Ostomy Support Group

Ostomy Support Group

Tue, Aug 2, 2022
6:00pm to 8:00pm MT

Description

The Mayo Clinic Ostomy support group meets monthly, on the first Tuesday of the month from 6 to 8 PM MT (find your time zone). We are currently meeting virtually, via Zoom. Each meeting will feature a relevant topic and a guest speaker. Topics have included: stoma and skin management, ostomy care and products, nutrition related to ostomates, motivational ostomate speakers and emotional support.

Join Zoom Meeting here https://mchealth.zoom.us/j/99659580974?pwd=VUdyZ0dQVmdxd3lCd0s4S0JzbnVvdz09

Location
Zoom

Contact
Candy Boyes, R.N., RN-BC, C.W.O.C.N.
ARZMCOSTOMYSG@mayo.edu

Location

Online

I would appreciate it if someone is having the same problem as I...Ballooning of my Ostomy bag...if anyone has a solution I would appreciate it...I have spoken to Hollister and they have no solution...only to say wash the bag...to me that's not a solution...

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what type of bag do most people like the best .The entirely sealed bag or the bags with the clip closure

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@mikek206

I would appreciate it if someone is having the same problem as I...Ballooning of my Ostomy bag...if anyone has a solution I would appreciate it...I have spoken to Hollister and they have no solution...only to say wash the bag...to me that's not a solution...

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The ballooning of the OSTOMY bag should be from gas. Open the bag, I did it at the top and let the gas out. I always taped my bag down, they gave me special tape and a powder, so tape the bag back down and see if that helps. Does this address your issue? Feel free to ask me any questions. You know you can send private messages by clicking on the persons name. Good luck.

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@moonbunny616

what type of bag do most people like the best .The entirely sealed bag or the bags with the clip closure

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Personally I never used a bag with a clip. I don’t think I would like a clip.

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@adlttl123

The ballooning of the OSTOMY bag should be from gas. Open the bag, I did it at the top and let the gas out. I always taped my bag down, they gave me special tape and a powder, so tape the bag back down and see if that helps. Does this address your issue? Feel free to ask me any questions. You know you can send private messages by clicking on the persons name. Good luck.

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Thank You...I will Try It...Thanks Again...

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You are very welcome!! Hope things get easier for you. Will you be able to have a reversal?

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@mikek206

I would appreciate it if someone is having the same problem as I...Ballooning of my Ostomy bag...if anyone has a solution I would appreciate it...I have spoken to Hollister and they have no solution...only to say wash the bag...to me that's not a solution...

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Try a product called EZVent . It really helps you can apply it at the top of your pouch. You can go into a private area and release the gas! I’ve been using it for years! Hope this helps.

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Is this group more geared and intended for those w/colostomies or for those w/urostomies like myself?????

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@mikek206

I would appreciate it if someone is having the same problem as I...Ballooning of my Ostomy bag...if anyone has a solution I would appreciate it...I have spoken to Hollister and they have no solution...only to say wash the bag...to me that's not a solution...

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Do you have a urostomy or colostomy? I have a urostomy and use coloplast sun suri mio one piece as well as overnight bag. Periodically my bags balloon also. It especially balloons while flying. I disconnected the two bags to let the air out if the overnight bag is ballooning or just emptied the ballooning bag. I have attended other support groups and find it rare for urostomy patients to have this problem. I have been told that it is food related but my diet is fairly consistent and can’t figure out what is causing it.

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@mamabare

Do you have a urostomy or colostomy? I have a urostomy and use coloplast sun suri mio one piece as well as overnight bag. Periodically my bags balloon also. It especially balloons while flying. I disconnected the two bags to let the air out if the overnight bag is ballooning or just emptied the ballooning bag. I have attended other support groups and find it rare for urostomy patients to have this problem. I have been told that it is food related but my diet is fairly consistent and can’t figure out what is causing it.

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Do you drink carbonated drinks? Mine bloat up when I do.

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