Blood Cancers & Disorders Support Group

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Comments (413)

Hi @jeffreymelsontate, There are 6 six types of systemic mastocytosis and treatment can vary, depending on...

https://connect.mayoclinic.org/comment/1287127/

Discussion: Systemic Mastocytosis: Does anyone have bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2025

@nick86 Exactly what @pmm said! MGUS is not a death sentence. I did not follow the...

https://connect.mayoclinic.org/comment/939597/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2023

@ChefT Welcome to Mayo Clinic Connect. I can definitely relate to being scared when you get...

https://connect.mayoclinic.org/comment/839318/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2023

@dbont Let me add my welcome to Mayo Clinic Connect! Watching and waiting in any situation...

https://connect.mayoclinic.org/comment/810073/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2023

@ginorio You might want to ask your oncologist the reason for being so aggressive if your...

https://connect.mayoclinic.org/comment/1005243/

Discussion: How to know whether smoldering myeloma or multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2024

@gmichelle There is no clearcut evidence that it is always linked, but some people do experience...

https://connect.mayoclinic.org/comment/796157/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2023

I discovered I had MGUS through other testing that was done looking for a root cause...

https://connect.mayoclinic.org/comment/1200159/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2024

I agree with Ginger, I was diagnosed with MGUS IN 2022 when trying to discover why...

https://connect.mayoclinic.org/comment/1077974/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: May 30, 2024

@kaurashima Ah, he is leaving. Boy, that seems to be a common theme in health care....

https://connect.mayoclinic.org/comment/1044153/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2024

My Kappa is 238 mg/L and Kappa/Lambda is 20. I was diagnosed with MGUS 8 years...

https://connect.mayoclinic.org/comment/1112060/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2024

Having MGUS is difficult disease. It’s usually found by accident. You have no physical symptoms. You...

https://connect.mayoclinic.org/comment/1284519/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2025

I’m in Twin Cities MN. Rochester MN Mayo is 2 hours away. I did look up...

https://connect.mayoclinic.org/comment/841048/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

Right now, I'm doing 3 month blood panels. I have to go and have a ct...

https://connect.mayoclinic.org/comment/109625/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2016

I had a sugery on April 26 2023 and 4 days later i had a DVT...

https://connect.mayoclinic.org/comment/1337805/

Discussion: Lower leg blood clot. Occlusion DVT thrombotic

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

@oldladydebra1 And here we are, in the existing conversation thread. As you read the reply from...

https://connect.mayoclinic.org/comment/992144/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2024

Welcome Gina, it does seem odd to watch and wait but as Ginger noted, that’s what...

https://connect.mayoclinic.org/comment/804774/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2023

@cathy56 Contact the person you spoke to and confirm the records were received. Ask them their...

https://connect.mayoclinic.org/comment/974096/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

@dazlin Stable numbers are a good thing! An early holiday gift for you, healthwise! Trends in...

https://connect.mayoclinic.org/comment/974085/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Hi again, so I have the results from my recent labs and while numbers continue to...

https://connect.mayoclinic.org/comment/1320684/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2025

@maddogstormy Welcome to Mayo Clinic Connect! I see you have been a member for a couple...

https://connect.mayoclinic.org/comment/1309473/

Discussion: Smoldering Multiple Myeloma and symptoms

Support Group: Blood Cancers & Disorders

Posted: May 21, 2025