558 total results
Discussions (54)
Tips wanted for daily activities with weak or painful hands, wrists
I was recently diagnosed with lupus, multiple connective tissue disorder and also fibromyalgia. IT seems to affect my hands and my wrists terribly causing weakness...
Cannot Regulate Body Temperature
I am at the end of my rope. I am having issues regulating my body temperature and no one can seem to tell me what...
Polyarteritis anyone?
I was recently diagnosed with Polyarteritis and I haven’t seen a rheumatologist yet(going on June 1st) My emotions are all over the place and although...
DADS-M Neuropathy with Anti-Mag Antibodies...anybody else?
After 4 years of lower limbs weakness, I was recently diagnosed with Distal Acquired Demyelinating Symmetric with the M protein and tested positive for Anti-Mag...
Diagnosed with bartonella
I am reaching out because I am hoping for some help treating Bartonella that my natural path diagnosed me with. I have been actively trying...
Help with mixed testing results and next steps
Hello everyone, I am on a diagnostic journey for an unknown disease that has AI-like symptoms. Briefly, they include: chronic fatigue, joint stiffness and paint...
Unnamed Autoimmune Disease
Hi All, I am new to this group. ANA Centromere 1:2560 Centromere B >8 My rheumatologist said I definitely have autoimmune disease but he is...
For anyone who can't find a diagnosis: Undiagnosed Disease Network
If you are like me, and your options are getting slim, perhaps I can offer a new direction. I found this not too long ago....
MCTD- post recent diagnosis. How to manage with employer?
I was recently diagnosed with MCTD (Sept) after having numerous tests done and have seen rheumatologist twice. This last time he increased my dose of...
Myopathy with Celiac Disease?
I am wondering about other people's experience of myopathy with Celiac Disease. How long does it take to heal and regain full movement of limbs?...
Myasthenia gravis - can it come back?
I was diagnosed with MG at 21 and am now 69. For decades I had very serious difficulty walking, chewing, keeping my eyelids up, double...
Lifting weights - Does it increase inflammation levels?
I was diagnosed with MTD 8 years ago, although I believe I had been living with it for at least 7 years at that point....
Facing my first rheumatology appointment tomorrow
Hi everyone, this is my first time writing on the internet, so I hope it’s okay if this is a little long, it’s my first...
PsA or C.R.E.S.T. ??
At first, 3 years ago, I was diagnosed with "Limited" CREST, then a different Rheumatologist, who examined me in person, diagnosed me as having PsA....
Cardio PET Scan for Potential Autoimmune problem(s)
Hello,I have been diagnosed with Sjogren's syndrome and I have most of the classic symptoms- extreme dry eye, dry nasal passages and joint pain. etc....
Multiple autoimmune conditions and too many meds
I an a 60 yr old female with out any underlying medical problems (diabetes, heart problems, high, cholesterol etc) I was diagnosed and treated with...
At a loss, multiple consultations still no answer...any idea?
https://connect.mayoclinic.org/discussion/at-a-loss-multiple-consultations-still-no-answer-any-idea/
In the last year my health has rapidly declined, I've recently had a blood test which was normal except for my folate which was low....
Dealing with brain fog: What helps you?
I’m 51 years old and new to the psoriatic arthritis auto immune world, having been diagnosed two years ago. My symptoms kicked into high gear...
Extreme fatigue and pain
I currently have stenosis in cervical, thoracic, and lumbar regions of my back with a pinched nerve root at L2. I have had 4 surgeries...
Struggling to find answers.
Hello I am an 18 year old female and I need answers. For background, i have juvenile myoclonic epilepsy, and i am on lamictal for...