Blood Cancers & Disorders: Discussions | Page 10

Hi @ranchgal4sure! Ok, this is a really unique name and I’d love to hear the story...

https://connect.mayoclinic.org/comment/1247521/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 28 3:22pm

You are so very kind to reply...thank you so much! I don't know what MSUS is....

https://connect.mayoclinic.org/comment/1292018/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Apr 28 12:46pm

@karencan2025 Once you have more information, I am sure there will be relief from the "not...

https://connect.mayoclinic.org/comment/1268896/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 28 5:38pm

Welcome to Connect, @questions2023. Inqovi is a type of chemotherapy to treat patients with MDS (and...

https://connect.mayoclinic.org/comment/1281488/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 14 8:30am

Kabue9, Sorry to hear about your situation. I'm not really the person to answer your questions,...

https://connect.mayoclinic.org/comment/1290260/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Apr 26 9:39am

Any heart issues? They just found leaky valves that maybe caused by Waldenstroms or neds

https://connect.mayoclinic.org/comment/1217722/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 20 6:38pm

Just received second rituxin infusion for Waldenstroms and non hodgkins.Side effects much worse than first. Been...

https://connect.mayoclinic.org/comment/1208320/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 10 11:08am

3 yrs diagnosis waldenstrom, I agree with you about navigating the symptoms! Fatigue is my travelling...

https://connect.mayoclinic.org/comment/1311550/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 24 12:26am

Thanks for your reply, am in similar situation, diagnosed 3yrs ago, was informed that I have...

https://connect.mayoclinic.org/comment/1312780/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 25 5:23pm

Feel much better after immunotherapy infusions . Seems to be helping my Waldenstroms

https://connect.mayoclinic.org/comment/1329057/

Discussion: Anyone have Rituximab infusion for lymphoma treatment? Did it help?

Support Group: Blood Cancers & Disorders

Posted: Jun 17 10:29am

I am so sorry to hear about your dad’s side effects to Zanubrutinib. I recommend you...

https://connect.mayoclinic.org/comment/1149698/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2024

@kayabbott Good morning. I am also 71 and diagnosed with IGM MGUS in 2021. My BMB...

https://connect.mayoclinic.org/comment/1365445/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 7 7:01am

Waldenstrom M is rare but it mimics myloma. There is a test to see if you...

https://connect.mayoclinic.org/comment/1371856/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 16 10:36am

Welcome @aann, I moved your message about starting chemotherapy treatment for Waldenstrom macroglobulinemia to this existing...

https://connect.mayoclinic.org/comment/816110/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

I had low iron in 10s for 15 years, oral iron always brought it back up....

https://connect.mayoclinic.org/comment/796597/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2023

After covid vaccine, my hemoglobin would not come back up despite oral iron and 5 iron...

https://connect.mayoclinic.org/comment/762659/

Discussion: Erythrocytosis: Any suggestions for low ferritin due to phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2022

Thank you for the suggestions but my bad guys are headed towards a very rare form...

https://connect.mayoclinic.org/comment/731681/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2022

There are antibodies that the body makes to fight diseases. There are five kinds IgD &...

https://connect.mayoclinic.org/comment/729426/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2022

Well Jackie, if you’ve ever read about me and my various post, I must have the...

https://connect.mayoclinic.org/comment/728920/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

Yes, definitely. I would appreciate any help with dealing physically and mentally with my Waldenstrom cancer....

https://connect.mayoclinic.org/comment/663064/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

Blood Cancers & Disorders Support Group