Young Spousal Caregiver

elizajayne,
Oh my gosh I can't imagine how difficult that must be for you. It breaks my heart. I am so sorry for what you are going through. I am 79 and my husband is 88 and has Alzheimer's and it is so hard on me, but it is not anything like what you are going through at such a young age. Do you have any kind of a support network? We never imagine that we will be in such a troubled position.

Maybe there is someone else on this site who is closer to your age who you could communicate with. It helps to have people to talk to.
Katrina123

Thank you. Yes I do have support but no matter how thoughtful and kind others are there just isn't any way anyone would know the extent of what it's like on the home front unless they experienced themselves! That's why I decided to turn to this forum to see if there was anyone out there who may be in similar circumstances.

My heart is with you. I am a younger spouse/ caregiver for my husband of 39 years. We have a significant age difference and still get judged for it, but for us, it worked. Our kids are raised, but he is in hospice care now for dementia decline and a failing heart. I reached out to a lot of support groups, therapists, hospices, and the like until I found people and companies that worked for us. It took years and lots of advocating to find the resources that work for our paradigm of care and love in this life transition. I am happy to connect privately if you're interested. You and your family will be in my thoughts and prayers.