Bladder Cancer Support Group

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Comments (119)

Hello @quahog. My husband chose RC with neobladder after a partial cystectomy ( diverticulum containing initial...

https://connect.mayoclinic.org/comment/1311687/

Discussion: Does getting a proactive radical cystectomy (RC) make sense?

Support Group: Bladder Cancer

Posted: May 24, 2025

I can empathize! My rashes are pretty much everywhere except bottom of my feet and face....

https://connect.mayoclinic.org/comment/1395342/

Discussion: What experience has anyone had with the Signatera blood test?

Support Group: Bladder Cancer

Posted: Sep 17, 2025

My husband was diagnosed in October 2023 with stage IIIB MIBC. It had spread to his...

https://connect.mayoclinic.org/comment/1219919/

Discussion: Cystectomy for muscle‐invasive bladder cancer (MIBC), now Keytruda

Support Group: Bladder Cancer

Posted: Jan 23, 2025

My husband is 2 years post diagnosis for high grade muscle invasive urothelial cell carcinoma. Located...

https://connect.mayoclinic.org/comment/641418/

Discussion: Any transplant recipients get chemo for bladder cancer?

Support Group: Bladder Cancer

Posted: Oct 2, 2021

Hi @cann1 and @sil839 My husband has been fighting MIBC, urothelial carcinoma with the plasmacytoid variant...

https://connect.mayoclinic.org/comment/1373453/

Discussion: Metastastic urothelial carcinoma: Will further treatment help?

Support Group: Bladder Cancer

Posted: Aug 18, 2025

My itch is on the hands and feet so I have to apply the cream on...

https://connect.mayoclinic.org/comment/1290202/

Discussion: Itchiness After Immunotherapy

Support Group: Bladder Cancer

Posted: Apr 26, 2025

@jaebug my husband has been through radical cystectomy/prostatectomy/neobladder surgery at Mayo Clinic in 12/21. He had...

https://connect.mayoclinic.org/comment/1230571/

Discussion: Cystectomy for muscle‐invasive bladder cancer (MIBC), now Keytruda

Support Group: Bladder Cancer

Posted: Feb 6, 2025

Hello @mgb007. My husband chose to have a neobladder surgery at Mayo Clinic 3 years ago...

https://connect.mayoclinic.org/comment/1110943/

Discussion: Looking to connect with people who had Cystectomy & Neobladder

Support Group: Bladder Cancer

Posted: Jul 24, 2024

Hello @louw and welcome to Connect. My husband has dealt with invasive bladder cancer for 5...

https://connect.mayoclinic.org/comment/1189590/

Discussion: Bladder Cancer Group: Introduce yourself and connect with others

Support Group: Bladder Cancer

Posted: Dec 13, 2024

I believe Keytruda is very dangerous and perhaps other alternatives should be tried first !000mg 95%...

https://connect.mayoclinic.org/comment/924467/

Discussion: Keytruda (urethral cancer): What's your experience?

Support Group: Bladder Cancer

Posted: Sep 5, 2023

I have high grade muscle invasive bladder cancer initially thought to be stage 2 after a...

https://connect.mayoclinic.org/comment/1388964/

Discussion: What experience has anyone had with the Signatera blood test?

Support Group: Bladder Cancer

Posted: Sep 7, 2025

I would like some help deciding how I should discuss future treatments for my high grade...

https://connect.mayoclinic.org/comment/920656/

Discussion: Diagnosed with High-Grade Urothelial Cell Carcinoma - ANYONE?

Support Group: Bladder Cancer

Posted: Aug 28, 2023

I am an 80 yr old and was diagnosed with high grade urothelial carcinoma in June...

https://connect.mayoclinic.org/comment/934557/

Discussion: Diagnosed with High-Grade Urothelial Cell Carcinoma - ANYONE?

Support Group: Bladder Cancer

Posted: Sep 22, 2023

Yes We are doing Good my husband and I. Healthy and grateful for it currently! Yes...

https://connect.mayoclinic.org/comment/260245/

Discussion: My dad has a mass on bladder and kidney not functioning

Support Group: Bladder Cancer

Posted: May 2, 2020

Hello @stanghbogdan1. It is not unusual for recurrence, or for BCG failure. My husband experienced this...

https://connect.mayoclinic.org/comment/1429103/

Discussion: BCG treatment done, but cystoscopy found new tumor: What next?

Support Group: Bladder Cancer

Posted: Nov 2, 2025

My husband is 2 years into dealing with highly aggressive urothelial cell carcinoma of the bladder....

https://connect.mayoclinic.org/comment/641416/

Discussion: Diagnosed with High-Grade Urothelial Cell Carcinoma - ANYONE?

Support Group: Bladder Cancer

Posted: Oct 2, 2021

I understand! I watched my dad fight so hard to beat it with all the latest...

https://connect.mayoclinic.org/comment/1136505/

Discussion: My dad has a mass on bladder and kidney not functioning

Support Group: Bladder Cancer

Posted: Sep 5, 2024

Glad your cystoscopies are clear. There could very well be a potential bladder cancer link to...

https://connect.mayoclinic.org/comment/1282858/

Discussion: Anyone treated with Adstiladrin for BCG-unresponsive bladder cancer?

Support Group: Bladder Cancer

Posted: Apr 15, 2025

I am so sorry to hear that you and your husband are going through this. I...

https://connect.mayoclinic.org/comment/695948/

Discussion: Husband diagnosed with bladder cancer: I feel so alone

Support Group: Bladder Cancer

Posted: Apr 4, 2022

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