Caring for the Caregiver Support Group (Florida)

Caring for the Caregiver Support Group (Florida)

Thu, Jun 15, 2023
11:00am to 12:00pm ET

Description

This Cancer and Transplant Caregiver Support Group invites you to meet each week to get information, ask questions, share your story, or hear from others about how they care for their loved one and themselves.

Time: Thursdays at 11:00 a.m. – 12:00 p.m. ET
To receive the Zoom link to join the discussion, email Preusler.eric@mayo.edu or leave your email address
at: 904-956-3085

*This group is for caregivers, so we respectfully ask that patients not attend. All caregivers are welcome.

Location

Online

Contact

Eric Preusler, LCSW
Eric Preusler, LCSW
Email: preusler.eric@mayo.edu
Phone: (904) 956-3085

Our daughter is a caregiver for a man with Huntington's disease. She is really having problems coping with him, work and just living. At what point does a person say I can't do it anymore?

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@daveymc

Our daughter is a caregiver for a man with Huntington's disease. She is really having problems coping with him, work and just living. At what point does a person say I can't do it anymore?

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I found when I get so completely overwhelmed with caregiving I need a break. It’s hard to financially get
away and have someone stay with my sister in law. I too wonder about finally saying I can’t do it anymore. My health has to be number 1.

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Guess there isn't anyone that wants to tackle this kind of problem.

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@daveymc

Our daughter is a caregiver for a man with Huntington's disease. She is really having problems coping with him, work and just living. At what point does a person say I can't do it anymore?

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I have been a full time caregiver for my husband for the last 6 years. I think we each have our own level of stress before we say I can’t do it anymore.
The strain got to me 3 years ago when I kept telling myself I couldn’t take it anymore. The isolation of 24/7 care combined with Covid had finally gotten to me and I telling myself I couldn’t do it anymore. A few months later I was diagnosed with breast cancer. Fortunately I am fine now but when I catch myself saying I can’t do this anymore I trying to tell myself that there is a different way of looking at the current situation It does seem to help.
More importantly we all have different ways of handling the stress and we all have a variety of issues to weigh when making any decisions regarding the situation
Ill keep your daughter in my prayers

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@barnye

I have been a full time caregiver for my husband for the last 6 years. I think we each have our own level of stress before we say I can’t do it anymore.
The strain got to me 3 years ago when I kept telling myself I couldn’t take it anymore. The isolation of 24/7 care combined with Covid had finally gotten to me and I telling myself I couldn’t do it anymore. A few months later I was diagnosed with breast cancer. Fortunately I am fine now but when I catch myself saying I can’t do this anymore I trying to tell myself that there is a different way of looking at the current situation It does seem to help.
More importantly we all have different ways of handling the stress and we all have a variety of issues to weigh when making any decisions regarding the situation
Ill keep your daughter in my prayers

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Thanks for your from the heart reply. I will pass it on. There is also something I always say. God works in mysterious ways.

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Yesterday I got so tired and frustrated. I’m caring for my sister-in-law who has stage 4 melanoma in her brain and lungs. I really only needed a hug not my husband telling me to not to feel this way. He will help if I ask but it can be frustrating

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People are telling me I cannot do this anymore, that I need to make other arrangements. I have to sell my home of 25 years and get nothing in return, but possibly enough to buy a row house. People made fun of my family because that was all we could afford growing up. My husband has prostate cancer and frontal temporal dementia. The side effects from the medication for the prostate cancer aggrevate the dementia. He is a survivor, how do I throw in the towel on him.

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@talle

People are telling me I cannot do this anymore, that I need to make other arrangements. I have to sell my home of 25 years and get nothing in return, but possibly enough to buy a row house. People made fun of my family because that was all we could afford growing up. My husband has prostate cancer and frontal temporal dementia. The side effects from the medication for the prostate cancer aggrevate the dementia. He is a survivor, how do I throw in the towel on him.

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It would be nice if the same people who are giving you the advice would volunteer to give you a break. Watch your husband, take you shopping, maybe to a movie, buy you some popcorn. If you belong to a Church, ask them if they have a help program and don't hesitate to lean on them. Your not begging, your asking a fellow Christian to help you.

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@daveymc

It would be nice if the same people who are giving you the advice would volunteer to give you a break. Watch your husband, take you shopping, maybe to a movie, buy you some popcorn. If you belong to a Church, ask them if they have a help program and don't hesitate to lean on them. Your not begging, your asking a fellow Christian to help you.

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My heart ❤️
What you doing
You need some away time .maybe a day or few hours.
I took care of Denny
He pass on
Keep in touch

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@daveymc

It would be nice if the same people who are giving you the advice would volunteer to give you a break. Watch your husband, take you shopping, maybe to a movie, buy you some popcorn. If you belong to a Church, ask them if they have a help program and don't hesitate to lean on them. Your not begging, your asking a fellow Christian to help you.

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I’m a retired nurse and this is what I do . Working on being a parish nurse and I know what it’s like for these people to need a break . My heart goes out . Everything is so overwhelming. Keeping u in my thoughts and prayers.

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