Blood Cancers & Disorders Support Group

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Comments (867)

Hi @eulo, I’m pretty familiar with stem cell transplantation from personal experience. I received an allogenic...

https://connect.mayoclinic.org/comment/797942/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2023

I am currently being worked up for multiple myeloma. Makes a lot of sense given my...

https://connect.mayoclinic.org/comment/109689/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2017

Hi @lipstickonmycollar. Love the @name! But not liking that you’re feeling so ill on a daily...

https://connect.mayoclinic.org/comment/810074/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2023

Hi Becky, your oncologist would be in the better position to diagnose your possible blood cancer....

https://connect.mayoclinic.org/comment/738126/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2022

Hello @jstpeachey the honest truth is we were terrified when my husband had his first at...

https://connect.mayoclinic.org/comment/889492/

Discussion: One-week pre Autogolous BMT: I'm afraid I'm not prepared

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 3, 2023

I new to this connect web site. I have multiple myeloma, osteoporosis and 4 fractures in...

https://connect.mayoclinic.org/comment/776903/

Discussion: Myeloma: Revlimid and steroids: How quickly do side effects subside?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2022

Hi @mandm4evers, I wasn’t sure if you’re responding to @gingerw or my reply regarding repetitive bone...

https://connect.mayoclinic.org/comment/722934/

Discussion: High protein in urine, unsure of the results

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2022

I know, so many medications we take can come with significant risks of side effects. But...

https://connect.mayoclinic.org/comment/839901/

Discussion: Zometa Experiences

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2023

@treehouse5437 I have been on Revlimid + dexamethasone pretty consistently since Aug 2021. I am also...

https://connect.mayoclinic.org/comment/1251032/

Discussion: Myeloma: how long after treatment were you able to go back to work?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

@justsherry Welcome to our Blood Cancer and Disorder support group. I'm so glad you found us....

https://connect.mayoclinic.org/comment/1267663/

Discussion: MGUS Diagnosis Criteria

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2025

@paulita On the bone marrow biopsy, I have a slightly different perspective. This is a conversation...

https://connect.mayoclinic.org/comment/1294960/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 2, 2025

I'm going to have digest all this info here and come up with a plan. I...

https://connect.mayoclinic.org/comment/1179988/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

@deljr Welcome to Mayo Clinic Connect! I'm glad you found us; by the way, how did...

https://connect.mayoclinic.org/comment/661787/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2021

Aw, Lisa, what a sweet kitty and I know you’ll want to find lodging where you...

https://connect.mayoclinic.org/comment/968830/

Discussion: Bone Marrow Transplant: Need help with place to stay in Rochester, Mn

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 21, 2023

I just did a bone marrow biopsy and mine came back at 22%. My M-Spike was...

https://connect.mayoclinic.org/comment/1034443/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2024

@robinrossrn and @kakc19 I’m so glad that you suggested seeking the support of the medical social...

https://connect.mayoclinic.org/comment/870478/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Welcome to the MGUS club. It does seem a bit maddening to rely on the wait...

https://connect.mayoclinic.org/comment/793954/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

I've read and have been told that only about 1% of people diagnosed with MGUS will...

https://connect.mayoclinic.org/comment/1298028/

Discussion: M-spike dropped from .13 to .08.

Support Group: Blood Cancers & Disorders

Posted: May 6, 2025

@tml Welcome to Mayo Clinic Connect. @colleenyoung had tagged me into this conversation, but my apologies...

https://connect.mayoclinic.org/comment/684950/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2022

@dstone501957 You ask a good question. How high is too high and when might you and...

https://connect.mayoclinic.org/comment/1113780/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2024