Support Groups

Bladder Cancer Support Group

Public Support Group
79 total results
Discussions (14)
Urothelial adenocarcinoma
I have mucin producing urothelial adenocarcinoma of the prostatic urethra with Mets. Preparing for round 3 of FOLFOX. Does anyone have any experience or knowledge...
Support Group: Bladder Cancer
Last active: Nov 23, 2023
Any experience with urothelial with squamous kidney cancer
I've been diagnosed with rare kidney cancer. Urothelial carcinoma with predominant (80%) squamous differentiation of my kidney. Kidney was removed last week. Stage is T3....
Support Group: Kidney Cancer
Last active: Apr 9 2:55pm
Metastastic urothelial carcinoma: Will further treatment help?
In March of 2023, I was diagnosed with urothelial carcinoma, MICU, with metastasis to both lungs. Since then I have been treated with cis/gem; (chemo)...
Support Group: Bladder Cancer
Last active: Mar 2 1:01pm
Diagnosed with High-Grade Urothelial Cell Carcinoma - ANYONE?
Looking for someone who is/has gone through HGUCC of the renal pelvis willing to share your experience, treatments, etc. Basically similar to high-grade bladder cancer...
Support Group: Bladder Cancer
Last active: Oct 15, 2023
Anyone dealing with UTUC (Upper Tract Urothelial Carcinoma)?
Diagnosed with non muscle invasive lowgrade UTUC. Have had three tumors ablated over the course of 1 1/2 years. Time to try Jelmyto?
Support Group: Bladder Cancer
Last active: Feb 23 10:23pm
Positive For High-Grade Urothelial Carcinoma on Urine Test
My husband is 63 yrs old and has had blood in his urine since September….it has been on and off. He told me about it...
Support Group: Bladder Cancer
Last active: Mar 1 1:03pm
Upper Tract Urothelial Carcinoma: Interested in ureter repair options
I have been diagnosed with a low-grade carcinoma tumor in my right ureter. Rather than a lifetime of ablation and uteroscopy treatments, I have opted...
Support Group: Bladder Cancer
Last active: Nov 27, 2023
Cytology: High-grade urothelial carcinoma to atypical sqamous cells
Hello everyone,My wife had cytology tests, cytoscopies and a CT urogram. Carcinoma cells were found in the urine but not yet the source.In particular, three...
Support Group: Bladder Cancer
Last active: Sep 26, 2024
CT scan standard for Papillary urothelial bladder cancer, high grade?
Hi!Im a female early 60's, who is new to this group. Very grateful to have this group. Challenging to find this support for bladder cancer.My...
Support Group: Bladder Cancer
Last active: Jul 27, 2024
Post-nephroureterectomy for UTUC - now abnormal bladder cells
I was diagnosed with high grade, muscle invasive Upper Tract Urothelial Carcinoma a year ago. After 12 cycles of Gemcitabin/Cisplatin, the right kidney, urether, bladder...
Support Group: Bladder Cancer
Last active: Apr 25, 2023
Encrusted Stent, Low Grade tumour Uterer & Kidney
My Sister was diagnosed in 2020 with High Grade Urothelial with Lamina Propria Invasion and CIS stage pT1 which was removed in Sept 2020, follow...
Support Group: Bladder Cancer
Last active: Jan 5 5:06pm
Looking to connect with people who had Cystectomy & Neobladder
Hi, I am a 63 year old physically fit male. I would like to talk with similar patients who have has cystectomy and neo bladder...
Support Group: Bladder Cancer
Last active: Jul 30, 2024
Stage IV UTUC / EV-Pembro / Nephroureterectomy: Advice For Caregivers?
Hi everyone,My otherwise vibrant and independent 80 year old mother was recently diagnosed with Stage IV (cTX, cN2, cM0) urothelial carcinoma of the left renal...
Support Group: Bladder Cancer
Last active: Feb 28 5:11pm
After 6 BCG treatments, biopsy is good: What is chance of recurrence?
Have papillarry uothelial carcinoma , high grade, had 6 treatmentsof BCG over 6 weeks, two month later had biopsy, result looks "good", chance of cancer...
Support Group: Bladder Cancer
Last active: Mar 28 6:38pm