why do drs. push reclast

Posted by pookybear01 @pookybear01, Dec 29, 2024

no family history of osteoporosis, but my oncologist is pushing reclast. I refused. I am extremely healthy and I will not take that poison. Proper diet and exercise is my alternative route.

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@mlaura1

Thank you yes it scares people I refused meds for osteoporosis for years because I thought it was poison and now I had 3 compound fractures in my spine. Now I just got my first Priola shot but was afraid of medication all along. Wish I did it sooner,!!!

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@mlaura1 if you have three spinal fractures I hope you can get a second opinion on treatment. I have several fractures and my doctor said he would never use Prolia. My doctors (2) have said that a bone building drug like Tymlos,Forteo or Evenity is needed in this situation. I am just another patient and repeating what I have been told. I hope you can discuss with a medical professional.

Some on this forum have described the "Prolia trap" due to rebound when it is stopped (loss of bone density, dramatic rise in fracture risk) and the only drug that manages that is Reclast. If you have had only one Prolia, then, according to Keith McCormick, author of "Great Bones" (please get that book!) you might be able to manage with Fosamax. Or even Evenity, depending on research and your doctor. You can research Prolia rebound.

The other point that is often made here and by my doctors is that Prolia (and Reclast) can reduce the effectiveness of the bone builders.

Maybe you have a special situation that accounts for this recommendation of Prolia. My doctors don't use it at all except for in situations where nothing else is possible.

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@mlaura1

Thank you yes it scares people I refused meds for osteoporosis for years because I thought it was poison and now I had 3 compound fractures in my spine. Now I just got my first Priola shot but was afraid of medication all along. Wish I did it sooner,!!!

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You are so brave to be here saying your truth. Thank you. I agree that when you read everybody’s stories of how horrible these drugs are, it can scare you off. The pain of a few collapsed vertebrae can remind us that this is a risk AND benefit choice. I am so glad you are getting some medicine for your bones now.
The Mayo doctors who help my husband who also has multiple collapsed vertebrae give him a prescription for a lidocaine patch that goes directly on the back and it really, really made a difference in his pain. They sell an over the counter variety but they aren’t quite as strong and really expensive to use one every 24 hours. The prescription co-pay is only a few dollars for a month of patches.
How are you managing with the fractures? Did you have any problems with your first prolia?

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@windyshores

@mlaura1 if you have three spinal fractures I hope you can get a second opinion on treatment. I have several fractures and my doctor said he would never use Prolia. My doctors (2) have said that a bone building drug like Tymlos,Forteo or Evenity is needed in this situation. I am just another patient and repeating what I have been told. I hope you can discuss with a medical professional.

Some on this forum have described the "Prolia trap" due to rebound when it is stopped (loss of bone density, dramatic rise in fracture risk) and the only drug that manages that is Reclast. If you have had only one Prolia, then, according to Keith McCormick, author of "Great Bones" (please get that book!) you might be able to manage with Fosamax. Or even Evenity, depending on research and your doctor. You can research Prolia rebound.

The other point that is often made here and by my doctors is that Prolia (and Reclast) can reduce the effectiveness of the bone builders.

Maybe you have a special situation that accounts for this recommendation of Prolia. My doctors don't use it at all except for in situations where nothing else is possible.

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Thank you so much for this helpful information I will get the book Great Bones I appreciate this information since I refused drugs all these years out of fear

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@auntieoakley

You are so brave to be here saying your truth. Thank you. I agree that when you read everybody’s stories of how horrible these drugs are, it can scare you off. The pain of a few collapsed vertebrae can remind us that this is a risk AND benefit choice. I am so glad you are getting some medicine for your bones now.
The Mayo doctors who help my husband who also has multiple collapsed vertebrae give him a prescription for a lidocaine patch that goes directly on the back and it really, really made a difference in his pain. They sell an over the counter variety but they aren’t quite as strong and really expensive to use one every 24 hours. The prescription co-pay is only a few dollars for a month of patches.
How are you managing with the fractures? Did you have any problems with your first prolia?

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The Dr. Sent me to physical therapy. The prolia shot I gave a runny nose in the morning mostly and I feel tired. The calcium supplements they told me I have to take with prolia bother my stomach. I use the chewable ones. I was told they don't bother your stomach. The physical therapy helped me with pain.

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@mlaura1

The Dr. Sent me to physical therapy. The prolia shot I gave a runny nose in the morning mostly and I feel tired. The calcium supplements they told me I have to take with prolia bother my stomach. I use the chewable ones. I was told they don't bother your stomach. The physical therapy helped me with pain.

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I have to eat with mine or they upset my stomach too. I take them with lunch.😁

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I did Fosamax for 5+ years and still fractured. I was given 4 months of Tymlos before insurance cut me off and now my doctor is trying to get me on the generic version of Forteo.

After my fracture diagnosis in March, I finally undertook the research I should have done back in 2018 when I started on Fosamax.

I think we have been poorly served by the medical community. I think newbies should understand the pros and cons of all aspects of osteoporosis treatment including meds, lifestyle, and exercise.

No doctor ever covered any of this when I was first diagnosed with osteopenia. I received recommendations to take calcium and Vitamin D and to "get some exercise, preferably weight bearing".

No one ever told me that the Fosamax would shut down all bone remodeling, not just bone resorption. I believe this contributed to my fracture although no doctor or drug company would ever agree.

New diabetics get a lot of support with nutrition and lifestyle recommendations and I suspect medication information (not a diabetic so I can't comment on this but when my spouse showed signs of pre-diabetes he was sent to a diet class).

It seems we should have similar options when we are first facing this diagnosis and not be left to come to our own conclusions which may mean we avoid drugs that might help us or take drugs for years without understanding the long term impact.

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@oopsiedaisy

I did Fosamax for 5+ years and still fractured. I was given 4 months of Tymlos before insurance cut me off and now my doctor is trying to get me on the generic version of Forteo.

After my fracture diagnosis in March, I finally undertook the research I should have done back in 2018 when I started on Fosamax.

I think we have been poorly served by the medical community. I think newbies should understand the pros and cons of all aspects of osteoporosis treatment including meds, lifestyle, and exercise.

No doctor ever covered any of this when I was first diagnosed with osteopenia. I received recommendations to take calcium and Vitamin D and to "get some exercise, preferably weight bearing".

No one ever told me that the Fosamax would shut down all bone remodeling, not just bone resorption. I believe this contributed to my fracture although no doctor or drug company would ever agree.

New diabetics get a lot of support with nutrition and lifestyle recommendations and I suspect medication information (not a diabetic so I can't comment on this but when my spouse showed signs of pre-diabetes he was sent to a diet class).

It seems we should have similar options when we are first facing this diagnosis and not be left to come to our own conclusions which may mean we avoid drugs that might help us or take drugs for years without understanding the long term impact.

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With the pittance allocated for women's health research it does not surprise that our physicians are not adequately prepared to treat us.

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@susanfalcon52

I have had gains from every drug I’ve been on- Forteo, Tymlos, Evenity, and now Reclast. No side effects.
I’ve been walking, jumping, lifting weights, taking supplements, eating an acid free diet and yoga daily for decades.
This did not save my bones.
Drugs did, though.
I’m regularly posting this because the unhappy bone drug patients are more apt to post. It scares the newbies.

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Alendronate, forteo, evenity and one injection of Prolia and no noticeable side effects from any.

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@pookybear01

I was diagnosed with stage 1 breast cancer in 2021, it was successfully removed. Now cancer free. I have been taking anastrizole 1mg for 3 yrs. Now magically big pharma is pushing 7 yrs. instead of the original 5. I lost 19 lbs. and I am feeling so healthy. When I went to see my oncologist on 12/24/2024 he didnt even give a care in the world about my healthy living great diet and exercise. Instead just wanted to push reclast. I did further research into this MAGIC drug. To my horror it is poison to many. No family history of osteoporosis, yes I know the drug I am on can cause bones to become weak. I will take my chances and continue to live my life with proper diet and exercise. And I am looking for a new oncologist who listens to me.

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I had 3 Reclast infusions over a 4.5 year period because of osteoporosis (DEXA bone scans). I had flu-like symptoms from the Reclast for several days, otherwise no adverse reactions. I now have early to moderate osteopenia. I have lifted weights/resistance training for decades (I'm 70), taken calcium/magnesium citrate, very healthy diet, and still osteoporosis. I bike and hike and lot, so wanted to decrease my risk of broken bones. I have a couple of friends with osteoporosis and they have had a lot of breaks; one was on vitamin B12 injections and the other Reclast pills (don't know why pills rather than infusion; her only side effect is loss of smell and taste).

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@kayabbott

I had 3 Reclast infusions over a 4.5 year period because of osteoporosis (DEXA bone scans). I had flu-like symptoms from the Reclast for several days, otherwise no adverse reactions. I now have early to moderate osteopenia. I have lifted weights/resistance training for decades (I'm 70), taken calcium/magnesium citrate, very healthy diet, and still osteoporosis. I bike and hike and lot, so wanted to decrease my risk of broken bones. I have a couple of friends with osteoporosis and they have had a lot of breaks; one was on vitamin B12 injections and the other Reclast pills (don't know why pills rather than infusion; her only side effect is loss of smell and taste).

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@kayabbott Reclast does not come in pills. It is a bisphosphonate and there are several oral/pill forms of bisphosphonates, including alendronate (Fosamax). I am curious what effect your friend thinks or was told about the effects of B12 on bones.

It sounds like Reclast took you from osteoporosis to early to moderate osteopenia!

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