Blood Cancers & Disorders Support Group

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Comments (357)

I'm one the 1% who have CLL, which is considered chronic, incurable, go into what is...

https://connect.mayoclinic.org/comment/946358/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2023

bach@bach Thank you for sharing your story. Having a diagnosis of MGUS or any disorder/disease can...

https://connect.mayoclinic.org/comment/911559/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

I have smouldering myeloma (mcus) they have never said any diet for this but check out...

https://connect.mayoclinic.org/comment/81212/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

It is though the multiple myeloma association at Mayo clinic Rochester Mn and four other hospitals....

https://connect.mayoclinic.org/comment/109781/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2020

That's truly a set of Q for your medical team? I would put those in a...

https://connect.mayoclinic.org/comment/1135424/

Discussion: How high has anyone seen Lambda free light chain go with Mgus?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2024

Hi, Free Lambda Chains 53.8 mg/L Free Kappa Chains 9.4 mg/L Ratio .18 What changed your...

https://connect.mayoclinic.org/comment/990007/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2024

My husband was diagnosed with Smouldering myeloma. Our life has changed..waiting is awful. trying to do...

https://connect.mayoclinic.org/comment/964496/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2023

Navygirl- By all means get a second opinion. VA services should approve a second opinion. Was...

https://connect.mayoclinic.org/comment/957351/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2023

Hi @rae77 @oliviahutson @kayabbott and @becsbuddy. I moved this discussion to the Blood Cancers & Disorders...

https://connect.mayoclinic.org/comment/937480/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

Smouldering? What is that suppose to mean? That it’s not a fire yet? Who comes up...

https://connect.mayoclinic.org/comment/915731/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2023

Hello mehz4802 You sure can do more. If you have been officially diagnosed with MM there...

https://connect.mayoclinic.org/comment/829356/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

I qualify for chemo (Darzalex) with the soldering multiple myeloma but I would have to stop...

https://connect.mayoclinic.org/comment/1252104/

Discussion: Myeloma newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6 8:14pm

Hi bluegrass, Welcome and keep a sane head! Please. How high is your lambda ? Your...

https://connect.mayoclinic.org/comment/985222/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2023

Thankyou so much. I feel like my blood results with the FLC ratio isn’t great and...

https://connect.mayoclinic.org/comment/959129/

Discussion: MGUS and understanding results

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

I hope all is stable when you get the results 🌺 However, if not, there’ll be...

https://connect.mayoclinic.org/comment/929537/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Hi Robin, Yes I am exactly like you! I have no symptoms. Slight back ache, which...

https://connect.mayoclinic.org/comment/871384/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023

Hey Chef, Thanks for getting back to me. That’s great they don’t mess around. I had...

https://connect.mayoclinic.org/comment/868905/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: May 29, 2023