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Caring for the Caregiver Support Group (Florida)
Online

Caring for the Caregiver Support Group (Florida)

Thu, Jun 15, 2023
11:00am to 12:00pm ET

Description

This Cancer and Transplant Caregiver Support Group invites you to meet each week to get information, ask questions, share your story, or hear from others about how they care for their loved one and themselves.

Time: Thursdays at 11:00 a.m. – 12:00 p.m. ET
To receive the Zoom link to join the discussion, email Preusler.eric@mayo.edu or leave your email address
at: 904-956-3085

*This group is for caregivers, so we respectfully ask that patients not attend. All caregivers are welcome.

Location

Online

Contact

Eric Preusler, LCSW
Eric Preusler, LCSW
Email: preusler.eric@mayo.edu
Phone: (904) 956-3085
selima109 | @selima109 | Jun 24, 2023
In reply to @joymo "Yesterday I got so tired and frustrated. I’m caring for my sister-in-law who has stage 4..." + (show)
@joymo

Yesterday I got so tired and frustrated. I’m caring for my sister-in-law who has stage 4 melanoma in her brain and lungs. I really only needed a hug not my husband telling me to not to feel this way. He will help if I ask but it can be frustrating

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I am sending lots of hugs
To whole family.

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1 reply
selima109 | @selima109 | Jun 24, 2023
In reply to @almer "I’m a retired nurse and this is what I do . Working on being a parish..." + (show)
@almer

I’m a retired nurse and this is what I do . Working on being a parish nurse and I know what it’s like for these people to need a break . My heart goes out . Everything is so overwhelming. Keeping u in my thoughts and prayers.

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Amen

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blue2 | @blue2 | Jun 24, 2023
In reply to @talle "People are telling me I cannot do this anymore, that I need to make other arrangements...." + (show)
@talle

People are telling me I cannot do this anymore, that I need to make other arrangements. I have to sell my home of 25 years and get nothing in return, but possibly enough to buy a row house. People made fun of my family because that was all we could afford growing up. My husband has prostate cancer and frontal temporal dementia. The side effects from the medication for the prostate cancer aggrevate the dementia. He is a survivor, how do I throw in the towel on him.

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Your house is your financial nest egg for your own care later on. Your house cannot be taken from you to cover cost of care for your husband.
Could you ask your neurologist or cancer doc to connect you with a (hospital?) social worker so you can know what all your options are? The social worker can also help you with the decision as to if it is the right time for you and your husband for other care and alleviate the guilt you might be feeling.
(I’m not looking forward to that decision either.)

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2 replies
selima109 | @selima109 | Jun 25, 2023
In reply to @blue2 "Your house is your financial nest egg for your own care later on. Your house cannot..." + (show)
@blue2

Your house is your financial nest egg for your own care later on. Your house cannot be taken from you to cover cost of care for your husband.
Could you ask your neurologist or cancer doc to connect you with a (hospital?) social worker so you can know what all your options are? The social worker can also help you with the decision as to if it is the right time for you and your husband for other care and alleviate the guilt you might be feeling.
(I’m not looking forward to that decision either.)

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Yes all true
Talk to your doctor he has to get ball rolling
Can’t loose your home

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gjvermie | @gjvermie | Jun 25, 2023
In reply to @selima109 "I am sending lots of hugs To whole family." + (show)
@selima109

I am sending lots of hugs
To whole family.

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You deserves extra hugs. Remember there are others who give good thoughts daily for caregivers like you.

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happy3515 | @happy3515 | Jun 26, 2023
In reply to @blue2 "Your house is your financial nest egg for your own care later on. Your house cannot..." + (show)
@blue2

Your house is your financial nest egg for your own care later on. Your house cannot be taken from you to cover cost of care for your husband.
Could you ask your neurologist or cancer doc to connect you with a (hospital?) social worker so you can know what all your options are? The social worker can also help you with the decision as to if it is the right time for you and your husband for other care and alleviate the guilt you might be feeling.
(I’m not looking forward to that decision either.)

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Pls see an estate lawyer as there are lots of advice to help. Also if your husband is a veteran there maybe some assistance from them.
God bless

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