Blood Cancers & Disorders Support Group

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Comments (310)

I am a relative newbie. My MGUS was discovered quite accidentally over a year ago. I...

https://connect.mayoclinic.org/comment/793806/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

Thank you, Colleen. I’m glad you found something about my comments worthwhile and hope they can...

https://connect.mayoclinic.org/comment/793358/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2023

Physical exam, full MGUS blood, and urine workup, and only a BMB if things have gotten...

https://connect.mayoclinic.org/comment/770461/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

Colleen, I have pretty much always danced till I drop… Metaphorically speaking. I’ve had a very...

https://connect.mayoclinic.org/comment/658779/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2021

I was diagnosed with MGUS April of 2020, but my IGM continues to rise and I've...

https://connect.mayoclinic.org/comment/599614/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: May 5, 2021

I have had eGFRs vary up and down over my 22 year MGUS odyssey. Dehydration pushes...

https://connect.mayoclinic.org/comment/1162605/

Discussion: MGUS: Should I be concerned that my eGFR dropped from 77 to 57

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

The update on hubby's appointment with the hematologist yesterday: Because of a 1.3 M spike, she...

https://connect.mayoclinic.org/comment/1132611/

Discussion: MGUS Bloodwork Frequency

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2024

Great article @gingerw. I am three years into my MGUS journey and hadn’t read that one....

https://connect.mayoclinic.org/comment/1127213/

Discussion: Does anyone know of bruising as a progressing symptom of mgus to MM?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2024

My 80 mi rides were before I got covid and long covid last year; now mostly...

https://connect.mayoclinic.org/comment/1125897/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2024

Hi Sheryl Some recent research has shown that insulin resistance seems to be the cause of...

https://connect.mayoclinic.org/comment/1046127/

Discussion: Anyone with MGUS, do you have joint pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2024

I was diagnosed with osteoarthritis in my left hip and had total hip replacement surgery in...

https://connect.mayoclinic.org/comment/1037976/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2024

I have myeloma. I have hip pain, but I do not have any bone lesions from...

https://connect.mayoclinic.org/comment/1037072/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2024

You are going through so much. Not knowing is hard. My baseline biopsy helped as well...

https://connect.mayoclinic.org/comment/1010557/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2024

I have had lambda light chain MGUS for 5 years. It has remained stable (fluctuating in...

https://connect.mayoclinic.org/comment/1004633/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2024

Nancy, I can't thank you enough! This helps me quite a bit. I, too, have had...

https://connect.mayoclinic.org/comment/995405/

Discussion: MGUS I need help understanding my lab report.

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2024

@lizzyr1114 hello! I think blood disorders in general are pretty much out of the purvey of...

https://connect.mayoclinic.org/comment/987158/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023

I have both MGUS and so much joint pain I could share it with 10 people....

https://connect.mayoclinic.org/comment/965876/

Discussion: Anyone with MGUS, do you have joint pain?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

My husband apparently had MGUS for about 5 years but we didn’t really know it until...

https://connect.mayoclinic.org/comment/959673/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

I also have MGUS, some would say high risk. From the moment I was diagnosed, back...

https://connect.mayoclinic.org/comment/958984/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

I took Evenity for 8 months rather than the full 12, but believe I got most...

https://connect.mayoclinic.org/comment/954726/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2023