Blood Cancers & Disorders Support Group

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Comments (867)

in reply to @lorib Thank you for all of this information. I see a hematologist on...

https://connect.mayoclinic.org/comment/877074/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2023

Hello Nathan, I’m glad you found our group. I had the same reaction as Lori when...

https://connect.mayoclinic.org/comment/875389/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

@shorelady, I'd like to add my welcome along with @gingerw and tagging other members who have...

https://connect.mayoclinic.org/comment/807258/

Discussion: Amyloidisis of the mouth and myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

@valeriewiegand I do not have CLL, but am dealing with multiple myeloma. Here is an article...

https://connect.mayoclinic.org/comment/777749/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2022

It can disappear with treatment, because that is how they monitor my husbands disease. I do...

https://connect.mayoclinic.org/comment/109733/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2019

If I can be of any help or support, willing to do so. June will be...

https://connect.mayoclinic.org/comment/104721/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018

@becky1024 I am a member of the same club, IgM light chain MGUS, that morphed into...

https://connect.mayoclinic.org/comment/731465/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2022

Thank you for this comment. I was not aware of the Leukemia risk with stem cell...

https://connect.mayoclinic.org/comment/1121266/

Discussion: Should all multiple myeloma patients look into stem cell transplant?

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2024

@rprice0519 Welcome to Mayo Clinic Connect! When were you diagnosed with multiple myeloma? I have researched...

https://connect.mayoclinic.org/comment/1095505/

Discussion: Should all multiple myeloma patients look into stem cell transplant?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2024

I would like to add that if you are on FB, there are numerous Multiple Myeloma...

https://connect.mayoclinic.org/comment/719694/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Good evening! I just joined the group for multiple myeloma moments ago. A family member near...

https://connect.mayoclinic.org/comment/209500/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2018

@colleenyoung Colleen, I am new to this form and I am being treated for Amyloidosis with...

https://connect.mayoclinic.org/comment/1041672/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

@treehouse5437 I was already retired when my multiple myeloma diagnosis came along. On treatment since August...

https://connect.mayoclinic.org/comment/1249458/

Discussion: Myeloma: how long after treatment were you able to go back to work?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2025

@psue4 I am on oral chemo for my multiple myeloma [Revlimid], and take a broad spectrum...

https://connect.mayoclinic.org/comment/992331/

Discussion: COVID while on chemo and antibotics?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2024

@tml Everyone is different in their response to treatments and protocols. That's why there usually are...

https://connect.mayoclinic.org/comment/716661/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 11, 2022

Good point Upon! Upon diagnosis with Multiple Myeloma, June, 2019, and my local oncologist told me...

https://connect.mayoclinic.org/comment/335870/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2021

Just a comment from my experience. I started shots for Stage 1 Multiple Myeloma immediately and...

https://connect.mayoclinic.org/comment/1045784/

Discussion: Blood Test: Numbers are up, will doctor not start me on treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2024

just diagnosed with Multiple myeloma. Start chemo injections soon start MM injections next week. Looking for...

https://connect.mayoclinic.org/comment/838270/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2023

I qualify for chemo (Darzalex) with the soldering multiple myeloma but I would have to stop...

https://connect.mayoclinic.org/comment/1252104/

Discussion: Myeloma newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

That's interesting. I've had multiple myeloma for a year now. I've never had a Pet scan....

https://connect.mayoclinic.org/comment/1350321/

Discussion: Insurance denied petscan? All research shows it sb done, what next?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2025