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Autoimmune Diseases Support Group

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558 total results
Discussions (54)
Tips wanted for daily activities with weak or painful hands, wrists
I was recently diagnosed with lupus, multiple connective tissue disorder and also fibromyalgia. IT seems to affect my hands and my wrists terribly causing weakness...
Support Group: Aging Well
Last active: May 3, 2023
Cannot Regulate Body Temperature
I am at the end of my rope. I am having issues regulating my body temperature and no one can seem to tell me what...
Support Group: Autoimmune Diseases
Last active: Jul 28 11:42pm
Polyarteritis anyone?
I was recently diagnosed with Polyarteritis and I haven’t seen a rheumatologist yet(going on June 1st) My emotions are all over the place and although...
Support Group: Autoimmune Diseases
Last active: Jun 20, 2024
DADS-M Neuropathy with Anti-Mag Antibodies...anybody else?
After 4 years of lower limbs weakness, I was recently diagnosed with Distal Acquired Demyelinating Symmetric with the M protein and tested positive for Anti-Mag...
Support Group: Neuropathy
Last active: Feb 12 8:17am
Diagnosed with bartonella
I am reaching out because I am hoping for some help treating Bartonella that my natural path diagnosed me with. I have been actively trying...
Support Group: Autoimmune Diseases
Last active: Jul 16 9:14pm
Help with mixed testing results and next steps
Hello everyone, I am on a diagnostic journey for an unknown disease that has AI-like symptoms. Briefly, they include: chronic fatigue, joint stiffness and paint...
Support Group: Autoimmune Diseases
Last active: Jul 3 6:06pm
Unnamed Autoimmune Disease
Hi All, I am new to this group. ANA Centromere 1:2560 Centromere B >8 My rheumatologist said I definitely have autoimmune disease but he is...
Support Group: Autoimmune Diseases
Last active: Feb 24, 2023
For anyone who can't find a diagnosis: Undiagnosed Disease Network
If you are like me, and your options are getting slim, perhaps I can offer a new direction. I found this not too long ago....
Support Group: Autoimmune Diseases
Last active: Jan 27, 2023
MCTD- post recent diagnosis. How to manage with employer?
I was recently diagnosed with MCTD (Sept) after having numerous tests done and have seen rheumatologist twice. This last time he increased my dose of...
Support Group: Autoimmune Diseases
Last active: Feb 19 1:02pm
Myopathy with Celiac Disease?
I am wondering about other people's experience of myopathy with Celiac Disease. How long does it take to heal and regain full movement of limbs?...
Support Group: Autoimmune Diseases
Last active: Jul 22 10:32pm
Myasthenia gravis - can it come back?
I was diagnosed with MG at 21 and am now 69. For decades I had very serious difficulty walking, chewing, keeping my eyelids up, double...
Support Group: Autoimmune Diseases
Last active: Mar 19 5:34pm
Lifting weights - Does it increase inflammation levels?
I was diagnosed with MTD 8 years ago, although I believe I had been living with it for at least 7 years at that point....
Support Group: Autoimmune Diseases
Last active: Aug 23, 2022
Facing my first rheumatology appointment tomorrow
Hi everyone, this is my first time writing on the internet, so I hope it’s okay if this is a little long, it’s my first...
Support Group: Autoimmune Diseases
Last active: Jul 13 6:38pm
PsA or C.R.E.S.T. ??
At first, 3 years ago, I was diagnosed with "Limited" CREST, then a different Rheumatologist, who examined me in person, diagnosed me as having PsA....
Support Group: Autoimmune Diseases
Last active: Mar 28 12:02pm
Cardio PET Scan for Potential Autoimmune problem(s)
Hello,I have been diagnosed with Sjogren's syndrome and I have most of the classic symptoms- extreme dry eye, dry nasal passages and joint pain. etc....
Support Group: Autoimmune Diseases
Last active: Oct 20, 2023
Multiple autoimmune conditions and too many meds
I an a 60 yr old female with out any underlying medical problems (diabetes, heart problems, high, cholesterol etc) I was diagnosed and treated with...
Support Group: Autoimmune Diseases
Last active: Aug 29, 2022
At a loss, multiple consultations still no answer...any idea?
In the last year my health has rapidly declined, I've recently had a blood test which was normal except for my folate which was low....
Support Group: Autoimmune Diseases
Last active: Feb 25 11:53am
Dealing with brain fog: What helps you?
I’m 51 years old and new to the psoriatic arthritis auto immune world, having been diagnosed two years ago. My symptoms kicked into high gear...
Support Group: Autoimmune Diseases
Last active: Feb 1 5:49am
Extreme fatigue and pain
I currently have stenosis in cervical, thoracic, and lumbar regions of my back with a pinched nerve root at L2. I have had 4 surgeries...
Support Group: Spine Health
Last active: Jun 21, 2020
Struggling to find answers.
Hello I am an 18 year old female and I need answers. For background, i have juvenile myoclonic epilepsy, and i am on lamictal for...
Support Group: Autoimmune Diseases
Last active: Sep 9, 2024