Blood Cancers & Disorders Support Group

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Comments (357)

Hi @gina5009 CRAB criteria is a means of staging multiple myeloma. Monoclonal Gammopathy of Undetermined Significance...

https://connect.mayoclinic.org/comment/890159/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

@teedlum Some people with MGUS do indeed have a bone marrow biopsy, but not everyone. Much...

https://connect.mayoclinic.org/comment/770450/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

@mikxtr How frustrating! Not sure which specialists these people are, but if not a hematologist oncologist,...

https://connect.mayoclinic.org/comment/1076706/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

It is great that your husband knows how to do research. I don't , but that...

https://connect.mayoclinic.org/comment/965818/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

@freespirit60 Hi, and welcome. As Colleen says, there are so many resources for us here on...

https://connect.mayoclinic.org/comment/1353288/

Discussion: Long term MGUS: What changes have you had? Do's and Don'ts?

Support Group: Blood Cancers & Disorders

Posted: Jul 21 12:14pm

@splashgirl1961 First, welcome to Mayo Clinic Connect. I can imagine it is quite daunting to get...

https://connect.mayoclinic.org/comment/808211/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

@omemee That darned patient portal. I am always snagging a glance at it way before my...

https://connect.mayoclinic.org/comment/1056969/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2024

Definitely not acceptable. When I was first suffering from PMR, hardly able to walk, felt like...

https://connect.mayoclinic.org/comment/802276/

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: Jan 27, 2023

Dr. Urvi Shah at Memorial Sloan Kettering is studying how nutrition may slow the progression of...

https://connect.mayoclinic.org/comment/1030376/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

Hi Deborah, what kind of practice are you working with now to have your bloodwork monitored?...

https://connect.mayoclinic.org/comment/813340/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2023

@pmm Patty, your words are without a doubt, calming for many to read. @steffiney and @milo3986...

https://connect.mayoclinic.org/comment/891288/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

@rosoto Welcome to Mayo Clinic Connect. Often, we experience varying levels of fatigue that seem to...

https://connect.mayoclinic.org/comment/1288236/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 23 12:34pm

Hello again @beepoop. I am sorry about your father, and getting your MGUS diagnosis at that...

https://connect.mayoclinic.org/comment/81209/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

Welcome Sheryl, I think it’s safe to say that MGUS is usually diagnosed accidentally. As time...

https://connect.mayoclinic.org/comment/805208/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2023

Hello, like everything else in the world of food & supplements, the answer is maybe. I...

https://connect.mayoclinic.org/comment/751810/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2022

So, I have been taking 4500mg of Turmeric Root Extract (95% Curcuminoids with Black Pepper Extract...

https://connect.mayoclinic.org/comment/868334/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: May 28, 2023

@redgiles I so envy your daily walking! I was doing that, also, and have become very...

https://connect.mayoclinic.org/comment/863931/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2023

@allu First, welcome to Mayo Clinic Connect. It certainly can be overwhelming to receive a diagnosis...

https://connect.mayoclinic.org/comment/698681/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2022

@shescomeundone welcome to the blood disorder discussion group. I remember when I was diagnosed with MGUS...

https://connect.mayoclinic.org/comment/1248301/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 1 7:57pm

Hello! I’m glad you are going to search around for a more attentive physician. The medical...

https://connect.mayoclinic.org/comment/903456/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2023