Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Hi Stan and @cdwilm27, I think the comments are functioning as they should. Stan your comment is here: https://connect.mayoclinic.org/comment/648371/

Cdwilm27, I'm afraid your post yesterday didn't go through. Thanks for reposting today and keep the group up to date on how the infusions are going.

HI Thanks for commenting again. Am wondering if there is an issue with the forum as Lori didn;t see my previous comment/question. It is good to hear your infusions are going well and hope they are effective. I have no idea how fast Rituximab works
I expect your previous lab results, current infusion plan, and early December labs will provide a lot of information to be analyzed during your second opinion visit in December.
Do they do weekly blood tests?
Thanks

Stan, I commented back to you yesterday, somehow that comment did not get posted.
My infusion last week went well. I did have a mtg with my oncologist who told me If the Rituximab didn't help me that I may need 4 more weeks of infusions, but this time it would be chemo.
My H&H this week has improved and I actually feel a lot better. I'm sorry the CT showed a new spot on your lung. I will comment tomorrow on how today's infusion went.

Lori, Hi, I had commented a couple days ago with my question to cdwilm27. The CT showed a suspicious spot in my lung and have tests scheduled for Nov 4.

Hi @stanleykent Thought I’d stop by this morning to see how your appointments went this past week. You had a full day with labs, scans and office visits. I hope it’s all good news! Any change in your lungs and spleen??

If you're willing to share, am wondering if the second infusion went ok and how you feel the days after? Am wishing this is going well for you.
My checkup was last Thursday and test showed the gradual progression of this lymphoma. H&H were ok , 14 and 44, Platelets a bit lower at 97.
The CT showed a new spot of concern in my lung and have follow up Lung function and PET tests next week. Am very concerned.

My pleasure. 💕 It was kind of funny because my daughter and I were just talking about that subject this morning! So it was fresh in my head!! She recently ordered a new car and finding it difficult to wait for it get built. In the meantime, she’s seeing so many of the same cars running around and never realized how many there were! 🙃

Lori, that was one of the best explanations I have ever heard. Thank you for the prompt response!

Hi, you and I have connected during part of your journey here on Connect with SMZL. I hope some more members come forward who have similar symptoms and treatments so they can offer some insight.
Your last comments caught my eye though. The TV commercials and how many are targeting people with cancer.
They’ve been around a long time but since it wasn’t impacting your life, your brain let it slide. It’s an interesting part of science called Reticular Activating System. There are all kinds of studies and information online. Years ago I took an immersion course in Mindfulness and RAS was one of the areas I chose to delve into.
The Reticular Activating System is a bundle of nerves at our brainstem that filters out unnecessary information so that things which are important get through. Basically your brain zeros in on something specific and triggers a subconscious reaction to look for that item. An example. Take the color of your car or model. Since you bought that car, how many times have you seen the exact car now. Or bought red shoes thinking you’re unique. And now, looking around you’ll instantly see red shoes on other people.
So in answer to your question, yep, you are more sensitive to cancer ads now that you have it.
https://extension.umn.edu/two-you-video-series/ras

Hi Andi, I'm a 70 yr old woman who was diagnosed with SMZL 6 weeks ago after having night sweats over the summer. I'm in the middle of my 4-week Rituximab infusions. My oncologist told me that the cancer was in my bone marrow and that my spleen was twice its normal size. He told me that Rituximab works for about 85% of patients. I'm hoping that will be me. Right now I'm trying to eliminate sugar from my diet, eat more iron-rich foods, Hydrate with Alkaline water and eat more protein. I am also trying to exercise when I can like walking in my neighbourhood or riding my bike short distances. I live in Phx so the weather is perfect for being outdoors finally.
I will continue to comment on how my infusions are going and anything else that I have found helpful thru this journey.
One thing I had never noticed before is how many TV commercials there are targeting people with cancer. The advertisers are either selling a medication that can possibly prolong life or a hospital that specializes in treating cancer. Was it always this way and I'm just more sensitive to these ads now that I have cancer?