Autoimmune Diseases Support Group

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Comments (322)

Hi, I have OLP also. I also have LP on my skin and Esophageal Lichen Planus,...

https://connect.mayoclinic.org/comment/1357340/

Discussion: Oral Lichen Planus and LANAP

Support Group: Autoimmune Diseases

Posted: Jul 27, 2025

Hi! I was diagnosed with ELP 2 years ago. I've had biopsies, stretching etc... I've already...

https://connect.mayoclinic.org/comment/1111897/

Discussion: Esophageal Lichen Planus

Support Group: Autoimmune Diseases

Posted: Jul 25, 2024

I really appreciate everyone posting on these OLP threads. I have learned a lot and am...

https://connect.mayoclinic.org/comment/1524871/

Discussion: Oral Lichen Planus food/drink triggers

Support Group: Autoimmune Diseases

Posted: Mar 11 7:06pm

Thank you for the information. I would have thought being near John Hopkins would give me...

https://connect.mayoclinic.org/comment/1196619/

Discussion: Oral Lichen Planus: How do you cope with it?

Support Group: Autoimmune Diseases

Posted: Dec 24, 2024

I have oral lichen planus. It developed a year or so after I started with LP...

https://connect.mayoclinic.org/comment/1503867/

Discussion: Oral Lichen Planus: What meds & treatments have worked for you?

Support Group: Autoimmune Diseases

Posted: Feb 12 9:47am

@seekingcure101 and @becsbuddy I have been prescribed Lyderm gel (off label) for my OLP by an...

https://connect.mayoclinic.org/comment/1363514/

Discussion: betaderm for oral lichen planus

Support Group: Autoimmune Diseases

Posted: Aug 4, 2025

@gypsyblue: Way too many! I went to a Functional Medicine doctor about 12 years ago for...

https://connect.mayoclinic.org/comment/1514743/

Discussion: Oral lichen planus-burning mouth syndrome

Support Group: Autoimmune Diseases

Posted: Feb 25 11:28pm

Hello @lcr, I thought I would post your question from the PMR and the new Shingles...

https://connect.mayoclinic.org/comment/665760/

Discussion: Erosive oral lichen planus

Support Group: Autoimmune Diseases

Posted: Dec 28, 2021

@mskatrina12 Hello. I was diagnosed with OLP a year ago and 3 or 4 doctors have...

https://connect.mayoclinic.org/comment/654666/

Discussion: Erosive oral lichen planus

Support Group: Autoimmune Diseases

Posted: Nov 16, 2021

Hi the biopsy was at an oral surgeon's office On the bottom lower outer cheek next...

https://connect.mayoclinic.org/comment/1427646/

Discussion: Oral Lichen Planus, how are you coping?

Support Group: Autoimmune Diseases

Posted: Oct 31, 2025

@gillysmom- well it sounds like you have an unusually bad situation. I too had a very...

https://connect.mayoclinic.org/comment/761565/

Discussion: AIP diet for autoimmune illnesses

Support Group: Autoimmune Diseases

Posted: Oct 15, 2022

I am on my 2nd month of Low dose naltrexone. I just titrated from 1.5 mg...

https://connect.mayoclinic.org/comment/1500483/

Discussion: Anyone else dealing with painful mouth sores and burning mouth?

Support Group: Autoimmune Diseases

Posted: Feb 7 5:48pm

Maryz: I also have OLP in my mouth and sometimes in vagina and/or scalp. I use...

https://connect.mayoclinic.org/comment/1240782/

Discussion: Oral lichen Planus: What home remedies or medications help you?

Support Group: Autoimmune Diseases

Posted: Feb 19, 2025

Hello @gerrmany2 I have had Lichen Planus since 1982 (37 years) discovered when a biopsy was...

https://connect.mayoclinic.org/comment/143884/

Discussion: Erosive oral lichen planus

Support Group: Autoimmune Diseases

Posted: Mar 30, 2019

Yikes, I just noticed that I put Lichen Sclerosis in the topic line rather than Oral...

https://connect.mayoclinic.org/comment/1290387/

Discussion: Have Lichen Sclerosis-Any able to use a water flosser?

Support Group: Autoimmune Diseases

Posted: Apr 26, 2025

@diana70 Welcome to Mayo Clinic Connect! I think that you will find that there are many...

https://connect.mayoclinic.org/comment/1196614/

Discussion: Oral Lichen Planus: How do you cope with it?

Support Group: Autoimmune Diseases

Posted: Dec 24, 2024

I've had OLP for ?maybe 25 - 30 years. At one point it was erosive and...

https://connect.mayoclinic.org/comment/677051/

Discussion: Oral lichen Planus: What home remedies or medications help you?

Support Group: Autoimmune Diseases

Posted: Feb 2, 2022

Hello@jshdma Here is a recommended oral medicine specialist in NY. My contact is a dedicated oral...

https://connect.mayoclinic.org/comment/143865/

Discussion: Erosive oral lichen planus

Support Group: Autoimmune Diseases

Posted: Feb 7, 2019

I had ANA 1:80 with a speckled panel. Went to Rhemy. He was very dismissive and...

https://connect.mayoclinic.org/comment/1450361/

Discussion: 3 years ago ANA 1:80 now my ANA 1:640 help please

Support Group: Autoimmune Diseases

Posted: Nov 30, 2025

@rashida Hi Rashida! Thankyou very much for your helpful response with regard to OLP and the...

https://connect.mayoclinic.org/comment/748450/

Discussion: Oral lichen Planus: What home remedies or medications help you?

Support Group: Autoimmune Diseases

Posted: Sep 11, 2022

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