Want to connect with others with Splenic B cell Marginal Zone Lymphoma

So Stan did see my reply from today?

Hi Stan and @cdwilm27, I think the comments are functioning as they should. Stan your comment is here: https://connect.mayoclinic.org/comment/648371/

Cdwilm27, I'm afraid your post yesterday didn't go through. Thanks for reposting today and keep the group up to date on how the infusions are going.

HI Thanks for commenting again. Am wondering if there is an issue with the forum as Lori didn;t see my previous comment/question. It is good to hear your infusions are going well and hope they are effective. I have no idea how fast Rituximab works
I expect your previous lab results, current infusion plan, and early December labs will provide a lot of information to be analyzed during your second opinion visit in December.
Do they do weekly blood tests?
Thanks

Stan, I commented back to you yesterday, somehow that comment did not get posted.
My infusion last week went well. I did have a mtg with my oncologist who told me If the Rituximab didn't help me that I may need 4 more weeks of infusions, but this time it would be chemo.
My H&H this week has improved and I actually feel a lot better. I'm sorry the CT showed a new spot on your lung. I will comment tomorrow on how today's infusion went.

If you're willing to share, am wondering if the second infusion went ok and how you feel the days after? Am wishing this is going well for you.
My checkup was last Thursday and test showed the gradual progression of this lymphoma. H&H were ok , 14 and 44, Platelets a bit lower at 97.
The CT showed a new spot of concern in my lung and have follow up Lung function and PET tests next week. Am very concerned.

Hi @stanleykent Thought I’d stop by this morning to see how your appointments went this past week. You had a full day with labs, scans and office visits. I hope it’s all good news! Any change in your lungs and spleen??

Yes, Once there are medical concerns, much information is available. And learning is good, and feel one needs to be their own health advocate. ... but also be wary of the source of information one can find.
Tomorrow, labs and CT appointments in the morning. Hematology and Oncology appointments in the afternoon.

Chest CT is requested by Oncology as they are watching to see if there is any reoccurance, or issues with the lungs and chest.
Hematologist appointment is looking at the labs and checking the SMZL progression. The chest CT also shows most of the spleen , so size progression is monitored as well. I'm on "watch and wait" ... but waiting isn't easy. Always have "scanxiety" before these appointments.
Thanks

My second infusion is today. My latest labs are not the best. H&H are 10.4 and 32.8. Platelets were 94. (No wonder I have no energy) I will speak to the doctor today. My infusions are weekly, ending on Nov. 4th. I've also lost 4 lbs since last week.

Lori, that was one of the best explanations I have ever heard. Thank you for the prompt response!