Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

958 total results

Comments (867)

I get it. I know (or think I know) what’s going on with me and my...

https://connect.mayoclinic.org/comment/921085/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2023

Welcome Suzye. I was diagnosed with MGUS in 2002, and a couple years later, Multiple Myeloma....

https://connect.mayoclinic.org/comment/264596/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2019

@bigbob5461 I know. Especially for those of us who typically take the bull by the horn,...

https://connect.mayoclinic.org/comment/1119287/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2024

@maddogstormy @scbookgirl75 I’m so glad for this discussion. It’s one of those “who needs to think...

https://connect.mayoclinic.org/comment/1332002/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2025

@nolarn Thank you for the compliment. I'm all for research that will help point the way...

https://connect.mayoclinic.org/comment/777382/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2022

@becky1024 I have been on low dose chemo since last August. The low dose is because...

https://connect.mayoclinic.org/comment/731696/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2022

@mikxtr Oh okay. I went another direction. Here’s the way I look at it. MGUS is...

https://connect.mayoclinic.org/comment/1076369/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

@meg1685 I struggle with protein levels also. In addition to the multiple myeloma, I am an...

https://connect.mayoclinic.org/comment/1194190/

Discussion: Diet questions - low protein and dexamathasone complications

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2024

Welcome to this message board. I suspect you did like everybody else and consulted with Dr...

https://connect.mayoclinic.org/comment/828116/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2023

Hi @martetom You’ve asked some very good questions about a bone marrow transplant. Is it painful,...

https://connect.mayoclinic.org/comment/798131/

Discussion: Will soon have a Bone Marrow Transplant: What can I expect?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 17, 2023

### **Risk Stratification in MGUS: Low, Intermediate, and High Risk** MGUS (Monoclonal Gammopathy of Undetermined Significance)...

https://connect.mayoclinic.org/comment/1179995/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

@karishmagupta Hello and welcome to Mayo clinics connect forum. I remember when I was diagnosed with...

https://connect.mayoclinic.org/comment/1191006/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

I agree that you should find out as much as you can about MGUS. This will...

https://connect.mayoclinic.org/comment/700530/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2022

@tayleebuzz As Lori said, this can be very confusing. I live in rural Oregon, and the...

https://connect.mayoclinic.org/comment/594415/

Discussion: AL Amyloidosis: Where were you treated?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2021

Hum, one thing jumped out at me, Monoclonal Protein. I’m diagnosed with MGUS, a blood disorder...

https://connect.mayoclinic.org/comment/744954/

Discussion: Hemochromatosis & AAT

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2022

@slembo1 I am not a medical doctor. I can't/won't diagnose any condition. I will tell you...

https://connect.mayoclinic.org/comment/1304754/

Discussion: Older than most in the MM group. 79 yrs and recently diagnosed.

Support Group: Blood Cancers & Disorders

Posted: May 15, 2025

@marco88 Lee, my kidney disease is separate from the Revlimid issue. I was tested and found...

https://connect.mayoclinic.org/comment/1199568/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

@omemee That darned patient portal. I am always snagging a glance at it way before my...

https://connect.mayoclinic.org/comment/1056969/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2024

Welcome to Connect @jstpeachey! I know I shouldn’t but I just have to use your @name...

https://connect.mayoclinic.org/comment/889456/

Discussion: One-week pre Autogolous BMT: I'm afraid I'm not prepared

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 3, 2023

@raye There is an active discussion in the Transplants group, about Evusheld, that you will no...

https://connect.mayoclinic.org/comment/782513/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022