Blood Cancers & Disorders Support Group

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Comments (916)

Deborah, my relationship with both are vicarious with my late husband and good friend…Mayo and MD...

https://connect.mayoclinic.org/comment/815997/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

@kappaking good morning. I’m so sorry you got all this information on vacation! I’m glad you...

https://connect.mayoclinic.org/comment/1030335/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

Hi @angk and welcome to Mayo Clinic Connect! As you wander through the discussions here, you...

https://connect.mayoclinic.org/comment/959088/

Discussion: MGUS and understanding results

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

Hi @coloradored. I’ve read several books regarding bone marrow/stem cell transplants from perspective of patients and...

https://connect.mayoclinic.org/comment/1550467/

Discussion: Anyone go through duv/romi treatment before an allogenic BMT?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Apr 14 1:15pm

Hello and thank you for your response and the link to the Mayo Clinic publication. You...

https://connect.mayoclinic.org/comment/1372063/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2025

@treehouse5437 I imagine you went through MGUS then SMM before the multiple myeloma diagnosis? Of course...

https://connect.mayoclinic.org/comment/1231652/

Discussion: Myeloma newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2025

@norseman44 What kind of side effects are you experiencing, and how much are you taking? I...

https://connect.mayoclinic.org/comment/1004954/

Discussion: Dexamethasone, anyone prescribed this drug for itchiness?

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2024

I am a 31 year stage 3 multiple myeloma survivor, 11 years ago I was diagnosed...

https://connect.mayoclinic.org/comment/816656/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2023

@raye Welcome to Mayo Clinic Connect. I also have IgM Kappa that morphed into active multiple...

https://connect.mayoclinic.org/comment/706812/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2022

@tml I echo what @loribmt and @rosemarya have already said to you. I get labwork every...

https://connect.mayoclinic.org/comment/692673/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 24, 2022

Definitely see a hematologist/oncologist re MGUS. Local primary may not take it as seriously, and it...

https://connect.mayoclinic.org/comment/1201149/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

My sister had Multiple Myeloma. She was fortunate to have a Urologist who said, "Something is...

https://connect.mayoclinic.org/comment/952305/

Discussion: Don't know what to think and feeling uncertain at this point

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2023

Colleen In mid 2020 I questioned my primary physician about why I had bubbles in my...

https://connect.mayoclinic.org/comment/654536/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2021

@bcamilla74 That's a lot to have happen in a short time, isn't it? I am a...

https://connect.mayoclinic.org/comment/1369023/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

@zeedee1 It is a known fact that dexamethasone may "speed up" cataract formation. I am now...

https://connect.mayoclinic.org/comment/1335596/

Discussion: Cataract surgery possible?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2025

I have always said to go where they "see the most, know the most and do...

https://connect.mayoclinic.org/comment/74584/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2018

Hello @beckyoutlaw115, You pose a great question about combining two meds to bring down your light...

https://connect.mayoclinic.org/comment/167850/

Discussion: Amyloidosis and multiple mylenoma

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2017

Hello new members @steffiney and @milo3986 Lori is very experienced and has a depth of information...

https://connect.mayoclinic.org/comment/890559/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

I’d like to hear results of stem cell transplants. I’m trying to decide whether to get...

https://connect.mayoclinic.org/comment/809286/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2023

@kkieft Welcome to Mayo Clinic Connect! My condolences on losing your sister, and kudos to you...

https://connect.mayoclinic.org/comment/1485490/

Discussion: MGUS and pain

Support Group: Blood Cancers & Disorders

Posted: Jan 18 10:43am

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