Will I remain a mystery? Painful stomach, puking, weight loss

Posted by hyrulewarrior @hyrulewarrior, Jul 1, 2024

Hi, I’m not sure where to even start, my life has been absolute hell. I’ve had stomach issues since I was a kid but it was simple aches and constipation that was treated by a doctor back then. I never thought it would become this but here we are, around 4 years ago now I got VERY sick with COVID and since then I’ve been in and out of the ER/Hospital. I would have pain in my entire stomach area that felt like something was dying inside of me but that’s as well as I could explain it. I would be puking non stop, unable to get anything I needed down especially my meds I need. My potassium and such was plummeting and things get scary and this is becoming more frequent. I’m only 20 almost 21 and I haven’t been able to do much of anything. I’ve lost over 100 pounds, I’m weak and can hardly eat once a day now from pain/constipation/fear of puking. My GI doctor seems to not care, he tried to not even tell me that my gastroparesis was confirmed. I am not being treated for anything besides GERD thanks to my amazing PCP, but she can only do so much. I guess overall, I feel so stranded and alone, I’m treated like they have no idea what’s wrong but im constantly in the hospital, I can’t keep a job or have a proper life. It’s becoming so hard to stay alive and postive, Does anyone think this could be something else or just gastro not being treated all these years? I’ve done so many tests I really am not sure what all they were besides upper endoscopy and colonoscopy and basic blood/pee tests

Interested in more discussions like this? Go to the Digestive Health Support Group.

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@isadora2021
As an oncology nurse myself with an amazing NP I work with, I am so glad you got a diagnosis. But I have to ask how did they finally find this. I work in the medical field and still stuck in the cycle?

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@chall7602 My diagnosis was mucinous adenocarcinoma appendix cancer. (After debulking surgery it took a couple of months for the team to work that out from my biopsies. My ovarian tumour was one of the secondary sites. The treatment protocol is different. Appendix cancer initially gets treated the same as colorectal cancers).

Like most of us I had explained away my symptoms, especially bloating which I assumed was due to menopause and extreme fatigue which I assumed was being burnt out.

I had my 1st covid jab in Australia (we finally got it late) and it saved me!! My body couldn’t handle fighting cancer and dealing with the jab. I was dreadfully sick one night (vomitting, shivering and breathless). My new GP (who replaced my just retired GP and my 1st visit to her) the next day got me up on the table and prodded my abdomen all over. She found the mass and it was all on from there. I had scans and was in surgery within a few days.

I owe my life to that covid jab and a hands-on GP.

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Functional health doctors. It can be a little pricey but give it a try. IV nutrition at the " drip bars" can help you out with the nutritional aspect. So the nutrients in an IV bag can help bypass the gut and into the blood stream. The functional health doctors can draw a nutritional panel seeing where you may have a problem. Then, The iv nutritional clinics can make a regimen according to your problems and labs with functional healthcare. Also, do you have a history of anxiety and depression? I recommend a procedure called neuro feedback which helps the brain develop new pathways for health and thinking. Sometimes, when we change our brain and thinking processes and heal our guts. The brain is a powerful organ and is connected to our stomachs. I pray for you and hope you feel better!

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