Xgeva experiences?

My husband refused the Xgiva (and the others that are similar). More harm and side-affects than what it is worth. He made sure to take Calcium + D (extra strength) daily and concentrate on bone building exercises. His MO pushed pretty hard but he still refused it. I think the Onco was getting a kick-back 🙂

My oncologist put me on Zometa because the problem with Xgeva was much higher.

You might want to look into the comparison risk between the two drugs.

One benefit of Xgeva is that you can do it for two years and then get a Zometa infusion and it sort of locks in the benefits that you get from Xgeva.

I did take Fosamax for six years, It has a lower chance of causing osteonecrosis. It did seem to keep my bones strong.

Neither FORTEO nor TYMLOS cause ONJ , so those are good alternatives if you absolutely have to take something.
My wife was diagnosed with osteoporosis and neither of us wanted her to go on any of these bone building drugs. She is currently taking Fortibone collagen peptides.
You take a daily scoop in your coffee or hot cereal. It is clinically proven to work, however, it does take a few years to show a difference on the bone density tests.
So she just won’t take one for two years – it’s that simple.
The problem with a lot of these bone density drugs aside from the ONJ is the fact that while they may strengthen bones in the spine, they can actually cause spontaneous fracture of the long bones such as the femur or humerus.
Phil

Thank you to the people kind enough to respond to my post. I called the Dr this morning and canceled the Xgeva injection due to possible dental issues (I am seeing my dentist next week) and the fact that prednisone may worsen the awful side effects of osteonecrosis when used in conjunction with Xgeva. I also asked for a bone scan to have a baseline for bone density. I am currently taking D3 and calcium and will research Fortibone, thank you Phil. Now an opinion: after going down the rabbit hole of adverse effects of ADT and ARPI, taking weeks to decide to take the drugs, and now having been on them for 2 months ( with good results).....to have the Dr prescribe Xgeva and expect me to take it with no explanation of side effects was upsetting, I will have to admit. I read all the posts here and on the osteoporosis thread, I think I can say, with certainty that we, as cancer patients, have to advocate for ourselves. Imagine trying to gather information without the internet......as much as I dont like spending time on the computer... it is a valuable resource. The Drs must hate it when we pretend to know everything about our cancers....lol...not really.... but it does make me feel better knowing that I can talk with the Dr with some knowledge of the subject. Best wishes to everyone, thanks for reading this post, I will be reading yours!