Autoimmune Diseases Support Group

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Comments (174)

I had a hysterectomy and bilateral oophorectomy in 1972 at age 31. Over the years, I...

https://connect.mayoclinic.org/comment/676668/

Discussion: Lichen Sclerosus: Any other women dealing with this disease?

Support Group: Women's Health

Posted: Jan 31, 2022

How fortunate you are to have no more lichen sclerosis. I don't think I have ever...

https://connect.mayoclinic.org/comment/183382/

Discussion: Treatments for Lichen sclerosis besides steroids

Support Group: Autoimmune Diseases

Posted: Dec 13, 2020

I am so sorry to hear of your problem. I have it too. Was diagnosed 2...

https://connect.mayoclinic.org/comment/183354/

Discussion: Treatments for Lichen sclerosis besides steroids

Support Group: Autoimmune Diseases

Posted: Dec 9, 2019

ACV = Apple Cider VInegar too acidic for me, unless super diluted- i used to use...

https://connect.mayoclinic.org/comment/1311855/

Discussion: Erosive oral lichen planus

Support Group: Autoimmune Diseases

Posted: May 24, 2025

I wonder if laying down a layer of silicone gel sheeting right along the crease would...

https://connect.mayoclinic.org/comment/1082182/

Discussion: Underwear options when lichen sclerosis flares

Support Group: Autoimmune Diseases

Posted: Jun 7, 2024

@Imgreg17. Hello Greg. I don't really know the difference between lichen sclerosis and lichen planus but...

https://connect.mayoclinic.org/comment/647090/

Discussion: Treatments for Lichen sclerosis besides steroids

Support Group: Autoimmune Diseases

Posted: Oct 21, 2021

I've been dealing with lichen sclerosis for around 3 years now. I had a lot of...

https://connect.mayoclinic.org/comment/136883/

Discussion: Lichen Sclerosus: Any other women dealing with this disease?

Support Group: Women's Health

Posted: May 16, 2017

Has anyone had any experiences with Otezla? I will be starting on it as soon as...

https://connect.mayoclinic.org/comment/982256/

Discussion: Biologic caused infections

Support Group: Autoimmune Diseases

Posted: Dec 17, 2023

I have had Lichen Sclerosis for over 2 decades now. Started having symptoms shortly after menopause...

https://connect.mayoclinic.org/comment/828584/

Discussion: Treatments for Lichen sclerosis besides steroids

Support Group: Autoimmune Diseases

Posted: Mar 19, 2023

I always read anything new on this issue and have so much sympathy for all of...

https://connect.mayoclinic.org/comment/183392/

Discussion: Treatments for Lichen sclerosis besides steroids

Support Group: Autoimmune Diseases

Posted: Jan 19, 2021

I do sympathize with you and know exactly what you are going through. The mental anguish...

https://connect.mayoclinic.org/comment/778540/

Discussion: Lichen Sclerosus: Any other women dealing with this disease?

Support Group: Women's Health

Posted: Nov 28, 2022

I have had lichen sclerosis for over 10 years. My gynecologist advises me to use Halobetasol...

https://connect.mayoclinic.org/comment/183371/

Discussion: Treatments for Lichen sclerosis besides steroids

Support Group: Autoimmune Diseases

Posted: Aug 11, 2020

AIH is so hard to diagnose…I don’t understand why it’s not standard testing nowadays if you...

https://connect.mayoclinic.org/comment/1244690/

Discussion: Autoimmune Hepatitis and remission?

Support Group: Autoimmune Diseases

Posted: Feb 24, 2025

I recently read that oxalates are bad for li hens spinach was on the don't eat...

https://connect.mayoclinic.org/comment/819955/

Discussion: Esophageal Lichen Planus

Support Group: Autoimmune Diseases

Posted: Mar 2, 2023

I concur. LS must be treated although it always comes back. It could be worse without...

https://connect.mayoclinic.org/comment/183379/

Discussion: Treatments for Lichen sclerosis besides steroids

Support Group: Autoimmune Diseases

Posted: Dec 12, 2020

I am glad that Lichen Sclerosis is getting some visibility as a result of patients sharing...

https://connect.mayoclinic.org/comment/769673/

Discussion: Lichen Sclerosus: Any other women dealing with this disease?

Support Group: Women's Health

Posted: Nov 5, 2022

@lpx3 So sorry to hear these struggles Flovent HFA 220 had been helping me- by swallowing,...

https://connect.mayoclinic.org/comment/1410392/

Discussion: Oral lichen Planus: What home remedies or medications help you?

Support Group: Autoimmune Diseases

Posted: Oct 7, 2025

@analia, I have had lichen sclerosis for about 10 years. It is awful, no matter what...

https://connect.mayoclinic.org/comment/740428/

Discussion: Lichen Sclerosus: Any other women dealing with this disease?

Support Group: Women's Health

Posted: Aug 22, 2022

I bike a lot, up to 7000 mi/year and have a 70 yo crotch, an ischial...

https://connect.mayoclinic.org/comment/1105827/

Discussion: Lichen Sclerosis and riding a bike

Support Group: Autoimmune Diseases

Posted: Jul 15, 2024

Thank you for your concern. My symptoms changed through the years. I went to Mayo because...

https://connect.mayoclinic.org/comment/322100/

Discussion: Someone help me to interpret results of anti-nuclear antibody tests?

Support Group: Autoimmune Diseases

Posted: Sep 17, 2020

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