Blood Cancers & Disorders Support Group

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Comments (298)

does anyone have the following rare blood cancer essential thrombocythaemia - Ive just been diagnosed

https://connect.mayoclinic.org/comment/876064/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

Thanks for your reply. My shortness of breath is a complication from my cardiac microvascular disease...

https://connect.mayoclinic.org/comment/822913/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2023

Hi @1pearl, I’m putting together pieces of your ET puzzle. When we first spoke the other...

https://connect.mayoclinic.org/comment/1231285/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2025

Hi I was just diagnosed with Primary Thrombocythmia. I actually think I have had this for...

https://connect.mayoclinic.org/comment/820477/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2023

Hi, Karen here. I was diagnosed about a month ago with Essential Thrombocytosemia, the rate type....

https://connect.mayoclinic.org/comment/783499/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2022

Thanks for posting your experience. I need all the help I can find to deal with...

https://connect.mayoclinic.org/comment/607494/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2021

I am having both an endoscopy and a colonoscopy to look for bleeding because my iron...

https://connect.mayoclinic.org/comment/762993/

Discussion: Myeloproliferative neoplasm Anyone else have a similar diagnoses?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2022

Per the Mayo Clinic, thrombocytosis is having too many red platelets. What I read says thrombocytopenia...

https://connect.mayoclinic.org/comment/1382460/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2025

Thank you you made me feel more hopeful. I am 78yrs. old and was just diagnosed...

https://connect.mayoclinic.org/comment/972925/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2023

Welcome to Connect, @endoman246. If you’re having an over production of platelets, your hematologist would be...

https://connect.mayoclinic.org/comment/967897/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2023

I have just been diagnosed with the rare blood cancer = Essential Thromocythaemia ET

https://connect.mayoclinic.org/comment/876054/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

Hi @bettyk49 I see you’re new to our forum and I’m happy you found us. You...

https://connect.mayoclinic.org/comment/808138/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Hi @huronshores, You'll notice that I moved your message to this existing discussion about Essention Thrombocythemia...

https://connect.mayoclinic.org/comment/146307/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2020

I was diagnosed with Essential Thrombocytopemia at the VA Hospital based on a platelet count of...

https://connect.mayoclinic.org/comment/252016/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2019

There's a lot of good info here - thanks to all who have shared. My first...

https://connect.mayoclinic.org/comment/1383530/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2025

Newly diagnosed with essential hemorrhagic thrombocythemia. Anyone else have this and would like to share their...

https://connect.mayoclinic.org/comment/1256481/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2025

Hi williamsjen, I understand your concern about the dosing of Hydrea. At least you started low...

https://connect.mayoclinic.org/comment/1224562/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2025

Hi Helen- Thanks for your post. I was diagnosed with Essential Thrombocytemia and mutant JAK2 genes...

https://connect.mayoclinic.org/comment/328576/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2020