Blood Cancers & Disorders Support Group

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Comments (106)

Welcome @jak2mpnpositive, allow me to tag other members like @claire39 @bluegrasspv2018 @jam5 @dwlowrance @levieta @lzimmerman @mpt77...

https://connect.mayoclinic.org/comment/686214/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2022

Hydrea (or generic hydroxyurea, sometimes people here abbreviate it to HU) is an oral chemo pill...

https://connect.mayoclinic.org/comment/1051644/

Discussion: Started Hydroxyurea: How long to see decrease in counts?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2024

I have started teriparatide for osteoporosis treatment, I also have had essential thrombocytosis (ET) a, myeloproliferative...

https://connect.mayoclinic.org/comment/859231/

Discussion: Teriparatide and ET are there associated risks with this treatment?

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023

Hello, cubby13! May I ask, what is your diagnosis? I myself take Hydroxyurea (HU) for essential...

https://connect.mayoclinic.org/comment/1289377/

Discussion: Started Hydroxyurea 5 weeks . How long does the fatigue last?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2025

I’ve been taking Hydroxyurea for 3 years or more for very high platelets 800 to 990...

https://connect.mayoclinic.org/comment/1234794/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2025

My BMB went extremely well. I was given an IV tranquilizer along with the pain meds...

https://connect.mayoclinic.org/comment/1045378/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2024

I was diagnosed 6/2023, with Essential Thrombocytosis, Jak 2. It took about one year for my...

https://connect.mayoclinic.org/comment/1208528/

Discussion: Does ET or HU affect liver functions?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2025

I've been on HU since mid-November when I was diagnosed with Essential Thrombocytosis. Started off at...

https://connect.mayoclinic.org/comment/1025321/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2024

On 1/26/22, I was diagnosed with Essential Thrombocytosis after my doctor ran a CBC. My count...

https://connect.mayoclinic.org/comment/927364/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2023

Hi @sandy1959, actually itching is one of the most commonly reported symptoms of essential thrombocytosis. Hives...

https://connect.mayoclinic.org/comment/817463/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

I was exposed to Agent Orange in 1968-69, at the height of the Vietnam War. I...

https://connect.mayoclinic.org/comment/1434552/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2025

@raye, I love your grandfather's saying about duck's and crane's legs not changing with worry. I...

https://connect.mayoclinic.org/comment/752280/

Discussion: Philadelphia chromosome: Anxiety awaiting diagnosis

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2022

Lori's suggestion to ask for another CBC sounds wise to me. I am 68, diagnosed with...

https://connect.mayoclinic.org/comment/748608/

Discussion: Should I be concerned about Blood Cancer or other disease?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2022

I have been taking 500 mg. per day of hydroxyurea since August of 2023. Daily leg...

https://connect.mayoclinic.org/comment/1004707/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2024

Hi - I am new to this group and new to being diagnosis with ET (Platelets)...

https://connect.mayoclinic.org/comment/972281/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2023

Hi all. I’m Jacqueline from NZ. This is my first post. I have been struggling with...

https://connect.mayoclinic.org/comment/861388/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: May 17, 2023

Welcome @emcobb76. To help you connect with others who have essential thrombocythemia (ET), I moved your...

https://connect.mayoclinic.org/comment/776741/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2022

Hi @remo1110 Blood conditions and blood cancers can be confusing. You’ve been diagnosed with Essential Thrombocytosis...

https://connect.mayoclinic.org/comment/980332/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

Welcome to @laurenashleyy. My daughter is just a couple years older than you are and I...

https://connect.mayoclinic.org/comment/895467/

Discussion: Overwhelmed- diagnosed with Thrombocytosis & Leukocytosis

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Hmm. A bone marrow biopsy is usually the gold standard for ET diagnosis. I wonder if...

https://connect.mayoclinic.org/comment/1056982/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2024

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