Blood Cancers & Disorders Support Group

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Comments (413)

@redgiles Welcome to Mayo Clinic Connect. First, congratulations on your 24 year thriver of breast cancer!...

https://connect.mayoclinic.org/comment/754486/

Discussion: possible Myeloma ? big shocking surprise !!

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

@bens Welcome to Mayo Clinic Connect. You're so right, this can all be overwhelming as you...

https://connect.mayoclinic.org/comment/697825/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2022

@freespirit60 Hi, and welcome. As Colleen says, there are so many resources for us here on...

https://connect.mayoclinic.org/comment/1353288/

Discussion: Long term MGUS: What changes have you had? Do's and Don'ts?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2025

My hematologist expressed concern that my MGUS could be morphing into smoldering myeloma. I went back...

https://connect.mayoclinic.org/comment/1245356/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2025

Please forgive spelling mistakes. My wife and I did decide to go to the Mayo in...

https://connect.mayoclinic.org/comment/883113/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2023

Welcome to Connect, @nathangolden. I’m going to echo @deborahjb by encouraging you to advocate for yourself....

https://connect.mayoclinic.org/comment/875309/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

Hello @rayofhope I love your @name. It’s important to always have hope. Believe me I understand...

https://connect.mayoclinic.org/comment/839405/

Discussion: MGUS to myeloma: How can it be detected sooner?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2023

@hgearhart I’m so sorry you’ve had so much to deal with. As a MGUS patient I...

https://connect.mayoclinic.org/comment/1009396/

Discussion: Anyone else been diagnosed with CVID and MGUS and have multiple cancer

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

@magic3ems I totally understand your reluctance to go back to see the oncologist. It is a...

https://connect.mayoclinic.org/comment/1208186/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2025

@dickmm I’m glad my story was helpful and in reading some of the other comments from...

https://connect.mayoclinic.org/comment/1409490/

Discussion: Anyone have experience with daratumumab (Darzalex) to treat Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2025

@scnana, there is certainly a lot of information out there but so much of it is...

https://connect.mayoclinic.org/comment/1006285/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2024

Olivia, welcome. I read through your post a couple of times, and I was a little...

https://connect.mayoclinic.org/comment/938647/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2023

@chgohotdog good to hear that there has been no progression for your husband. I have not...

https://connect.mayoclinic.org/comment/1003014/

Discussion: How to know whether smoldering myeloma or multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2024

Hi, I am new to this group and to Multiple Myeloma. Currently I am diagnosed as...

https://connect.mayoclinic.org/comment/797821/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2023

Good morning! I am going to vote with the majority here and advocate for a specialist....

https://connect.mayoclinic.org/comment/934863/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2023

Hi Terry, I’m retired LEO also with smoldering multiple myeloma. I intentionally retired at 55 as...

https://connect.mayoclinic.org/comment/1387488/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2025

@angiew Welcome to the Mayo Clinic Connect. You’ve had a lot to deal with health-wise. It’s...

https://connect.mayoclinic.org/comment/1053687/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024

@theadosi Thea, my last numbers were a bit higher than usual. I attribute that to surgery...

https://connect.mayoclinic.org/comment/1492795/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 28 3:01pm

Thank you for sharing this. When I was diagnosed with MGUS in June 2023 with Monoclonal...

https://connect.mayoclinic.org/comment/1437485/

Discussion: Smoldering Myeloma: Coping with the emotional toll and acceptance

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2025

This is for both you @jeannie215 and @kayabbott . My story is long too and has...

https://connect.mayoclinic.org/comment/1009914/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024