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Autoimmune Diseases Support Group

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Discussions (61)
Tips wanted for daily activities with weak or painful hands, wrists
I was recently diagnosed with lupus, multiple connective tissue disorder and also fibromyalgia. IT seems to affect my hands and my wrists terribly causing weakness...
Support Group: Aging Well
Last active: May 3, 2023
Polyarteritis anyone?
I was recently diagnosed with Polyarteritis and I haven’t seen a rheumatologist yet(going on June 1st) My emotions are all over the place and although...
Support Group: Autoimmune Diseases
Last active: Jun 20, 2024
DADS-M Neuropathy with Anti-Mag Antibodies...anybody else?
After 4 years of lower limbs weakness, I was recently diagnosed with Distal Acquired Demyelinating Symmetric with the M protein and tested positive for Anti-Mag...
Support Group: Neuropathy
Last active: Feb 12, 2025
ANA of 1:320, chronic symptoms… anticlimactic bloodwork?
I’ve been several years without a diagnosis… I consistently have an ANA of 1:320 or 1:640 (nuclear homogenous) with worsening symptoms, such as chronic muscle...
Support Group: Autoimmune Diseases
Last active: Aug 4, 2025
Relapse after GFAP
Hello everybody, my husband was diagnosed with GFAP in February 2025, he spent more than three months in hospital and in March he came back...
Support Group: Autoimmune Diseases
Last active: Oct 17, 2025
Unnamed Autoimmune Disease
Hi All, I am new to this group. ANA Centromere 1:2560 Centromere B >8 My rheumatologist said I definitely have autoimmune disease but he is...
Support Group: Autoimmune Diseases
Last active: Feb 24, 2023
For anyone who can't find a diagnosis: Undiagnosed Disease Network
If you are like me, and your options are getting slim, perhaps I can offer a new direction. I found this not too long ago....
Support Group: Autoimmune Diseases
Last active: Jan 27, 2023
CLIPPERS: Looking to connect with others
Have you ever been told that you have Clippers disease and you’re thinking: “ what? I’ve never heard of such a thing! What on earth”?...
Support Group: Autoimmune Diseases
Last active: Jan 5 7:07pm
MCTD- post recent diagnosis. How to manage with employer?
I was recently diagnosed with MCTD (Sept) after having numerous tests done and have seen rheumatologist twice. This last time he increased my dose of...
Support Group: Autoimmune Diseases
Last active: Feb 19, 2025
Myasthenia gravis - can it come back?
I was diagnosed with MG at 21 and am now 69. For decades I had very serious difficulty walking, chewing, keeping my eyelids up, double...
Support Group: Autoimmune Diseases
Last active: Mar 19, 2025
Lifting weights - Does it increase inflammation levels?
I was diagnosed with MTD 8 years ago, although I believe I had been living with it for at least 7 years at that point....
Support Group: Autoimmune Diseases
Last active: Aug 23, 2022
Multiple overlapping symptoms for years - autoimmune, dysautonomia
I’m 32 and have been dealing with a wide range of chronic health issues for many years. It’s been difficult to get clear answers or...
Support Group: Autoimmune Diseases
Last active: Sep 26, 2025
PsA or C.R.E.S.T. ??
At first, 3 years ago, I was diagnosed with "Limited" CREST, then a different Rheumatologist, who examined me in person, diagnosed me as having PsA....
Support Group: Autoimmune Diseases
Last active: Mar 28, 2025
Multiple autoimmune conditions and too many meds
I an a 60 yr old female with out any underlying medical problems (diabetes, heart problems, high, cholesterol etc) I was diagnosed and treated with...
Support Group: Autoimmune Diseases
Last active: Aug 29, 2022
Anyone here with Anti-TIF-1γ Antibody-Positive Dermatomyositis?
I've tried multiple biologics but never been able to get off steroids. In 2022/23, I had 4 bouts of back-to-back Covid infections (despite being fully...
Support Group: Autoimmune Diseases
Last active: Feb 16 2:16pm
Cardio PET Scan for Potential Autoimmune problem(s)
Hello,I have been diagnosed with Sjogren's syndrome and I have most of the classic symptoms- extreme dry eye, dry nasal passages and joint pain. etc....
Support Group: Autoimmune Diseases
Last active: Oct 20, 2023
Dysphagia
Hi. I joined a few groups because I developed several serious health issues from chemo for NHL. That was 20 years ago. The first side...
Support Group: Autoimmune Diseases
Last active: Aug 15, 2025
Diagnosed with bartonella
I am reaching out because I am hoping for some help treating Bartonella that my natural path diagnosed me with. I have been actively trying...
Support Group: Autoimmune Diseases
Last active: Aug 23, 2025
Help with mixed testing results and next steps
Hello everyone, I am on a diagnostic journey for an unknown disease that has AI-like symptoms. Briefly, they include: chronic fatigue, joint stiffness and paint...
Support Group: Autoimmune Diseases
Last active: Jul 3, 2025
At a loss, multiple consultations still no answer...any idea?
In the last year my health has rapidly declined, I've recently had a blood test which was normal except for my folate which was low....
Support Group: Autoimmune Diseases
Last active: Feb 25, 2025