/1534369/

Discussion: Anyone with Plasma Cell Leukemia or family?

Support Group: Blood Cancers & Disorders

Posted: Mar 24 11:52am

Greetings, nothing I have read on MGUS connects dots between the COVID vaccines and MGUS. I’ll...

https://connect.mayoclinic.org/comment/824352/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2023

It’s perfectly understandable to get a little freaked out when someone you love is going through...

https://connect.mayoclinic.org/comment/970920/

Discussion: Bone Marrow Transplant: Need help with place to stay in Rochester, Mn

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 26, 2023

There are a lot of groups on the Internet where members share their experience with MGUS...

https://connect.mayoclinic.org/comment/950769/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2023

I met with a Cancer PA. I asked questions but there are always more that pop...

https://connect.mayoclinic.org/comment/1155891/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2024

In 2020 I started having different health problems - shortness of breath, swelling in legs. Primary...

https://connect.mayoclinic.org/comment/1466775/

Discussion: Looking for guidance...possible amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2025

@lisal64 You just had your 1st transplant birthday this month! That’s awesome! A hearty congratulations and...

https://connect.mayoclinic.org/comment/611736/

Discussion: Low Iron Levels and Weakness

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2021

@tatajess Greetings from Arkansas. I am glad to hear that your MRI results were “unremarkable” as...

https://connect.mayoclinic.org/comment/970078/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2023

Hi @hopefuldaughter! Welcome to Mayo Clinic Connect! I’m happy you’ve found this forum too! We have...

https://connect.mayoclinic.org/comment/731489/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 27, 2022

Hi @sofaramnotdead, CAR-T cell therapy is one of the most promising areas of cancer treatment, especially...

https://connect.mayoclinic.org/comment/622500/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2021

Hello and thank you for your patience as I am new to this site unsure of...

https://connect.mayoclinic.org/comment/1170119/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2024

Angie, I'm 66, diagnosed with IgA Kappa MGUS 2/15/23, husband died of Multiple Myeloma 7/24/22. Mine...

https://connect.mayoclinic.org/comment/1053450/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024