Blood Cancers & Disorders Support Group

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Comments (525)

So, we don’t even 100% know yet. Because it’s early stage. No itching. Just a faint...

https://connect.mayoclinic.org/comment/1111588/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Hello @susanflower and welcome to Mayo Clinic Connect. I am sorry to hear your itching and...

https://connect.mayoclinic.org/comment/764257/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2022

Sorry to hear about your condition.I too have itching burning all over, but I do have...

https://connect.mayoclinic.org/comment/1177636/

Discussion: High Eosinophils with pain in left side under ribs and very itchy

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2024

I’ve been on hydroxyurea for 3 mos. My platelet count was in normal range at last...

https://connect.mayoclinic.org/comment/1607924/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: 4 days ago

I have taken hydroxyurea (started at 500, went to 1000) for a year. I am 78....

https://connect.mayoclinic.org/comment/851807/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

@becky1024 I am a member of the same club, IgM light chain MGUS, that morphed into...

https://connect.mayoclinic.org/comment/731465/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2022

I was really surprised to find out that my primary doctor, dermatologist , ENT, eye doctor...

https://connect.mayoclinic.org/comment/1086360/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

@joyoushipsspine7 I joy. You sound very much like myself. Although I can walk a little more....

https://connect.mayoclinic.org/comment/1557317/

Discussion: Myelodysplastic Syndromes (MDS), leg weakness & walking

Support Group: Blood Cancers & Disorders

Posted: Apr 23 6:44am

Agree with the itching...this article made me chuckle because I asked my kid to get me...

https://connect.mayoclinic.org/comment/1315205/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 28, 2025

Thank you for your response. I had to take Hydrea for 18 months before I was...

https://connect.mayoclinic.org/comment/821980/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Hi @littlebluebird I’m so sorry your mom is having the nasty itchiness associated with MDS. As...

https://connect.mayoclinic.org/comment/1202303/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2025

I too experience chronic itching, primarily on my back and in the evening. I understand that...

https://connect.mayoclinic.org/comment/819136/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

I have PCV with Jak 2 . I take 2 baby aspirin a day and phlebotomy...

https://connect.mayoclinic.org/comment/919662/

Discussion: PV with high blood pressure and now edema??

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Fatigue is a major complaint. I nap almost every day. Taking 1000mg of hydroxyurea and baby...

https://connect.mayoclinic.org/comment/869738/

Discussion: Polycythemia Vera (PV) and fatigue: What helps?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

For me itch is always worse when anything rubs against my skin, after I dress or...

https://connect.mayoclinic.org/comment/1378234/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2025

Good evening @trillium. I just follow itching because I have now been suffering from the "itch"...

https://connect.mayoclinic.org/comment/337171/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2021

I get Procrit shots for my myelodysplastic syndrome which help a lot, BUT I'm also having...

https://connect.mayoclinic.org/comment/240723/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2019

For me it was the hemoglobin always within range (17-19) , I also feel tired most...

https://connect.mayoclinic.org/comment/1022926/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2024

Doing very well, thanks for asking, and the info. If I had to guess, itching ranks...

https://connect.mayoclinic.org/comment/769693/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2022

Were you started on that dose oh HU or was it increased gradually? I was started...

https://connect.mayoclinic.org/comment/1177357/

Discussion: palmar-plantar erythrodysesthesia and ET

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2024

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