604 total results
Discussions (61)
Tips wanted for daily activities with weak or painful hands, wrists
I was recently diagnosed with lupus, multiple connective tissue disorder and also fibromyalgia. IT seems to affect my hands and my wrists terribly causing weakness...
Polyarteritis anyone?
I was recently diagnosed with Polyarteritis and I haven’t seen a rheumatologist yet(going on June 1st) My emotions are all over the place and although...
DADS-M Neuropathy with Anti-Mag Antibodies...anybody else?
After 4 years of lower limbs weakness, I was recently diagnosed with Distal Acquired Demyelinating Symmetric with the M protein and tested positive for Anti-Mag...
ANA of 1:320, chronic symptoms… anticlimactic bloodwork?
I’ve been several years without a diagnosis… I consistently have an ANA of 1:320 or 1:640 (nuclear homogenous) with worsening symptoms, such as chronic muscle...
Relapse after GFAP
Hello everybody, my husband was diagnosed with GFAP in February 2025, he spent more than three months in hospital and in March he came back...
Unnamed Autoimmune Disease
Hi All, I am new to this group. ANA Centromere 1:2560 Centromere B >8 My rheumatologist said I definitely have autoimmune disease but he is...
For anyone who can't find a diagnosis: Undiagnosed Disease Network
If you are like me, and your options are getting slim, perhaps I can offer a new direction. I found this not too long ago....
CLIPPERS: Looking to connect with others
Have you ever been told that you have Clippers disease and you’re thinking: “ what? I’ve never heard of such a thing! What on earth”?...
MCTD- post recent diagnosis. How to manage with employer?
I was recently diagnosed with MCTD (Sept) after having numerous tests done and have seen rheumatologist twice. This last time he increased my dose of...
Myasthenia gravis - can it come back?
I was diagnosed with MG at 21 and am now 69. For decades I had very serious difficulty walking, chewing, keeping my eyelids up, double...
Lifting weights - Does it increase inflammation levels?
I was diagnosed with MTD 8 years ago, although I believe I had been living with it for at least 7 years at that point....
Multiple overlapping symptoms for years - autoimmune, dysautonomia
I’m 32 and have been dealing with a wide range of chronic health issues for many years. It’s been difficult to get clear answers or...
PsA or C.R.E.S.T. ??
At first, 3 years ago, I was diagnosed with "Limited" CREST, then a different Rheumatologist, who examined me in person, diagnosed me as having PsA....
Multiple autoimmune conditions and too many meds
I an a 60 yr old female with out any underlying medical problems (diabetes, heart problems, high, cholesterol etc) I was diagnosed and treated with...
Anyone here with Anti-TIF-1γ Antibody-Positive Dermatomyositis?
I've tried multiple biologics but never been able to get off steroids. In 2022/23, I had 4 bouts of back-to-back Covid infections (despite being fully...
Cardio PET Scan for Potential Autoimmune problem(s)
Hello,I have been diagnosed with Sjogren's syndrome and I have most of the classic symptoms- extreme dry eye, dry nasal passages and joint pain. etc....
Dysphagia
Hi. I joined a few groups because I developed several serious health issues from chemo for NHL. That was 20 years ago. The first side...
Diagnosed with bartonella
I am reaching out because I am hoping for some help treating Bartonella that my natural path diagnosed me with. I have been actively trying...
Help with mixed testing results and next steps
Hello everyone, I am on a diagnostic journey for an unknown disease that has AI-like symptoms. Briefly, they include: chronic fatigue, joint stiffness and paint...
At a loss, multiple consultations still no answer...any idea?
https://connect.mayoclinic.org/discussion/at-a-loss-multiple-consultations-still-no-answer-any-idea/
In the last year my health has rapidly declined, I've recently had a blood test which was normal except for my folate which was low....
Connect