Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

118 total results

Comments (103)

I have started teriparatide for osteoporosis treatment, I also have had essential thrombocytosis (ET) a, myeloproliferative...

https://connect.mayoclinic.org/comment/859231/

Discussion: Teriparatide and ET are there associated risks with this treatment?

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023

Hello, cubby13! May I ask, what is your diagnosis? I myself take Hydroxyurea (HU) for essential...

https://connect.mayoclinic.org/comment/1289377/

Discussion: Started Hydroxyurea 5 weeks . How long does the fatigue last?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2025

My BMB went extremely well. I was given an IV tranquilizer along with the pain meds...

https://connect.mayoclinic.org/comment/1045378/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2024

Here's a link to the About Page for the Got Essential Thrombocytosis? website: http://ethrombo.blogspot.com/2015/10/about-et.html. Like a...

https://connect.mayoclinic.org/comment/882887/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2023

Hi @artymarty, welcome to Connect. It’s not as cool as the old treehouse club when we...

https://connect.mayoclinic.org/comment/909989/

Discussion: Had CLL for about 2 years, Dr is now thinking of treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023

I was diagnosed 6/2023, with Essential Thrombocytosis, Jak 2. It took about one year for my...

https://connect.mayoclinic.org/comment/1208528/

Discussion: Does ET or HU affect liver functions?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2025

I've been on HU since mid-November when I was diagnosed with Essential Thrombocytosis. Started off at...

https://connect.mayoclinic.org/comment/1025321/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2024

On 1/26/22, I was diagnosed with Essential Thrombocytosis after my doctor ran a CBC. My count...

https://connect.mayoclinic.org/comment/927364/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2023

Hi @sandy1959, actually itching is one of the most commonly reported symptoms of essential thrombocytosis. Hives...

https://connect.mayoclinic.org/comment/817463/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

@raye, I love your grandfather's saying about duck's and crane's legs not changing with worry. I...

https://connect.mayoclinic.org/comment/752280/

Discussion: Philadelphia chromosome: Anxiety awaiting diagnosis

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2022

Lori's suggestion to ask for another CBC sounds wise to me. I am 68, diagnosed with...

https://connect.mayoclinic.org/comment/748608/

Discussion: Should I be concerned about Blood Cancer or other disease?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2022

I was exposed to Agent Orange in 1968-69, at the height of the Vietnam War. I...

https://connect.mayoclinic.org/comment/1434552/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2025

I have been taking 500 mg. per day of hydroxyurea since August of 2023. Daily leg...

https://connect.mayoclinic.org/comment/1004707/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2024

Hi all. I’m Jacqueline from NZ. This is my first post. I have been struggling with...

https://connect.mayoclinic.org/comment/861388/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: May 17, 2023

Hmm. A bone marrow biopsy is usually the gold standard for ET diagnosis. I wonder if...

https://connect.mayoclinic.org/comment/1056982/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2024

Hi - I am new to this group and new to being diagnosis with ET (Platelets)...

https://connect.mayoclinic.org/comment/972281/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2023

The listed hydrea side effects ARE scary. I read about essential Thrombocytosis before my first oncology...

https://connect.mayoclinic.org/comment/1096656/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2024

Welcome @emcobb76. To help you connect with others who have essential thrombocythemia (ET), I moved your...

https://connect.mayoclinic.org/comment/776741/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2022

Hi @irishnanny3 , I wear sunscreen and a wide brimmed hat daily and have been for...

https://connect.mayoclinic.org/comment/1464513/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

Hi, I am just curious how those of you with diagnosis of essential thrombocytosis had diagnosis...

https://connect.mayoclinic.org/comment/1211246/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2025

1
2
3
4
5
6