Blood Cancers & Disorders Support Group

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Comments (310)

Hi - 49 year old male here in chronic pain for 7 months now, just recently...

https://connect.mayoclinic.org/comment/264607/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2020

What is "kinda new with this MGUS" is likely to be seen differently by different people....

https://connect.mayoclinic.org/comment/1131834/

Discussion: MGUS Bloodwork Frequency

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2024

I do appreciate the words of knowledge. As for the Kappa Lambda light chain numbers, I...

https://connect.mayoclinic.org/comment/1125043/

Discussion: Desperately seek answer . really high kappa lambda light chain numbers

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2024

@veronica1955 Greetings! I’m going to offer some different reasoning. Each of us has to make our...

https://connect.mayoclinic.org/comment/1108965/

Discussion: should I do more testing?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2024

I had my second liver transplant in 2017, my first was in 2000. Since 2018 I...

https://connect.mayoclinic.org/comment/1086676/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2024

I do think there is more happening with some of us than the research or statistics...

https://connect.mayoclinic.org/comment/1061564/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

I have tender spots over bones, particularly over ribs. They can be painful when palpated. They...

https://connect.mayoclinic.org/comment/1055782/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2024

I would think if it’s pretty persistent then I’d worry. Sounds like yours is fleeting -...

https://connect.mayoclinic.org/comment/1033050/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2024

Do you think the hip pain could possibly be from the MGUS? I have hip pain...

https://connect.mayoclinic.org/comment/1019671/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

I was diagnosed with MGUS 7 years ago and after l did some research l became...

https://connect.mayoclinic.org/comment/1019447/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2024

Hello, sorry about your diagnosis. I’ve found MGUS/ Smoldering Myeloma or Multiple Myeloma all affect people...

https://connect.mayoclinic.org/comment/1019136/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2024

@beckyjochilson I responded to your other post, under MGUS with Bone Pain https://connect.mayoclinic.org/discussion/mgus-with-bone-pain/?pg=4#comment-1012611. Can you keep...

https://connect.mayoclinic.org/comment/1012615/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2024

Hi @markgventnor, it’s not unusual for people to experience itching when they have a blood cancer...

https://connect.mayoclinic.org/comment/992982/

Discussion: What should doctor look for when testing my blood to be CMML donor?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2024

My neuropathy hasn't progressed in the last 8 years. It is mostly minor loss of feeling...

https://connect.mayoclinic.org/comment/991229/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2024

Now having a diagnosis, I just filled out my Bio and will repost here, because it...

https://connect.mayoclinic.org/comment/981394/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

dazlin, I have had MGUS for two years now (also have Waldenström's non-Hodgkin's lymphoma) but my...

https://connect.mayoclinic.org/comment/974476/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2023

@tatajess Greetings from Arkansas. I am glad to hear that your MRI results were “unremarkable” as...

https://connect.mayoclinic.org/comment/970078/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2023

Re: MGUS and joint pain Yes, I have both. And in the last year, I've gotten...

https://connect.mayoclinic.org/comment/965458/

Discussion: Anyone with MGUS, do you have joint pain?

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2023

My husband had low white counts since 2017 and we had no idea about MGUS and...

https://connect.mayoclinic.org/comment/962551/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

Sorry to hear of your recent diagnosis of MGUS. I think you’re much better off there...

https://connect.mayoclinic.org/comment/931619/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2023