Blood Cancers & Disorders Support Group

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Comments (310)

I am new to this group. My sister passed away with Light Chain Deposition Disease. Light...

https://connect.mayoclinic.org/comment/1485133/

Discussion: MGUS and pain

Support Group: Blood Cancers & Disorders

Posted: Jan 17 9:35pm

Hi @theodicy and welcome to Mayo Clinic’s Connect. Oh boy I do remember when I was...

https://connect.mayoclinic.org/comment/1489338/

Discussion: 41 yo female recently diagnosed with MGUS, looking for support

Support Group: Blood Cancers & Disorders

Posted: Jan 23 9:58am

@kkieft Welcome to Mayo Clinic Connect! My condolences on losing your sister, and kudos to you...

https://connect.mayoclinic.org/comment/1485490/

Discussion: MGUS and pain

Support Group: Blood Cancers & Disorders

Posted: Jan 18 10:43am

@theadosi Doing fine. Just live your life and don’t attribute any pain to MGUS progression. I...

https://connect.mayoclinic.org/comment/1491266/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 26 2:50pm

@freespirit60 so many “ologists” it’s hard to know what to ask for. They are all so...

https://connect.mayoclinic.org/comment/1477346/

Discussion: Seeking advice: MGUS and osteoporosis with severe bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jan 8 10:23am

Spontaneous Disappearance (Rare): In very rare instances, with very low levels of the abnormal protein (under...

https://connect.mayoclinic.org/comment/1479017/

Discussion: Does MGUS ever go away?

Support Group: Blood Cancers & Disorders

Posted: Jan 10 2:29pm

@circawdm And I hear you on exercise…. PT has been extremely helpful. They have also taught...

https://connect.mayoclinic.org/comment/1453828/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2025

@danaufkes hello and welcome to Mayo Clinics Connect. I hear a lot from members that their...

https://connect.mayoclinic.org/comment/1459565/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2025

@positivethinking it’s amazing how much “mixed messaging” is disseminated by the various “ologists” I see. I...

https://connect.mayoclinic.org/comment/1452798/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025

@tracypage I'm lucky in that mine doesn't include pain. I have IgA Kappa MGUS with a...

https://connect.mayoclinic.org/comment/1453677/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2025

So happy to see this topic! I have IgM Mgus and the neuropathy has been horrible....

https://connect.mayoclinic.org/comment/1453458/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2025

@positivethinking OK, here goes. This is NOT short. NO sugar is part of the Mediterranean Diet/Low-Inflammation...

https://connect.mayoclinic.org/comment/1453767/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2025

I was diagnosed with MGUS several years ago. I had a total hip replacement in August...

https://connect.mayoclinic.org/comment/1465527/

Discussion: Any concerns if you have MGUS and need joint replacement surgery?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2025

I have IGG Kappa MGUS and my m-Spike has continuously increased over the past 6 years....

https://connect.mayoclinic.org/comment/1454270/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2025

After 20 years of numbness and some pain lately with PN, I got tested and was...

https://connect.mayoclinic.org/comment/1458391/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2025

God knows I'm not defending callous or curt physicians - or anyone else, for that matter....

https://connect.mayoclinic.org/comment/1468496/

Discussion: Seeking advice: MGUS and osteoporosis with severe bone pain?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2025

@barbarian1 I got a BMB soon after my MGUS diagnosis nine years ago, initial ratio was...

https://connect.mayoclinic.org/comment/1432877/

Discussion: How high should my Kappa light chain continue to rise before I worry.?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2025

Hi... Chin up!! I have also been diagnosed in October 25' with MGUS. I lost my...

https://connect.mayoclinic.org/comment/1438021/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2025

@pmm hello. I was diagnosed about 3 years ago by an arthritis doctor after complaining about...

https://connect.mayoclinic.org/comment/1452689/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025

Has anyone been diagnosed with MGUS (monoclonal gammopathy of undetermined significance) and developed neuropathy? My doctors...

https://connect.mayoclinic.org/comment/1452565/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025