Blood Cancers & Disorders Support Group | Page 3

Yes. I have Myelofibrosis “and” Erdheim Chester Disease, and the first sign - although no doctor...

https://connect.mayoclinic.org/comment/1511367/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 2:55pm

Ocular migraines, itching after shower or bath and night sweats.

https://connect.mayoclinic.org/comment/872208/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

@heimbca Yes, that’s Jakafi. Not for everyone. Wasn’t for me. Felt like it was killing me....

https://connect.mayoclinic.org/comment/1503650/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 12 4:33am

Thank you for sharing the scripts that helped lessen your itching.

https://connect.mayoclinic.org/comment/1432240/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2025

I've just been diagnosed with MDS. Is skin itching part of MDS?

https://connect.mayoclinic.org/comment/1527273/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Mar 15 8:48am

@carolgk I feel for you. Itching is maybe worse than pain.

https://connect.mayoclinic.org/comment/1512015/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 22 11:40am

Good Morning. Are you sure there is no correlation between itching, hives and essential thrombocytosis? I...

https://connect.mayoclinic.org/comment/817435/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

@emaddox how are you doing? Has your hematologist suggested anything for the itching?

https://connect.mayoclinic.org/comment/906440/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2023

@carolgk Xanax!!! Xanax stopped mine in its tracks, and the itching was horrible.

https://connect.mayoclinic.org/comment/1511369/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 2:59pm

Welcome Christine, I moved your "just diagnosed" message to this existing discussion of the same name:...

https://connect.mayoclinic.org/comment/749672/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2022

Hi. Same here. Itching is gone, but the fatigue is here. Hemoglobin level is +/- 11,...

https://connect.mayoclinic.org/comment/875420/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

@mrb2491 Oh gosh, that itching is so horrible and truly, I’m sorry you’re not finding much...

https://connect.mayoclinic.org/comment/1524134/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 4:06pm

Jakafi stopped the itching for me as well as many other PV side effects.

https://connect.mayoclinic.org/comment/943008/

Discussion: PV: terrible itching after shower or bath

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

I've had 32 28 day sessions with lenalidomide and Darzalex Fast Pro without any rashes. BUT,...

https://connect.mayoclinic.org/comment/1564786/

Discussion: Anyone get an abdominal rash with lenalidomide?

Support Group: Blood Cancers & Disorders

Posted: May 2 10:36am

What are you doing for the itching? I have the same t-cell lymphoma and MGUS.

https://connect.mayoclinic.org/comment/886704/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

sandy1959 @sandy1959, Itch (also known as pruritus) Yes! Itching is 100% sign of cancer look under...

https://connect.mayoclinic.org/comment/817590/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

My mum had stage IV CTCL and by far for her the itching was the worst....

https://connect.mayoclinic.org/comment/1361930/

Discussion: Cutaneous T-cell lymphoma consistent with mycosis fungoides

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2025

Started with horrible itching after bathing. Elevated hematocrit (57) led to biopsy to confirm. Now, 2...

https://connect.mayoclinic.org/comment/875363/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

Yes I have itching again too. Worse before PV diagnosed, then it subsided and disappeared (meds?...

https://connect.mayoclinic.org/comment/817347/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

Hi @mrb2491 While you’re waiting for a reply from @cindylb I just wanted to welcome you...

https://connect.mayoclinic.org/comment/1523965/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 12:05pm