Blood Cancers & Disorders Support Group

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Comments (47)

Hi. I underwent CarT therapy in December 2020 for Mantle Cell Lymphoma which is a B...

https://connect.mayoclinic.org/comment/902387/

Discussion: Did anyone undergo Car-T therapy for B cell lymphoma?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 26, 2023

Hi @sweede536, you'll notice that I moved your message to this existing discussion about Mantle Cell...

https://connect.mayoclinic.org/comment/243064/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2020

Hi Lori - thank you so much for the contact. Since we last messaged, I've had...

https://connect.mayoclinic.org/comment/725158/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2022

Thank you so much for sending all of this information I will read and look at...

https://connect.mayoclinic.org/comment/715963/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2022

In the past 8 years I have been on watchful waiting for MDS. I had low...

https://connect.mayoclinic.org/comment/750641/

Discussion: Mantle Cell Lymphoma and MDS (RARS)

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

By the way, there are several Facebook private groups for MCL and a listserv site that...

https://connect.mayoclinic.org/comment/243057/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2019

Hi Dave, I’d love to help your friend find just the right group. We have quite...

https://connect.mayoclinic.org/comment/948517/

Discussion: Might this be non-Hodgkin's lymphoma or something else?

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2023

@trixie1, recently (Jan 2023) the FDA approved zanubrutinib (Brukinsa) for the treament of chronic lymphocytic leukemia...

https://connect.mayoclinic.org/comment/912886/

Discussion: Any new treatments for SMZL? What do you take for maintenance?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Hello, I have Mantle Cell Lymphoma, just heard a mention of indolent MCL. I did not...

https://connect.mayoclinic.org/comment/205913/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2019

Hi @arbutus, while we’re waiting for other members to reply about their experiences with Mantle Cell...

https://connect.mayoclinic.org/comment/894020/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2023

Hi Pat, my goodness, you’ve been through quite a bit in trying to get a firm...

https://connect.mayoclinic.org/comment/789451/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2022

Oop, my bad! Sorry, you know what they say about ‘assuming’. LOL. I shouldn’t have assumed...

https://connect.mayoclinic.org/comment/1104859/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 13, 2024

My oncologist report says "She does not have palpable lymphadenopathy, and the results of the CT...

https://connect.mayoclinic.org/comment/706892/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2022

Hi - I'm 61 and was diagnosed with Mantle Cell Lymphoma a little over two weeks...

https://connect.mayoclinic.org/comment/706226/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2022

In 2015 I was diagnosed with aggressive blastoid mantle cell lymphoma (MCL). Prognosis was bleak but...

https://connect.mayoclinic.org/comment/1230805/

Discussion: Mantle cell lymphoma: How long do I have? What's next?

Support Group: Blood Cancers & Disorders

Posted: Feb 6 12:31pm

Hi @sofaramnotdead, CAR-T cell therapy is one of the most promising areas of cancer treatment, especially...

https://connect.mayoclinic.org/comment/622500/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2021

I'm new here but not new to blood disease/cancer. I was diagnosed with Mantle Cell Lymphoma...

https://connect.mayoclinic.org/comment/109727/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2019

Hi Lori - thank you so much for the reply and links. I just received the...

https://connect.mayoclinic.org/comment/704954/

Discussion: Just diagnosed with Mantle Cell Lymphoma 23+ and looking for input

Support Group: Blood Cancers & Disorders

Posted: May 3, 2022

I don't have CLL, I have B-cell prolymphocytic leukemia (B-PLL). Before diagnosed with B-PLL I was...

https://connect.mayoclinic.org/comment/253405/

Discussion: Chronic leukemia. Terrified bc I can’t tolerate chemo

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2019

Started Rituxan treatment for four weeks in January. My IgM went from 5490 to 3900, and...

https://connect.mayoclinic.org/comment/866503/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2023