Blood Cancers & Disorders Support Group

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Comments (298)

Thank you so much. My next appointment is March 13. They have been giving me a...

https://connect.mayoclinic.org/comment/808358/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Sounds like Essential Thrombocythemia (ET) which is one of the MPN diseases. I was originally diagnosed...

https://connect.mayoclinic.org/comment/328553/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2020

In 2018 I was diagnosed with Polycythemia Vera (PV) which is a sister to your essential...

https://connect.mayoclinic.org/comment/1219391/

Discussion: Any advice for taking Hydroxyurea when you're sick?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

I have recently been diagnosed with Essential Thrombocythemia as I had slightly elevated platelets on routine...

https://connect.mayoclinic.org/comment/1260307/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2025

Hi @dewz13 It’s not unusual for blood numbers to fluctuate when we receive vaccines. Most people...

https://connect.mayoclinic.org/comment/1549508/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Apr 13 9:42am

Thanks to katgob and janemc for your responses. I take the HU to lower my platelet...

https://connect.mayoclinic.org/comment/1217203/

Discussion: Any advice for taking Hydroxyurea when you're sick?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2025

Oh my - 12 BMB in 2 years! Wow. I am happy that you're experience with...

https://connect.mayoclinic.org/comment/607951/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2021

Welcome to Connect, @shellep16 As fellow member @eloise999 mentioned, an allogenic SCT (using donor cells) would...

https://connect.mayoclinic.org/comment/1324156/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025

Welcome, @lourdene. There are many members here living with essential thrombocythemia with JAK2. Specifically, I believe...

https://connect.mayoclinic.org/comment/788174/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2022

I’m extremely late to this as I’m sure that by now you’ve been either diagnosed or...

https://connect.mayoclinic.org/comment/1192993/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

Hello, carr62! Although it was written last year, I found this article helpful and comprehensive. This...

https://connect.mayoclinic.org/comment/1339253/

Discussion: Question for 2025 and ET Patients

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2025

@cmercer50 With ET (essential thrombocythemia) patients generally have an elevated platelet level above the normal range....

https://connect.mayoclinic.org/comment/1449923/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2025

Great to hear of someone doing well. Cheers. One thing I would say to consider, is...

https://connect.mayoclinic.org/comment/771273/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2022

After being diagnosed with ALL, then T-Cell large granular LL. I wondered by my platelets went...

https://connect.mayoclinic.org/comment/1325185/

Discussion: I am looking for advice on lab work and how to address my Dr about it

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2025

In 2004, I was diagnosed with Essential Thrombocythemia (ET) at the age of 32. This diagnosis...

https://connect.mayoclinic.org/comment/1225769/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2025

I am 65 years old and seem to be a rare male here. Not surprising since...

https://connect.mayoclinic.org/comment/1117080/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

Welcome @betherelynda and @arti4. I moved your recent posts about essential thrombocythemia and hydroxyurea to this...

https://connect.mayoclinic.org/comment/729870/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2022

Hi - I am new to this group and new to being diagnosis with ET (Platelets)...

https://connect.mayoclinic.org/comment/972281/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2023

Hi @cweible19782006 I just read through your reply and my first thought was, “Wow…with friends like...

https://connect.mayoclinic.org/comment/821825/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Hi Justin. Unfortunately, there are few responses regarding my questions about JAK2, Essential Thrombocythemia and Waldromstrom's...

https://connect.mayoclinic.org/comment/284527/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2019