Blood Cancers & Disorders Support Group

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Comments (136)

Hello Renee! I love your question and even though I have not found a great deal...

https://connect.mayoclinic.org/comment/653701/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2021

FYI: I am a SMZL "survivor" tho' my oncologist/hematologist reminds me there is no cure. I...

https://connect.mayoclinic.org/comment/1100036/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2024

Welcome, @ntichenor. I'm tagging @theresad2 @stanleykent @cdwilm27 and @sally2022 to bring them back into the discussion...

https://connect.mayoclinic.org/comment/798440/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

Hello, I’m 45 and have been recently diagnosed with SMZL. Literally getting my 4th Rituxan infusion...

https://connect.mayoclinic.org/comment/865160/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: May 23, 2023

Sally, It is great to hear you are in remission. Always nice to hear the positives!...

https://connect.mayoclinic.org/comment/730111/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2022

Update: yes, I’m relapsing and progressing so it’s out with Rituxan and in with Zanubrutinib in...

https://connect.mayoclinic.org/comment/799826/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

For the past 2.5 years I am seeing a Rochester Mayo hematologist and labs for my...

https://connect.mayoclinic.org/comment/654667/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2021

I had skin cancer and breast before my SMZL dx. My skin cancer was a bit...

https://connect.mayoclinic.org/comment/857468/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: May 10, 2023

I do not have what you have but I went back on HRT because of low...

https://connect.mayoclinic.org/comment/1330690/

Discussion: Leiden Factor V: Can I use hormone replacement therapy for menopause?

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2025

Morning Thanks for forwarding my message to an appropriate group. I mostly interested in learning about...

https://connect.mayoclinic.org/comment/109510/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2016

Regarding covid vaccinations, I received my second covid booster Wednesday and for me was less reaction...

https://connect.mayoclinic.org/comment/701687/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2022

@steiner Hello, Prior to being diagnosed, my only symptom was that I would bruise more easily,...

https://connect.mayoclinic.org/comment/1500155/

Discussion: Does anyone have splenic marginal zone lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 7 10:49am

Hi Sally, I also have SMZL diagnosed in May. Just hoping to connect with others to...

https://connect.mayoclinic.org/comment/1138240/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2024

Hi @paris1943 I read back through your previous replies to see you finished your chemo for...

https://connect.mayoclinic.org/comment/1102382/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

@zeedee1 I am curious if Z was ever considered. That's what I am on. In my...

https://connect.mayoclinic.org/comment/1245590/

Discussion: Waldenstroms: Can severe neck and shoulder pain be due to meds?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2025

Hi @trixie1, that is a good question to ask your oncologist. Not all cancer have a...

https://connect.mayoclinic.org/comment/918934/

Discussion: Any new treatments for SMZL? What do you take for maintenance?

Support Group: Blood Cancers & Disorders

Posted: Aug 25, 2023

It sounds like you must have had quite an exhausting few years... Mayo is rated #3,...

https://connect.mayoclinic.org/comment/1009152/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2024

I just found this site and I also have SMZL. I was diagnosed in2019. I had...

https://connect.mayoclinic.org/comment/794093/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

Hello cdwilm27 I am sure the diagnosis is a surprise and am wishing the best possible...

https://connect.mayoclinic.org/comment/642839/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2021

I was diagnosed with SMZL Sept 2021. I had 8 infusions of Rituximab which ended 12/20/21....

https://connect.mayoclinic.org/comment/722306/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2022

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