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Bladder Cancer Support Group

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Discussions (15)
High Grade T1 bladder cancer prognosis
My husband has recently been diagnosed with high grade T1 bladder cancer after TURBT biopsy. He had TURBT on 10/09/25 and less than 5 tumors...
Support Group: Bladder Cancer
Last active: Nov 26, 2025
Recent diagnosis of early stage T1 NIMBC: Any tips?
Greetings. I am 69, and diagnosed in January with early stage T1 NIMBC. Was being treated for what was thought to be hematuria related kidney...
Support Group: Bladder Cancer
Last active: Apr 27 5:10pm
Scheduled for cystectomy with ileal conduit: What can I expect?
85 yo man, good health, have a T1 high grade urothelial malignancy, not muscle invasive. Had 2 TURBT, no chemo. Scheduled for open cystectomy with...
Support Group: Bladder Cancer
Last active: May 22 9:26am
2nd TURBT
My husband NMIBC: T1, high grade papilliary and a CIS tumor. His urologist did not recommend a 2nd TURBT. I found out about it by...
Support Group: Bladder Cancer
Last active: Jul 17 10:41am
My journey with Bacillus Calmette-Guerin (BCG) treatment
I’m a 77 year old female. I just started the first of six BCG treatments for T1 high grade bladder cancer. I was so worried...
Support Group: Bladder Cancer
Last active: Jun 29 8:13pm
Husband diagnosed with bladder cancer: I feel so alone
Hi,My husband had a tumor removed from his bladder. Biopsy results were conveyed to us as non life threatening bladder cancer. He had bloodwork and...
Support Group: Bladder Cancer
Last active: Dec 22, 2023
Advice and feedback from those who been treated with BCG
Like most who are just recently diagnosed with high-risk, hi grade Ta/T1 NMIBC, I am apprehensive on what is to come with BCG treatments. Some...
Support Group: Bladder Cancer
Last active: Apr 20 10:04am
Questions about sarcomatoid urothelial carcinoma
I don't know where to start. I want to help my friend Dale who recently got dx'd w this. I'm a critical care nurse. He...
Support Group: Bladder Cancer
Last active: Aug 12 12:40am
Looking for Direction on how to make the right treatment choices
My husband, a former longtime smoker (quit about a decade ago) was diagnosed with bladder cancer. No muscle invasion but high grade tumor(s). He starts...
Support Group: Bladder Cancer
Last active: Jul 12 9:34am
Questions to ask oncologist on first visit
What questions should we ask the oncologist that will be treating my husband's bladder cancer, muscle invasive, T2, N1? Thank you for your help.
Support Group: Bladder Cancer
Last active: Jan 15 8:57am
Newly diagnosed and TURBT in December 2022.
My urologist did two TURBT surgeries. My follow up appointment was 1-25-23. I was diagnosed with Ta HG non muscle invasive. He did a chemo...
Support Group: Bladder Cancer
Last active: Feb 8, 2023
No Evidence of Disease (NED)
Had my 4.5 years out cystoscopy yesterday. No evidence of disease, Praise God 🙌🙏 he will not send any pathology off this time. I was...
Support Group: Bladder Cancer
Last active: Jun 20 5:52am
Neobladder or Ileal Conduit, unsure
Hi - 57 year old male. Diagnosed with T1HG suspicious of being T2. RC scheduled for 10/8 and still have unsure if I want a...
Support Group: Bladder Cancer
Last active: May 30 7:01am
Stage 4 metastasized bladder cancer: Treatments not working, help
Hubby was diagnosed 20 years ago with PVAD artery disease, went thru 3 bypasses on left leg, plus stomach aneurysm, all in a 5 year...
Support Group: Bladder Cancer
Last active: Feb 10 8:43pm
Definitions and abbreviations: Recurrence vs reoccurrence
After my initial bladder cancer diagnosis I had my TURBT surgery. Three months following this surgery, a cystoscopy was performed and 5 tumors (4 small...
Support Group: Bladder Cancer
Last active: Feb 9 11:57am