Blood Cancers & Disorders Support Group

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Comments (254)

My insurance will not cover my Octigam This new year and I can’t find a foundation...

https://connect.mayoclinic.org/comment/1481133/

Discussion: Will my Ruxience and octigam infusion a work if I stop taking my oral

Support Group: Blood Cancers & Disorders

Posted: Jan 13 7:53am

I have Waldenstroms an Parapapanol slow release helps my restless legs and tremors. Just an fyi.

https://connect.mayoclinic.org/comment/1454305/

Discussion: Essential tremors? Any tricks for making less?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2025

I was diagnosed with MZL in 2016 as a result of blood tests that showed an...

https://connect.mayoclinic.org/comment/1450217/

Discussion: Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2025

Waldenstroms cancer for two years and just diagnosed with menangiona after brain scan. Doc said will...

https://connect.mayoclinic.org/comment/1423721/

Discussion: Waldenstroms patient diagnosed with brain menigioma: What to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2025

Sorry to be so vague. I am not a physician but my husband was diagnosed with...

https://connect.mayoclinic.org/comment/1404778/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2025

Our genetics can sure play a large part in our lives beyond hair and eye color....

https://connect.mayoclinic.org/comment/1397184/

Discussion: What precautions are needed while on chemo for blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2025

Waldenstrom M is rare but it mimics myloma. There is a test to see if you...

https://connect.mayoclinic.org/comment/1371856/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2025

@kayabbott Good morning. I am also 71 and diagnosed with IGM MGUS in 2021. My BMB...

https://connect.mayoclinic.org/comment/1365445/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

Feel much better after immunotherapy infusions . Seems to be helping my Waldenstroms

https://connect.mayoclinic.org/comment/1329057/

Discussion: Anyone have Rituximab infusion for lymphoma treatment? Did it help?

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2025

Thanks for your reply, am in similar situation, diagnosed 3yrs ago, was informed that I have...

https://connect.mayoclinic.org/comment/1312780/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

3 yrs diagnosis waldenstrom, I agree with you about navigating the symptoms! Fatigue is my travelling...

https://connect.mayoclinic.org/comment/1311550/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 24, 2025

You are so very kind to reply...thank you so much! I don't know what MSUS is....

https://connect.mayoclinic.org/comment/1292018/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2025

Kabue9, Sorry to hear about your situation. I'm not really the person to answer your questions,...

https://connect.mayoclinic.org/comment/1290260/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2025

Welcome to Connect, @questions2023. Inqovi is a type of chemotherapy to treat patients with MDS (and...

https://connect.mayoclinic.org/comment/1281488/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2025

@karencan2025 Once you have more information, I am sure there will be relief from the "not...

https://connect.mayoclinic.org/comment/1268896/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2025

Not being a medical professional I am pretty much as confused as you. I do know...

https://connect.mayoclinic.org/comment/1267919/

Discussion: Dr wants to add immunoglobulins

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2025

Hi @ranchgal4sure! Ok, this is a really unique name and I’d love to hear the story...

https://connect.mayoclinic.org/comment/1247521/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2025

Any heart issues? They just found leaky valves that maybe caused by Waldenstroms or neds

https://connect.mayoclinic.org/comment/1217722/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2025

Just received second rituxin infusion for Waldenstroms and non hodgkins.Side effects much worse than first. Been...

https://connect.mayoclinic.org/comment/1208320/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2025

I am so sorry to hear about your dad’s side effects to Zanubrutinib. I recommend you...

https://connect.mayoclinic.org/comment/1149698/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2024