Bladder Cancer Support Group

I have mucin producing urothelial adenocarcinoma of the prostatic urethra with Mets. Preparing for round 3 of FOLFOX. Does anyone have any experience or knowledge...

In March of 2023, I was diagnosed with urothelial carcinoma, MICU, with metastasis to both lungs. Since then I have been treated with cis/gem; (chemo)...

Looking for someone who is/has gone through HGUCC of the renal pelvis willing to share your experience, treatments, etc. Basically similar to high-grade bladder cancer...

I've been diagnosed with rare kidney cancer. Urothelial carcinoma with predominant (80%) squamous differentiation of my kidney. Kidney was removed last week. Stage is T3....

Diagnosed with non muscle invasive lowgrade UTUC. Have had three tumors ablated over the course of 1 1/2 years. Time to try Jelmyto?

I have been diagnosed with a low-grade carcinoma tumor in my right ureter. Rather than a lifetime of ablation and uteroscopy treatments, I have opted...

My husband is 63 yrs old and has had blood in his urine since September….it has been on and off. He told me about it...

Hello everyone,My wife had cytology tests, cytoscopies and a CT urogram. Carcinoma cells were found in the urine but not yet the source.In particular, three...

Hi!Im a female early 60's, who is new to this group. Very grateful to have this group. Challenging to find this support for bladder cancer.My...

My wife was diagnosed with bladder cancer in early 2025. Due to heart issues and age, surgical procedures were not viable. She completed a full...

I was diagnosed with high grade, muscle invasive Upper Tract Urothelial Carcinoma a year ago. After 12 cycles of Gemcitabin/Cisplatin, the right kidney, urether, bladder...

My husband has T2 with mixed histology, mostly urothelial cancer cells, about 40% adrenal cancer cells and 5% trophoblastic. TURBT removed 6cm CIS multifocal tumor...

My Sister was diagnosed in 2020 with High Grade Urothelial with Lamina Propria Invasion and CIS stage pT1 which was removed in Sept 2020, follow...

Hello everyone. I was diagnosed with UTUC (upper tract urothelial carcinoma) in 2022. It was staged at low grade non invasive. My first urologist wanted...

I have bladder cancer that has not spread to muscle. I'm 77, diabetic with one kidney already lost due to urothelial cancer, and scarring in...

I was diagnosed in Feb 2025 with High Grade Papillary Urothelial Carcinoma, stage Ta. It was a large tumor that was found. It took 3...

In April 2020, in my 50’s, I had a TURBT performed and the tumor (6cm) removed. Pathology revealed 95% small cell urothelial carcinoma and 5%...

Hi, I am a 63 year old physically fit male. I would like to talk with similar patients who have has cystectomy and neo bladder...

Hi everyone,My otherwise vibrant and independent 80 year old mother was recently diagnosed with Stage IV (cTX, cN2, cM0) urothelial carcinoma of the left renal...

Have papillarry uothelial carcinoma , high grade, had 6 treatmentsof BCG over 6 weeks, two month later had biopsy, result looks "good", chance of cancer...