Blood Cancers & Disorders Support Group

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Comments (115)

Does anybody know about venclexta that what they used to treat my cmml made my number...

https://connect.mayoclinic.org/comment/1312279/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

Hi there: can I ask how old you are and what dosage you are taking. I...

https://connect.mayoclinic.org/comment/1119109/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024

I have a friend recently diagnosed with CMML-1 and she may request a second opinion from...

https://connect.mayoclinic.org/comment/1063397/

Discussion: Looking for recommendations of doctors with expertise in CMML

Support Group: Blood Cancers & Disorders

Posted: May 6, 2024

I have recently been diagnosed with CMMl-1. My blasts are low and I feel fine for...

https://connect.mayoclinic.org/comment/1591808/

Discussion: Diagnosed with a myeloid neoplasm (chronic myelomonocytic leukemia)

Support Group: Blood Cancers & Disorders

Posted: Jun 6 8:44am

@jzier, please contact the appointment office to inquire about CMML specialists at Mayo. Here are the...

https://connect.mayoclinic.org/comment/101843/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 31, 2016

Dear Lori, It was mistakenly mentioned by me as CML .In fact my sister has CMML....

https://connect.mayoclinic.org/comment/1367376/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2025

Hi @imoser325, I’m so happy to see that your health is improving changing your care to...

https://connect.mayoclinic.org/comment/1367573/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

Welcome to Connect, @pinch. It looks like your mom was newly diagnosed with CMML. (Chronic myelomonocytic...

https://connect.mayoclinic.org/comment/1182559/

Discussion: What treatment options for CMML2 with no detected mutations ?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2024

@loribmt I have just been diagnosed with CMML but based on my blasts and monocyte count...

https://connect.mayoclinic.org/comment/1593072/

Discussion: Diagnosed with a myeloid neoplasm (chronic myelomonocytic leukemia)

Support Group: Blood Cancers & Disorders

Posted: Jun 7 7:54pm

@lindak123 Was feeling exhausted most of the time in December. No energy to do much of...

https://connect.mayoclinic.org/comment/1483003/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 15 11:27am

Hi Lori, @beewoman70 I wanted to follow up with you to see if you ever received...

https://connect.mayoclinic.org/comment/1098415/

Discussion: CMML vs CMUS

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

I wish you brother well with this ‘adventure’. At 75 he’s in the older range for...

https://connect.mayoclinic.org/comment/992568/

Discussion: What should doctor look for when testing my blood to be CMML donor?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2024

Hi @jzier, I can understand your concern. Waiting is very difficult. Please contact the Mayo Clinic...

https://connect.mayoclinic.org/comment/101848/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2016

I had a minor Copper deficiency when I first was diagnosed with CMML 1. Oncologist had...

https://connect.mayoclinic.org/comment/1594442/

Discussion: Anyone have Copper Deficiency with other anomalies

Support Group: Blood Cancers & Disorders

Posted: Jun 9 1:55pm

Thank you @cblowers1, for responding to @joesim about your experience with CMML and Adult Langerhans cell...

https://connect.mayoclinic.org/comment/684694/

Discussion: Looking for recommendations of doctors with expertise in CMML

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2022

@loribmt I was diagnosed with leukemia CMML. Because of my genetic mutations it bumped me up...

https://connect.mayoclinic.org/comment/1635102/

Discussion: Anyone hire help to stay with you during bone marrow transplant?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 1 11:32am

Thank you, Colleen. I appreciate you very informative reply. I recognize Dr Patnaik's name from his...

https://connect.mayoclinic.org/comment/683241/

Discussion: Looking for recommendations of doctors with expertise in CMML

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2022

Hello, I have been diagnosed with CMML-1 about a year ago, I am on "wait and...

https://connect.mayoclinic.org/comment/1668346/

Discussion: CMML vs CMUS

Support Group: Blood Cancers & Disorders

Posted: Sep 11 8:40am

Lori, thanks for responding. My brother (Ron age 75) learned that he has CMML on Dec....

https://connect.mayoclinic.org/comment/992324/

Discussion: What should doctor look for when testing my blood to be CMML donor?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2024

It seems you are coping well with CMML. Could you please share a little more about...

https://connect.mayoclinic.org/comment/1367985/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

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