Y-90 liver cancer treatment: What's your experience?

Posted by mudshark @mudshark, Dec 8, 2019

I recently was treated with y-90 on a tumor in my liver. I am interested in knowing of others that have had experiences good, or bad, and of long term results. I have had prior resection of the liver to remove a tumor but a new tumor surfaced in a different section. I am hoping the y-90 will prove to be a more permanent solution. Thanks

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@phillydawg

Hi Colleen...I was glad to hear that someone who has had y99 treatment had limited side effects. I will receive my y99 treatment next week for a 3.5cm unresectable HCC due to location and while I have evidence of Cirrhosis, all blood work is normal including AFP. No symptoms. Hoping that the y99 can shrink the tumor and future resection or transplantation will be possible. I am a otherwise very healthy 70 year old. Interested in hearing from others that have had y99 treatment and their progress toward a resolution or transplantation. Thanks

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Welcome, @phillydawg, I'm tagging fellow members like @gailvar @pfitz904 @alfonso22 @judi729 and @digibson who have experience with radioembolization (Y90) treatment.

Phillydawg, do you have any questions about your upcoming first treatment? Are you already on a transplant waiting list?

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I have been receiving Tecentriq + Avastin and now will be having radiation. I'll have to travel 20 miles for the treatments because that's where the special equipment is located. Does this sound like the y99 treatment?

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@digibson

Hi! I had a great experience with Y90. The mapping was a piece of cake, worked the next day and the shoot went great. No pain at all with the shoot, a little tired the next day but was back at work the following day.

I guess the most important question is did it work? Great response. I had two cancerous carcinomas on my liver. Months one and two they shrank then my radiologist reported after month three ct that the big one was dead and the image of the little one was kind of cloudy but he thought all that was left was the bed it was laying in and at least for now i had no viable disease. Will continue to scan every three months for now, next one April 26th. Will fill you in.

My tumor markers went from 60 something down to 8.1. I'm not really sure what the tumor marker numbers mean and have read they are not always to heavily relied of for the diagnosis or cure of cancer. Maybe someone would chime in on that. I would so highly recommend the Y90 to anyone. I heard someone else call it "The Mighty Y90." Diane

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Thank you for the update on your y99 experience...I am having it done next week and hoping for good results. Good luck to you and hope all is still good

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Great news. I am having y99 next week. How were your side effects?

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@digibson

Hello all - I had the mapping for the y90 treatment yesterday and felt it went great! I'm a little fatigued but at work today. I felt the news afterword was pretty encouraging too. Of three possible carcinomas only 2 were cancerous and the third benign. I guess they can only radiate two at a time so it saves me from a second procedure. Now were scheduled to shoot on July 21. I have Hep C that caused liver damage and can start that med protocol (Eclusa) as soon as we're sure the cancer is gone which I'm anxious to get the liver damage stopped. Would like to hear from you. Thanks, Diane

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How did your y99 treatment go?

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Mudshark...how are you doing following your y99 treatment? I am having it done soon.

Thanks

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@colleenyoung

Hi @mudshark, I'd like to add my welcome. I'd also like to bring @tomewilson @afrancesca and @jerrydrennan who have talked about radioembolization (Y90) treatment.

Mudshark, (interested username) Did you experience any side effects of post-embolization syndrome, like fatigue, nausea, vomiting or fever? When will you have followup to discuss the effectiveness of the treatment?

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Hi Colleen...I was glad to hear that someone who has had y99 treatment had limited side effects. I will receive my y99 treatment next week for a 3.5cm unresectable HCC due to location and while I have evidence of Cirrhosis, all blood work is normal including AFP. No symptoms. Hoping that the y99 can shrink the tumor and future resection or transplantation will be possible. I am a otherwise very healthy 70 year old. Interested in hearing from others that have had y99 treatment and their progress toward a resolution or transplantation. Thanks

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@donsunlover

You might want to look at taking 955 standardized curcumin wit black pepper extract to both help recovery and possibly inhibit reccurrance, I would reccomend 1000 mg doses posssibly more than once a day.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5840955/
Also "timed release" vitamin C is helpful for building the immune system.

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correction should say 95% not 955

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@pfitz904

Thank you very much. I seem to be getting my energy back slowly, after 7 weeks post Y90. What natural medicine have you found helpful? I would like to research natural medicine.
Sending prayers to you as well.

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You might want to look at taking 955 standardized curcumin wit black pepper extract to both help recovery and possibly inhibit reccurrance, I would reccomend 1000 mg doses posssibly more than once a day.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5840955/
Also "timed release" vitamin C is helpful for building the immune system.

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@judi729

A 13.0 x 6.5 cm lesion was found on my 85 year old husband's liver on Feb 16 of this year. A biopsy on Mar. 3 showed that it is early HCC cancer with no chirrosis. The mass did not exist 14 months prior and other than the stress he feel great and continues to take walks and use the rowing machine three times a week. The reason he went to the doctor was because in November his taste started to change and he lost 25 lbs in two months. His taste reverted back to normal about 12 days ago and he's gained back about 10lbs.
The options presented so far are removal of half of his liver or Y-90. He is leaning towards Y-90 as he would prefer to not go under the knife at his age.
I would really appreciate hearing from anyone who has used Y-90 as their primary treatment. Dave's choice is quality of life over quanity and I fully support whatever he chooses. He wants to make as informed a decision as possible and tomorrow he will be getting his second opinion at the University of Washington Liver Tumor Center.
Thanks in advance for any info and support. Judi

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Morning I got the Y90 treatment my opinion is go for it my was to a cancer tumor in my liver also I have cirrhosis they wanted to do I liver transplant but I am not for it just my decision I am 61 years back to the Y90 is radiation beads is about 3 hours a little painful and some burning feeling but I my case was minor the tumor did shrink but still cancer cells alive after 3 moths MRI so they did same procedure but this was called TACE which is Chemo That on was very painful after that they keep you in the hospital for a day 3 months later MRI tumor was gone but now after 3 months MRI tumor is back small but will have a MRI in July I have accepted it and I know God has plans for me my mother passed of the same liver cancer as my I guess I am my mother son sending prayers for you husband we need to stay strong positive life is full of wonderful things while we are in the physical form of our human form ❤️🙏🏻❤️

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