Support Groups

Autoimmune Diseases Support Group

Lock icon Public Support Group
Clear Search
337 total results
Discussions (16)
CPAP and OLP etc.
I've been using a CPAP for about a year and a half and suddenly I'm waking up with such dry mouth I know there has...
Support Group: Autoimmune Diseases
Last active: Feb 21 11:07am
Mouth rinse with coconut oil for oral lichen planus
Has anyone tried swishing coconut oil to help OLP? I heard about this recently. I don't know if you are to rinse with water afterwards...
Support Group: Autoimmune Diseases
Last active: Jul 1, 2025
Oral lichen planus-burning mouth syndrome
Do any of you with OLP also have “burning mouth syndrome “ - the feeling of having eaten pepper all of the time? Just curious.
Support Group: Autoimmune Diseases
Last active: Feb 26 9:59am
Oral Lichen Planus: How do you cope with it?
I have been diagnosed with oral lichen planus for over 12 years. Originally it was mild and able to control with Duke’s Mouthwash. In last...
Support Group: Autoimmune Diseases
Last active: Aug 24, 2025
Oral liken planus
Does anyone else have OLP lesion on lower lip? So difficult to eat... Dr google says it very rare for it to be on the...
Support Group: Autoimmune Diseases
Last active: Oct 7, 2025
Oral Lichen Planus
Hello I have had OLP for many years. It always presented on the side of my tongue or inside my cheeks. In 2016 I got...
Support Group: Autoimmune Diseases
Last active: Mar 2 2:55pm
Has anyone used Hydroxychloroquine (Plaquenil) for oral lichen planus?
Are there any sucess stories out ther for OLP. I just quit Low dose Naltrexone after taking for 3 months. While I think it works...
Support Group: Autoimmune Diseases
Last active: 1 day ago
Has anyone used Rinvoq for oral lichen planus??
I read on another site about great success with this drug. She knows OLP isn't curable, but says all of her symptoms have disappeared with...
Support Group: Autoimmune Diseases
Last active: Jan 12 8:53am
Oral Lichen Planus Flare-Ups and Covid Questions
I am a new member of the Group. Thank you for the chance to share and to learn. I have Two Questions for the group:...
Support Group: Autoimmune Diseases
Last active: Aug 5, 2025
Oral Lichen Planus, how are you coping?
I was diagnosed with erosive OLP in May. I have drastically changed my diet and bevergaes. What happens when you get sick like a cold...
Support Group: Autoimmune Diseases
Last active: Dec 24, 2025
Oral Lichen Planus - my new dental treatment plan...
I am so frustrated with my current dentist. I am loosing teeth - six in the last year and another currently needs to be pulled...
Support Group: Autoimmune Diseases
Last active: Jan 2, 2025
Oral Lichen Planus and CPAP
I’ve been treated for erosive Oral Lichen Planus for several years. I see a dermatologist at UAB in Birmingham, AL who specializes in OLP. I...
Support Group: Autoimmune Diseases
Last active: Feb 10, 2025
Oral Lichen Planus food/drink triggers
Greetings! I've just re-read EVERY post & response here re: OLP, and made a list of multiple meds and treatments that folks have found helpful....
Support Group: Autoimmune Diseases
Last active: 6 days ago
Systemic Lichen Planus - rare, aggressive mucosal variant of LP
Hi! I was recently diagnosed with systemic LP. I would love to connect w/ others who are also trying to understand & manage a systemic...
Support Group: Autoimmune Diseases
Last active: Nov 19, 2025