Blood Cancers & Disorders Support Group

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Comments (357)

@jw57 if you research integrative oncology and multiple myeloma (MM) or smouldering, you will find resources....

https://connect.mayoclinic.org/comment/1408888/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Oct 5 12:47pm

@joh Welcome to The Mayo Clinic Connect forum. It does send you into a tailspin when...

https://connect.mayoclinic.org/comment/1188373/

Discussion: High Kappa Lamda ratio: What can affect the test?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2024

Hey, Lori, and good morning to you and anyone else listening. I am 63. Early in...

https://connect.mayoclinic.org/comment/1035716/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2024

WOW. Glad I just found this group. Lots of info. Like so many, my MGUS was...

https://connect.mayoclinic.org/comment/910564/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2023

No issues also, I have POEMS- Syndrome with Smouldering Myeloma. After Daratumumab for 8 Month with...

https://connect.mayoclinic.org/comment/1200872/

Discussion: Darzalex (daratumumab): What side effects did you have?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

Itching (puritis) is the symptom that led me to oncology. It was zyrtec that relieved the...

https://connect.mayoclinic.org/comment/790329/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2022

I have had MGUS, then smouldering myeloma since 2013 with very small increases. 2 years ago...

https://connect.mayoclinic.org/comment/746666/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

Hi jefe Are you being on chemotherapy? What Rx you Dr used. My Dr want very...

https://connect.mayoclinic.org/comment/1003150/

Discussion: How to know whether smoldering myeloma or multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2024

I’m 50, was Dx’d with MGUS just over 2 years ago via BMB just under smouldering...

https://connect.mayoclinic.org/comment/976019/

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023

my husband,by training, is a PhD inorganic chemist. He was a researcher and continues to be....

https://connect.mayoclinic.org/comment/965794/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

bharty615 your sharing encourages all of us about remission because an 11 year remission is uncommon,...

https://connect.mayoclinic.org/comment/953050/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023

@pmm Hi patty, Thank you for such kind words of wisdom. I am just over one...

https://connect.mayoclinic.org/comment/869520/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

I was just dx a week ago through BMB and fat aspirate, but they have elected...

https://connect.mayoclinic.org/comment/104692/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2017

I am also jak 2 positive as of 2019 and mgus since 201 3, now smouldering...

https://connect.mayoclinic.org/comment/755881/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

I was diagnosed with MGUS about 2 1/2 years ago and have now progressed to Smouldering...

https://connect.mayoclinic.org/comment/1159109/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2024

Hi cheft, I am new to mayo so not really sure how this app works. I...

https://connect.mayoclinic.org/comment/868769/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: May 29, 2023

To help us understand this disease better could other's share the level of their WBC and...

https://connect.mayoclinic.org/comment/1284502/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 18 8:26am

I got my blood results back so everything is going ever so slightly downhill. Lymphocytes and...

https://connect.mayoclinic.org/comment/1294408/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 1 3:05pm

I too have been recently diagnosed with MGUS. It was found when I was being tested...

https://connect.mayoclinic.org/comment/812215/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2023

I haven’t read thru this whole thread, but in case it hasn’t been mentioned, there is...

https://connect.mayoclinic.org/comment/979545/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2023