Blood Cancers & Disorders Support Group

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Comments (126)

Just a question and update. Has anyone dealt with skin cancer while having SMZL? and what...

https://connect.mayoclinic.org/comment/857057/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: May 9, 2023

I was diagnosed last december with smzl. I had 4 treatments of rituximab and my spleen...

https://connect.mayoclinic.org/comment/1115291/

Discussion: Does anyone have splenic marginal zone lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2024

I was diagnosed with SMZL in December of 2018. I've had several iron infusions but nothing...

https://connect.mayoclinic.org/comment/218732/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2019

Bmisslich, recently diagnosed w/ smzl and have a choice bw Rituxan and splenectomy and am leaning...

https://connect.mayoclinic.org/comment/1115198/

Discussion: Does anyone have splenic marginal zone lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2024

I had never heard of Waldenstroms but it looks very much like SMZL! I hope they...

https://connect.mayoclinic.org/comment/1013495/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024

I have SMZL and have had Spleen removed and in my 7th Chemo treatment, have one...

https://connect.mayoclinic.org/comment/996799/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

I am part of the facebook SMZL support group but not the MZL community. I'll have...

https://connect.mayoclinic.org/comment/859642/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

That’s great Elaine. It’s a major research facility. Did he mean most cases of SMZL patients...

https://connect.mayoclinic.org/comment/1118663/

Discussion: Does anyone have splenic marginal zone lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024

At age 69 I was diagnosed with SMZL November 2021. And for 10 years I had...

https://connect.mayoclinic.org/comment/716630/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2022

Hello, I was treated for SMZL in 2014. I had 4 rounds of Rituxan followed by...

https://connect.mayoclinic.org/comment/1241213/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 20 7:21am

I have a bit of stomach pain as well. I think the size of the spleen...

https://connect.mayoclinic.org/comment/660874/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2021

Paul, It sure seems like the standard plan for SMZL is to wait and start Rituxan...

https://connect.mayoclinic.org/comment/1009497/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

My name is Laurie and I was diagnosed almost 2 years ago with SMZL after routine...

https://connect.mayoclinic.org/comment/167270/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2020

Your post reminds me of how much people have on their plates and the depth to...

https://connect.mayoclinic.org/comment/654957/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2021

Welcome to Connect, AndiLynn. Please meet April, @sabtahis who also has splenic B cell marginal zone...

https://connect.mayoclinic.org/comment/109514/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2016

Hello Renee! I love your question and even though I have not found a great deal...

https://connect.mayoclinic.org/comment/653701/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2021

@trixie1, recently (Jan 2023) the FDA approved zanubrutinib (Brukinsa) for the treament of chronic lymphocytic leukemia...

https://connect.mayoclinic.org/comment/912886/

Discussion: Any new treatments for SMZL? What do you take for maintenance?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Hello, I’m 45 and have been recently diagnosed with SMZL. Literally getting my 4th Rituxan infusion...

https://connect.mayoclinic.org/comment/865160/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: May 23, 2023

FYI: I am a SMZL "survivor" tho' my oncologist/hematologist reminds me there is no cure. I...

https://connect.mayoclinic.org/comment/1100036/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2024

@caroldk I also have SMZL I was diagnosed in April of 2017 at Mayo Rochester. In...

https://connect.mayoclinic.org/comment/218736/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2019