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Public Support Group 39 total results
Discussion
Dealing with inclusion body myositis: Want to connect with others
I’ve had a confirmed dx since 2021 after being misdiagnosed in 2006 with dermatomyositis. My legs have started giving out, back muscles atrophied from neck...
Discussion
Inclusion Body Myositis: I'd like to talk with others
This is a form of muscular dystrophy that has no known cure.....I would enjoy someone to share the conversation about...there are several gene therapy trials...
Comment
Welcome, @karingroom. It must have been a blow to be diagnosed with inclusion body myositis (IBM)...
https://connect.mayoclinic.org/comment/947975/
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Hi @charlie01, I'd like to add my welcome along with @becsbuddy. You'll notice that I moved...
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My husband has Inclusion Body Myositis. He was misdiagnosed in 2006 with Poly myositis. He only...
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Hi @nmenonk2022 - I thought I would tag you from this existing discussion on Inclusive Body...
Comment
Seeking other people with IBM (inclusion body myositis). The most recent posting to this group is...
Discussion
Gum disorder resulting from Auto Immune diseases
During a normal dental cleaning visit the hygienist noted excess bleeding and asked me if I suffered from an auto Immune problem. I responded YES...
Discussion
IBM Anti-cN-1A (NT5c1A): 5x Normal
I posted this a while back but I put it in the wrong forum and couldn’t transfer it so figured I would create a new...
Discussion
Help me diagnose
Background and symptoms: I've been suffering from lower leg pain in both my legs (from knees to feet) for the past 3 years. The symptoms...
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