Blood Cancers & Disorders: Discussions | Page 10

I am now 65 and have been taking Hydroxyurea for 10 years to keep my platelets...

https://connect.mayoclinic.org/comment/910025/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023

Hi @eansgardengirl, Welcome to Mayo Connect. You’ve come to the right place to connect with others...

https://connect.mayoclinic.org/comment/778367/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2022

There are a series of genetic tests that can be performed to help determine mutations, as...

https://connect.mayoclinic.org/comment/252004/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

Hello @ettap and welcome to Connect. It is good to see that you have confirmed your...

https://connect.mayoclinic.org/comment/194256/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2018

I have a different diagnosis than you so you can look at my list and substitute...

https://connect.mayoclinic.org/comment/1308354/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: 23 hours ago

My blood disorder was initially diagnosed as essential thrombocythemia but was later changed to myelofibrosis. My...

https://connect.mayoclinic.org/comment/1091333/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

I found an article for you that may help explain about the JAK2 gene and how...

https://connect.mayoclinic.org/comment/1142007/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2024

Hi Tom, There are quite a few members in the Connect forum who have been diagnosed...

https://connect.mayoclinic.org/comment/1076631/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

I had a TIA at the end of 2014. After seeing many Doctors one Doctor referred...

https://connect.mayoclinic.org/comment/803429/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2023

If you decide to take HU, try it a couple of times per week for a...

https://connect.mayoclinic.org/comment/1022375/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2024

I was recently diagnosed with Essential thrombocythemia. My platelet count was in the upper 700's. Hematologist...

https://connect.mayoclinic.org/comment/941461/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

You must have so many questions! You might want to use the search bar at the...

https://connect.mayoclinic.org/comment/1244801/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Feb 24 4:20pm

@1pearl, I found another member diagnosed with MF with the CALR mutation and have put the...

https://connect.mayoclinic.org/comment/1256632/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 10:51pm

Hi @mtnlife, we’re often our own worst enemies when it comes to all things medical. I...

https://connect.mayoclinic.org/comment/791520/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2023

Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene...

https://connect.mayoclinic.org/comment/969785/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

Good morning, @taisaint. Welcome you to Mayo Connect. You’ve recently been diagnosed Essential thrombocythemia and Polycythemia...

https://connect.mayoclinic.org/comment/967884/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2023

According to the Leukemia and Lymphoma Society and by the opinion of most doctors in the...

https://connect.mayoclinic.org/comment/1263596/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 21 3:00pm

Hey dunewalker, I did the bone marrow biopsy last week at Mayo and went over results...

https://connect.mayoclinic.org/comment/1293666/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 30 3:41pm

To eetap, 1) The JAK2 mutation is typically found either after a clotting event or routine...

https://connect.mayoclinic.org/comment/719531/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Hello @cherilynb Feeling that your doctors are dismissive is one of the most frustrating things. Especially...

https://connect.mayoclinic.org/comment/845127/

Discussion: Thrombocythemia - GP can’t find the cause

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

Blood Cancers & Disorders Support Group