Blood Cancers & Disorders Support Group | Page 15

Good morning, @onthejoedock. When there is a mutation with the JAK2 gene, it can interfere with...

https://connect.mayoclinic.org/comment/1009921/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Hi, @colran, Essential Thrombocythemia is a condition where your body is producing too many platelets. It’s...

https://connect.mayoclinic.org/comment/1523842/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 9:57am

Hi Wiggins32....My nurse practitioner was the person who found the causative factor of my high platelet...

https://connect.mayoclinic.org/comment/782402/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Hello Colleen, Thank you for your reply. Looking forward to msg someone who has used this...

https://connect.mayoclinic.org/comment/969263/

Discussion: VonJo (pacritinib) effects

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2023

I'm sorry to hear about the joint pain and leg aches you're experiencing while managing essential...

https://connect.mayoclinic.org/comment/1459176/

Discussion: How long will Fosomax stay in my bones after quitting?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2025

@dragonflylynda Oh, i’m sorry, I must have mis-read a reply…nothing wrong with my brain! LOL Well,...

https://connect.mayoclinic.org/comment/1464788/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

Hi Linda. Hydroxyurea is a standard first line treatment for some blood conditions such as ET....

https://connect.mayoclinic.org/comment/1146907/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2024

From Google AI: Preparing for surgery with Essential Thrombocythemia (ET) taking Hydroxyurea (HU) requires strict collaboration...

https://connect.mayoclinic.org/comment/1559019/

Discussion: Having an operation: What does the surgeon need to know about MPN?

Support Group: Blood Cancers & Disorders

Posted: Apr 25 7:50am

Hey dunewalker, I did the bone marrow biopsy last week at Mayo and went over results...

https://connect.mayoclinic.org/comment/1293666/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

Good morning, @irishgoff82. It’s always so jarring when we get news about our health that we...

https://connect.mayoclinic.org/comment/1195805/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2024

@misty45, Thank you for replying and telling me your story. Having a positive JAK2 result, I'm...

https://connect.mayoclinic.org/comment/194261/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018

Hi @bohobruja Welcome to Mayo Connect. The National Institute of Health defines chronic myeloproliferative disorders as...

https://connect.mayoclinic.org/comment/786594/

Discussion: Does anyone else have more than one myeloproliferative disorder?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

In response to earlier posts I was asked to post bone marrow biopsy results, hope this...

https://connect.mayoclinic.org/comment/57951/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2020

My hematologist submitted blood at a lab for 5 genetic tests after I suffered my 2nd...

https://connect.mayoclinic.org/comment/194258/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2018

@hun8ln2026 There is a level of confusion surrounding MPNs (myeloproliferative neoplasms) which is the group of...

https://connect.mayoclinic.org/comment/1647291/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Aug 16 10:25am

Dear PinkFlamingo, Wow!! Sorry for what you are going through. I had the JAK2 blood work...

https://connect.mayoclinic.org/comment/836159/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

There's a lot of good info here - thanks to all who have shared. My first...

https://connect.mayoclinic.org/comment/1383530/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2025

Good morning @daelitesmom. Glad I had my cup of tea in hand to read through your...

https://connect.mayoclinic.org/comment/1456025/

Discussion: CALR exon 9 mutation w/translocation of chromosomes 10 &13

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2025

Hi, I have been on Hydrea since 1992. I'm 78 years old. I have essential thrombocythemia,...

https://connect.mayoclinic.org/comment/1351369/

Discussion: F/w PV- JAK2-pre-mylelofibrosis SCARED to start Hydroxyurea. Help!

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2025

Hi @cindyem I just read another comment you posted about having PV and anemia. From information...

https://connect.mayoclinic.org/comment/884148/

Discussion: Does anyone have information on PV with a low hemoglobin/ red count

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023