601 total results
Discussion
Tips wanted for daily activities with weak or painful hands, wrists
I was recently diagnosed with lupus, multiple connective tissue disorder and also fibromyalgia. IT seems to affect my hands and my wrists terribly causing weakness...
Discussion
Polyarteritis anyone?
I was recently diagnosed with Polyarteritis and I haven’t seen a rheumatologist yet(going on June 1st) My emotions are all over the place and although...
Discussion
DADS-M Neuropathy with Anti-Mag Antibodies...anybody else?
After 4 years of lower limbs weakness, I was recently diagnosed with Distal Acquired Demyelinating Symmetric with the M protein and tested positive for Anti-Mag...
Discussion
ANA of 1:320, chronic symptoms… anticlimactic bloodwork?
I’ve been several years without a diagnosis… I consistently have an ANA of 1:320 or 1:640 (nuclear homogenous) with worsening symptoms, such as chronic muscle...
Discussion
Relapse after GFAP
Hello everybody, my husband was diagnosed with GFAP in February 2025, he spent more than three months in hospital and in March he came back...
Discussion
Unnamed Autoimmune Disease
Hi All, I am new to this group. ANA Centromere 1:2560 Centromere B >8 My rheumatologist said I definitely have autoimmune disease but he is...
Discussion
For anyone who can't find a diagnosis: Undiagnosed Disease Network
If you are like me, and your options are getting slim, perhaps I can offer a new direction. I found this not too long ago....
Discussion
CLIPPERS: Looking to connect with others
Have you ever been told that you have Clippers disease and you’re thinking: “ what? I’ve never heard of such a thing! What on earth”?...
Discussion
MCTD- post recent diagnosis. How to manage with employer?
I was recently diagnosed with MCTD (Sept) after having numerous tests done and have seen rheumatologist twice. This last time he increased my dose of...
Discussion
Myasthenia gravis - can it come back?
I was diagnosed with MG at 21 and am now 69. For decades I had very serious difficulty walking, chewing, keeping my eyelids up, double...
Comment
I was diagnosed with PG three years ago. I have had Crohn's for 50 years. I...
https://connect.mayoclinic.org/comment/1501037/
Comment
@jerce Thank you for sharing. What are your other symptoms and treatments for scleroderma? Do you...
Comment
After 10 years of joint pain, spontaneous ligament ruptures and begging for help, I was diagnosed...
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