Blood Cancers & Disorders Support Group

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Comments (941)

Hi Lori, I’m so thankful to have found your post and uplifting words. My father was...

https://connect.mayoclinic.org/comment/731483/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 27, 2022

Thank you so much for your reply. I had elevated kappa light chains, and was diagnosed...

https://connect.mayoclinic.org/comment/720463/

Discussion: Multiple myeloma lytic lesions pelvic area. What treatments?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2022

I am on Original Medicare and have an excellent Medigap policy. At least for Myelofibrosis, a...

https://connect.mayoclinic.org/comment/1328486/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

Greetings to everyone. I have an update for my story and my smoldering multiple myeloma diagnosis...

https://connect.mayoclinic.org/comment/1475583/

Discussion: Smoldering Multiple Myeloma and symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 6 7:16am

@dianegrant Welcome to Mayo Clinic Connect. I'm glad to see you reach out to our great...

https://connect.mayoclinic.org/comment/842885/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

Greetings. So sorry you are having trouble finding a clinical home. I don’t know Scottsdale but...

https://connect.mayoclinic.org/comment/821204/

Discussion: Monoclonal Gammopathy & Granulatomus Disease + new ANA+ in AZ

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

@jlh1 Greetings, and welcome to Connect. How frustrating when you get so many opinions about blood...

https://connect.mayoclinic.org/comment/1027869/

Discussion: Waldenstrom's, CLL or MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2024

Hi @jhdez79 Thank you for sharing more information about the type of stem cell transplant you’ll...

https://connect.mayoclinic.org/comment/1608840/

Discussion: Any advice or recommendations from patients or caregivers

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

@evoxmas I just found out about this forum yesterday, so I am sure a lot has...

https://connect.mayoclinic.org/comment/1041695/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

@1oldsoul Yes! You and I are on the same wave length as far as your reasoning...

https://connect.mayoclinic.org/comment/968213/

Discussion: Best Medicare Insurance for MGUS and Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2023

Hi Lori, Thank for your answer. Three years ago the Hematologist diagnosed muy wife whith MGUS,...

https://connect.mayoclinic.org/comment/798001/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2023

I’m interested in this topic I know little about. I do have smoldering multiple myeloma and...

https://connect.mayoclinic.org/comment/1468048/

Discussion: Anyone have idiopathic pancytopenia?

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2025

Just had my labs this morning. My platelet count was 421. Doc says not to worry...

https://connect.mayoclinic.org/comment/1276461/

Discussion: My platelet count has increased after a year on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025

I am a 66 year old male and newly introduced to the MGUS journey. Started with...

https://connect.mayoclinic.org/comment/1206554/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2025

@brushanson Hi Bruce! The information you received from your doctor is spot-on. With any blood cancer...

https://connect.mayoclinic.org/comment/1473020/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Jan 2 3:23pm

I was also diagnosed with MGUS approximately one year ago. This was found by routine lab...

https://connect.mayoclinic.org/comment/1207240/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2025

@dev1970 First let me welcome you to our Blood Cancers and Disorders Community. We have ebb...

https://connect.mayoclinic.org/comment/1392132/

Discussion: MGUS and pain

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2025

@milkweed I am a multiple myeloma patient. I am on Bactrim 3x a week, plus baby...

https://connect.mayoclinic.org/comment/974108/

Discussion: Complications MOHS surgery while having ET and Von Willebrand's?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

@tristram Let me echo the welcome to Mayo Clinic Connect that @johnbishop extended! As you do...

https://connect.mayoclinic.org/comment/784794/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2022

Hi @flightdeckjohnn, first I have to ask about your name, FlightDeckJohnn! Did you serve on a...

https://connect.mayoclinic.org/comment/663124/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

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