Bladder Cancer Support Group

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Comments (119)

It was not Keytruda. I can’t recall the name of the drugs but he was part...

https://connect.mayoclinic.org/comment/150982/

Discussion: Anyone have small cell bladder cancer?

Support Group: Bladder Cancer

Posted: Jan 21, 2019

Your story is so similar to my 75 yr old husbands. First he did the laser...

https://connect.mayoclinic.org/comment/1529126/

Discussion: Jelmyto in my future

Support Group: Bladder Cancer

Posted: 4 days ago

So blessed and grateful! I wasn’t super clear above, I did have significant weight loss too....

https://connect.mayoclinic.org/comment/1520106/

Discussion: What to expect with EVP (Enfortumab Vedotin and Pembrolizumab)?

Support Group: Bladder Cancer

Posted: Mar 5 8:30am

It is not odd. It is logical. Pembrolizumab (Keytruda) boosts your immune system. It also removes...

https://connect.mayoclinic.org/comment/1290935/

Discussion: Itchiness After Immunotherapy

Support Group: Bladder Cancer

Posted: Apr 27, 2025

Welcome, @eddiesil. Holding a full bladder is really hard. As you prepare for your upcoming cystectomy,...

https://connect.mayoclinic.org/comment/1181843/

Discussion: Anyone been on Keytruda immunotherapy and switched treatments?

Support Group: Bladder Cancer

Posted: Nov 29, 2024

Looks like I am going similar route as you. Not having bladder removed yet but will...

https://connect.mayoclinic.org/comment/1147848/

Discussion: Anyone have treatment of BCG with Keytruda?

Support Group: Bladder Cancer

Posted: Sep 26, 2024

I have the hives from Keytruda as well. A dermatologist put me on a steroid cream,...

https://connect.mayoclinic.org/comment/931416/

Discussion: Keytruda: How to treat major skin rash over most of body ?

Support Group: Bladder Cancer

Posted: Sep 17, 2023

my thought.......define a time window for complete cancer elimination. using the keytruda. with oncology...get urology to...

https://connect.mayoclinic.org/comment/1376667/

Discussion: Keytruda working, but Surgery Inevitable

Support Group: Bladder Cancer

Posted: Aug 22, 2025

My mom had itchiness when taking EV-Pembro (Pembro is Keytruda, which is immunotherapy). We mostly managed...

https://connect.mayoclinic.org/comment/1285754/

Discussion: Itchiness After Immunotherapy

Support Group: Bladder Cancer

Posted: Apr 19, 2025

I had my bladder scraped twice and was treated with BCG. The cancer reoccurred one and...

https://connect.mayoclinic.org/comment/1147759/

Discussion: Anyone have treatment of BCG with Keytruda?

Support Group: Bladder Cancer

Posted: Sep 26, 2024

You may have seen my other posts, but just in case you haven’t, I suggest you...

https://connect.mayoclinic.org/comment/1186072/

Discussion: Cystectomy for muscle‐invasive bladder cancer (MIBC), now Keytruda

Support Group: Bladder Cancer

Posted: Dec 7, 2024

@dallio.... Welcome to Connect Bladder Cancer Chris. Not that you ever wanted to need to learn...

https://connect.mayoclinic.org/comment/1514293/

Discussion: What side effects did you have BCG bladder cancer treatment?

Support Group: Bladder Cancer

Posted: Feb 25 10:04am

We eventually resumed treatment with gembetazine via my Dr rec. However I had all kinds of...

https://connect.mayoclinic.org/comment/1318074/

Discussion: Issue with neuropathy with Padcev/Keytruda combo

Support Group: Bladder Cancer

Posted: Jun 1, 2025

This is my first post. I too have urothelial carcinoma with spread to the lungs diagnosed...

https://connect.mayoclinic.org/comment/1372923/

Discussion: Metastastic urothelial carcinoma: Will further treatment help?

Support Group: Bladder Cancer

Posted: Aug 17, 2025

Hi @hardtailsmsncom1, is sounds like you were having significant side effects from treatment that warranted stopping...

https://connect.mayoclinic.org/comment/1160538/

Discussion: Stopping keytruda after 5 years??

Support Group: Bladder Cancer

Posted: Oct 21, 2024

I believe I have the same rare cancer. Mucin producing urothelial adenocarcinoma with urethra primary and...

https://connect.mayoclinic.org/comment/924227/

Discussion: Keytruda (urethral cancer): What's your experience?

Support Group: Bladder Cancer

Posted: Sep 4, 2023

Hello @kirsten210. My husband had a highly aggressive muscle invasive urothelial cell carcinoma. At Mayo Clinic...

https://connect.mayoclinic.org/comment/1418048/

Discussion: Anyone have recurrence after the initial 6 BCG induction treatments?

Support Group: Bladder Cancer

Posted: Oct 18, 2025

I had six cycles of treatment with a full response after four. My treatments were done...

https://connect.mayoclinic.org/comment/1516912/

Discussion: What to expect with EVP (Enfortumab Vedotin and Pembrolizumab)?

Support Group: Bladder Cancer

Posted: Mar 1 6:21am

Hello @grannykaka. Welcome to Mayo Connect bladder cancer. Having muscle invasive aggressive urothelial cell carcinoma is...

https://connect.mayoclinic.org/comment/1320072/

Discussion: Muscle Invasive Bladder Cancer

Support Group: Bladder Cancer

Posted: Jun 4, 2025

There is a significant difference in that opdivo is not combined with padcev like keytruda. My...

https://connect.mayoclinic.org/comment/1260167/

Discussion: What experience has anyone had with the Signatera blood test?

Support Group: Bladder Cancer

Posted: Mar 17, 2025

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