Blood Cancers & Disorders Support Group

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Comments (905)

I’m so sorry that happened but it got you an early diagnosis-somewhat similarly, I fractured 2...

https://connect.mayoclinic.org/comment/898146/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

I’m so terribly sorry to hear that your wife passed away. Blood cancers can be so...

https://connect.mayoclinic.org/comment/839483/

Discussion: MGUS to myeloma: How can it be detected sooner?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2023

@psue4 Oh, diet and kidney function! A topic those of us who deal with chronic kidney...

https://connect.mayoclinic.org/comment/826995/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2023

@1oldsoul I had a first dose of Evusheld in February. In two weeks I will get...

https://connect.mayoclinic.org/comment/739021/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2022

Hi, Patrick. My name is Millicent and I live in STL. I've been on Revlimid since...

https://connect.mayoclinic.org/comment/1236270/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2025

I was introduced to multiple myeloma (MM) when my 53 year old daughter was diagnosed with...

https://connect.mayoclinic.org/comment/1441288/

Discussion: Smoldering Multiple Myeloma and symptoms

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2025

@amberl99 welcome to Mayo Clinic Connect's blood cancer and disorders discussion. Oh that Dr Google is...

https://connect.mayoclinic.org/comment/1252385/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2025

@pmm I definitely agree with you. And if you all would allow me to relate my...

https://connect.mayoclinic.org/comment/963665/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Problem with amyloidosis is it is hard to diagnosis because so many other diseases have same...

https://connect.mayoclinic.org/comment/1470411/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2025

@laurinea greetings! I’m glad you found us. I don’t know why medical professionals don’t sit patients...

https://connect.mayoclinic.org/comment/944643/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2023

Hello Donna. I very much agree with the suggestion that you seek the counsel of a...

https://connect.mayoclinic.org/comment/923866/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

Brandy @bvz4483, welcome to the Forum. As Ginger suggested, we are all best served by finding...

https://connect.mayoclinic.org/comment/973772/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Hi there sorry about bone pain Posted by tristram @tristram, Bone pain is frustrating and hard...

https://connect.mayoclinic.org/comment/802800/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

I think it’s important to note that a very small percentage of patients with MGUS progress...

https://connect.mayoclinic.org/comment/732361/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2022

My last sed rate in May was 23 but my MGUS (blood disorder) is progressing into...

https://connect.mayoclinic.org/comment/748762/

Discussion: Should I be concerned about Blood Cancer or other disease?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2022

I have multiple myeloma and have had it for about a year. When my doctor caught...

https://connect.mayoclinic.org/comment/1302783/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 12, 2025

@mikxtr Oh okay. I went another direction. Here’s the way I look at it. MGUS is...

https://connect.mayoclinic.org/comment/1076369/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

@nolarn Thank you for the compliment. I'm all for research that will help point the way...

https://connect.mayoclinic.org/comment/777382/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2022

@becky1024 I have been on low dose chemo since last August. The low dose is because...

https://connect.mayoclinic.org/comment/731696/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2022

@meg1685 I struggle with protein levels also. In addition to the multiple myeloma, I am an...

https://connect.mayoclinic.org/comment/1194190/

Discussion: Diet questions - low protein and dexamathasone complications

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2024