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Comments (413)

I have smoldering multiple myeloma. Not sure how long I had MGUS before it progressed. Found...

https://connect.mayoclinic.org/comment/1276328/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025

Hi. I lived with monitoring MGUS from 2002 until 2004, then followed my smoldering myeloma until...

https://connect.mayoclinic.org/comment/74576/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2018

@alicat01 Welcome to Mayo Clinic Connect. I know from experience, that getting a diagnosis you're not...

https://connect.mayoclinic.org/comment/899929/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2023

I have Smoldering Myeloma, begain 14 years ago. when a M spike was found, told that...

https://connect.mayoclinic.org/comment/811398/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

@ripley If possible, get a referral to a hematologist for full testing. As you might know,...

https://connect.mayoclinic.org/comment/778950/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

@bigbob5461 Just as there are so many ways to handle your diet, there are the stories...

https://connect.mayoclinic.org/comment/1126274/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2024

@gingerw , I agree, I feel very disappointed about lack of energy...especially when ambition is high...

https://connect.mayoclinic.org/comment/292604/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2020

Hi @mmpopovich, Welcome to Mayo Clinic Connect. I’m happy to see you’ve reached out to members...

https://connect.mayoclinic.org/comment/739167/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2022

I was first diagnosed with MGUS in 2002 - 24 years ago. I have not progressed...

https://connect.mayoclinic.org/comment/1542952/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 4 8:28pm

@skate Welcome to the Mayo Clinic Connect forum. I agree with Ginger that “watch and wait”...

https://connect.mayoclinic.org/comment/1182896/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2024

@dazlin My MGUS advanced into smoldering multiple myeloma officially in Nov 2019, so I am on...

https://connect.mayoclinic.org/comment/292603/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2020

@pnpam75 MM is shorthand for Multiple Myeloma. MGUS is often considered a precursor to this, a...

https://connect.mayoclinic.org/comment/1062610/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

It's been a process for me. First comes lab results for tests done for a totally...

https://connect.mayoclinic.org/comment/811292/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

@pmm You took the words right out of my mouth! Absolutely right, a small percentage of...

https://connect.mayoclinic.org/comment/732393/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2022

Greetings to everyone. I have an update for my story and my smoldering multiple myeloma diagnosis...

https://connect.mayoclinic.org/comment/1475583/

Discussion: Smoldering Multiple Myeloma and symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 6 7:16am

Hi @beaudog, waiting for a diagnosis and treatment is always such a challenging time. I’m sure...

https://connect.mayoclinic.org/comment/726192/

Discussion: Husband diagnosed with smothering myeloma and AI amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2022

@4kleo Here is a link to the page that speaks about MGUS, from myeloma.org: https://www.myeloma.org/what-are-mgus-smm-mm As...

https://connect.mayoclinic.org/comment/1246905/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2025

Hello. Here are the IMWG (International Myeloma Working Group) criteria for Diagnosis of MGUS, Smoldering Multiple...

https://connect.mayoclinic.org/comment/1447846/

Discussion: Do my blood tests results indicate MGUS or MM?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2025

@auntieoakley I see that you are also a volunteer mentor and that is an awesome thing...

https://connect.mayoclinic.org/comment/1458481/

Discussion: What to think when only free light chain ratio is abnormally high?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2025

I spoke with my doctor today. He said my osteoporosis is likely due to the plasma...

https://connect.mayoclinic.org/comment/1053267/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024